Translate This Page To: Spanish German French Italian Portuguese Norwegian Brought to you From FreeTranslation.com Give a gift in honor of this child. Alexia (Lexy) Guest Book        Photo Album Current Page Page One Page Two Update: 4-3-06 Hi to everyone, I do hope that everyone is doing well. April 26, will be one year since Lexy gained her Angel Wings. Beth is a tenant's mom at the apartment complex where I work. I have not seen her for sometime and she asked about Lexy and you know how hard that is to say she passed, and I was telling about her last few days. Beth then told me the Orange Leader was doing a story on Miracles and she asked if I would write it down and she would add it to the Miracle Section they were doing. This will be published in the Orange Leader, April 2, 2006. Click on the link and you will see an icon for the progress section. This will be online for 1 year. http://www.orangeleader.com Love, Pat UPDATE: 4-28-05 FUNERAL ARRANGEMENTS FOR LEXY ALEXIA (LEXY) RAYNE FLORY 11/14/1999-4-26-2005 LEXY EARNED HER ANGEL WINGS FOLLOWING A THREE AND A HALF-YEAR BATTLE WITH NEUROBLASTOMA CANCER. LEXY WAS A BEAUTIFUL LITTLE 5 YEAR OLD GIRL WHO FOUGHT SO HARD AND WAS SO COURAGEOUS. SHE HAS TOUCHED SO MANY PEOPLE IN HER SHORT LIFE. LEXY IS IN HEAVEN, NOW SHE SHEDS NO TEARS AND HAS NO PAIN. SHE IS SURVIVED BY HER DADDY, MOMMY & BABY BROTHER: GREG, DAWN FORD & ADEN FLORY, SAN BRUNO, CA., GRANDPARENTS: JOHN & PAT NEWTON, NEDERLAND, IVY BREITMAIER & LESTER NAPPER, GALT CA. AND GREAT-GRANDPARENTS: MILDRED BELL, NEDERLAND, SHIRLEY BREITMAIER AND JOE ANDRADE, SR., GALT, CA. AND MANY UNCLES, AUNTS AND COUSINS. VISITATION WILL BE HELD ON SUNDAY FROM 4:00 P.M. UNTIL 9:00 P.M. AT NEDERLAND APOSTOLIC CHURCH. FUNERAL SERVICE WILL BE HELD MONDAY, MAY 2ND AT 10:00 A.M. NEDERLAND APOSTOLIC CHURCH WITH REVERAND JAMES CORKRAN OFFICIATING. ARRANGEMENTS WILL BE THROUGH PAT RILEY FUNERAL HOME, NEDERLAND. BURIEL WILL FOLLOW IN MEMORY GARDENS, NEDERLAND. THERE WILL BE A BALLOON RELEASE OF RED BALLOONS, SINCE RED WAS HER FAVORITE COLOR. IN LIEU OF FLOWERS A DONATION CAN BE MADE IN MEMORY OF ALEXIA TO: CHILDREN’S NEUROBLASTOMA CANCER FOUNDATION: P.O. BOX 6635, BLOOMINGDALE, IL 60108. UPDATE: 4-27-05 DAWN, CALLED AT 1:48 THIS MORNING AND : LEXY, JUST EARNED HER ANGEL WINGS!!!!!!!!!!!!NO MORE SUFFERING AND NO MORE PAIN FOR MY BABY. I WILL UPDATE LATER, AND I HAVE TO THANK GOD FOR ALL HE DID FOR LEXY AND SHE DID NOT SUFFER.AND THAT IS WHAT WE PRAYED FOR. GOD DOES ANSWER PRAYERS JUST NOT ALWAYS THE WAY WE WANT IT BUT FOR THE BEST. PLEASE KEEP THE FAMILY IN YOUR PRAYERS. PAT UPDATE: 4-26-05 THIS IS ONE OF THE HARDEST JOURNALS, I HAVE WRITTEN. LEXY WENT TO CLINIC TODAY FOR BLOOD COUNTS AND TO SEE DR. MATTHAY. LEXY'S GUMS WERE OOZING TODAY SO DAWN KNEW LEXY WOULD BE GETTING PLATELETS WHICH SHE DID GET THEM SINCE HER PLATELETS WERE AT 3000 AND SHE HAD JUST GOTTEN PLATELETS LAST FRIDAY. LEXY WAS SUPPOSE TO START CHEMO TODAY BUT WILL NOT BE STARTING CHEMO. LEXY HAS A LARGE MASS IN STOMACH AREA AND THAT IS WHY LEXY'S TUMMY HAS BEEN HURTING. DAWN DID TELL ME, THAT SHE HAD TO LET LEXY'S PANTS OUT BECAUSE HER TUMMY IS SO BIG. DAWN DID THINK SOMETHING WAS WRONG YESTERDAY BECAUSE HER TUMMY WAS REAL HARD AND THEN WHEN HER PANTS HAD TO BE LET OUT DAWN KNEW THERE WAS A PROBLEM AND AS DAWN SAID "I WAS HOPING IT HAS TO BE SWOLLEN FROM NEEDING TO GO TO THE BATHROOM WHEN IN MY HEART I KNEW I WAS WRONG." LEXY'S LIVER FUNCTIONS ARE OFF AND THE RIGHT SIDE OF lEXY'S BACK IS FULLER OR BIGGER AND DR. MATTHAY SAID THAT DOES INDICATE LIVER INVOLVEMENT. DR. MATTHAY DID SAY THAT BASICALLY THAT LEXY IS RESISTANT TO ANY KIND OF CHEMO AND IT WILL BE UP TO DAWN AND GREG ON WHETHER TO KEEP TRANSFUSING HER. DR. MATTHAY, WILL GIVE TRANSFUSIONS TO LEXY AS LONG AS SHE CAN GET UP AND GO TO THE CLINIC AND DID SAY THERE WILL COME A TIME WHEN LEXY WANT BE GETTING UP AND MOVING AROUND AND WILL BE ON LOTS OF PAIN MEDICINE AND AT THAT POINT TRANSFUSIONS MAY NOT HELP HER HAVE A GOOD QUALITY OF LIFE BY PROLONGING HER LIFE WITH TRANSFUSIONS. DR. MATTHAY WANTS LEXY TO BE AT HOME AS MUCH AS POSSIBLE AND NOT IN THE HOSPITAL OR GOING TO THE CLINIC. LEXY IS TO START ON STOOL SOFTNERS NOW AND IF NOT GOING TO GIVE ENEMMAS BECAUSE THE MASS IS SO BIG AND IT IS PRESSING ON THE INTESTINES WHICH WILL MAKE IT HARDER FOR LEXY TO GO TO THE BATHROOM. DAWN TOLD ME THAT HER AND GREG WERE SO HAPPY WHEN ON LAST THURSDAY LEXY'S ARMS AND LEGS WERE NOT HURTING AND THEY WERE HOPING SOMETHING IS WORKING AND ONLY HER TUMMY IS HURTING. DR. MATTHAY DID TELL DAWN TODAY THAT WITH HER DETERMINATION, YOU ARE THE ONE THAT HAS KEPT LEXY FIGHTING. DAWN AND GREG ARE THE BEST AND JOHN AND I WERE TALKING DAWN IS THE GREATEST ONLY THINKING OF LEXY AND WHEN I FINALLY GOT A HOLD OF DAWN THIS EVENING I KNEW SOMETHING WAS WRONG BECAUSE DAWN DID NOT ANSWER HER CELL PHONE AND WHEN SHE FINALLY ANSWERED SHE SAID MOM I WILL CALL YOU WHEN I GET HOME I AM ON MY WAY. WHEN SHE CALLED I SAID YOU MUST HAVE BEEN TALKING TO THE DOCTOR AND SHE SAID YES AND WHEN I WAS GOING TO CALL YOU, YOU WERE ON YOUR WAY HOME AND I COULD NOT GIVE YOU BAD NEWS WHILE DRIVING AND THEN DAWN WAS DRIVING HOME. SHE IS THE GREATEST AND AS I TOLD DAWN LAST NIGHT YOU HAVE BEEN TO THE END OF THE EARTH TO HELP LEXY AND NOW IT IS TIME TO LET GOD HELP LEXY WITH ALL HER SUFFERING. I KNOW I HAVE SAID THIS BEFORE BUST DAWN IS SO UNSELFISH, AND HAS ALWAYS PUT LEXY FIRST. TO GREG YOU ARE ALSO THE GREATEST BEING A GOOD DADDY TO LEXY AND GETTING THE ARMY TO TRANSFER YOU TO WHEREVER TO GET LEXY THE BEST TREATMENTS. DAWN AND GREG HAVE AN APPOINTMENT WITH DR. MATTHAY AND THEY WILL TALK ABOUT WHAT TO EXPECT AND WHAT NEXT AND TO TALK ABOUT HOSPICE. DAWN AND GREG TALKED LAST NIGHT ON WERE THEY DOING THE RIGHT THING FOR THEM OF LEXY, WHAT A THING TO HAVE TO SET DOWN AND TALK ABOUT. ALL I CAN SAY IS GOD PLEASE BE WITH MY FAMILY AS I KNOW HE WILL ALWAYS BE THERE FOR US. ON A HAPPIER NOTE AS I WAS TALKING TO DAWN LEXY WALKS INTO THE ROOM WITH HER OFFICE STUFF, THAT IS HER PEN, TABLET AND BARBIE COMPUTER AND SHE WAS WWRITING HER WAY. I TOLD DAWN GET HER TO TRACE HER HAND AND SHE TOLD DAWN REAL QUICK NO BUT THEN AGAIN THAT SOUNDED GREAT TO HEAR HER FIGHT BACK. PAPA MADE A COMMENT THAT LEXY WAS THE ONE PERSON THAT LOVED HIM NO MATTER WHAT, SHE HAS ALWAYS LOVED HIM AND SHE KNEW HE LOVED HER JUST AS MUCH AS HIS BESTEST FRIEND AS HE SAYS. DAWN AND GREG WILL NEED SO MANY PRAYERS TO GET THEM THROUGH THEIR DARKEST DAYS, THEY ARE THE GREATEST. I DID TELL DAWN TONIGHT THAT AT LEAST WE SAW LEXY HAVE A GOOD TIME AT DISNEY LAND, A PARTY AND A DINNER AT UNCLE GLENN'S AND AUNT JEANIES IN HER HONOR, WHAT A SPECIAL LITTLE GIRL LEXY IS. LEXY GOT TO GO T0 ATHE ZOO SUNDAY AND SHE LOVES THE ZOO. WHEN LEXY WAS HERE SHE ASKED PAPA TO TAKE HER TO THE ZOO, SO PAPA SAID HE DID NOT TAKE HER TO THE ZOO AGAIN YET, SO I AM SURE PAPA WILL BE TAKING LEXY TO THE ZOO SOON. I TOLD HIM WE COULD WALK IN THE ZOO CARRYING HER AND SHOW HER A COUPLE OF ANIMALS AND WALK BACK OUT, I AM SURE WE WOULD GET A SMILE. PLEASE KEEP LEXY IN YOUR PRAYERS FOR GOD'S WILL. PAT UPDATE: 4-22-05 Lexy, Dawn and Aden are back in California and Lexy is doing good. They were suppose to return to California on Tuesday but as we had packed all the suitcases and locked the door, papa was holding Lexy and Dawn saw the back of Lexy's head, there was a big whep with a knot on it. Dawn called her doctor in California and they decided to send Lexy to the hospital in Nederland. We took Lexy to the new hospital which they gave Lexy platelets and the knot was gone by the time they gave Lexy her platelets. We were there for 12 hours and Lexy was ready to go as she had had enough of that hospital. They did leave on Wednesday morning to go home and Lexy is ok. Lexy will have blood counts on Friday at home and if she needs platelets or blood she will get it Friday. Monday Lexy will see Dr. Matthay and start chemo again if she is ready for chemo. Dawn will also ask Dr. Matthay what is causing the bleeds or whatever is causing the knots to come up on Lexy's head. Last week she also had a knot come up on her forehead and it went away. Make A Wish had called Dawn last week and asked if they wanted tickets to the Giants Baseball Game tonight in San Francisco, so that should be fun for the family tonight. I want to also thank everyone for coming by for Lexy's party. It was a huge success and it made Lexy so happy. Lexy, had fun at Uncle Glenn and Aunt Jeanies house, as they made supper for us and Uncle Jared and Aunt Katie, Brandon, Breanne and Brittany and Chris and Mimma were there also so it was a mini family reunion before the big party. Monday, we met Auntie Angie and Dyllon, Shane and Noah for pictures. Lexy did play baseball in the backyard with the boys and Riley came over to play with her and later Cindy came over and brought Madison, Morgan and Christian over to see Lexy before they left. Please continue to keep Lexy in your prayers and may God Bless Each of You. Pat UPDATE: 4-19-05 Hello everyone, Just wanted to let everyone know the party was great. Lexy had a wonderful time. She was full of energy and running around playing with all of the kids. We had lots of family, some old friends and some new friends. We got to meet some of the people that only know her from her website. What a wonderful blessing. We started the day going to church with Mimma (Lexy's great-grandmother). Of course, her preacher Brother Corkran prayed for Lexy. He will never know how much we truly appreciate it. Lexy was a little cranky and told me she wasn't going to play or have fun at her party. Then after church we went home to prepare. When that started, she began to get a little excited. By the time the first guest got there she started to realize there was really going to be a party, then when the clown walked in with the music playing and his cart of balloons she was jumping up and down she was so excited. Mr.Heslop or Shiner the Shriner clown said her expression was worth a million bucks. He brought his wife along to oversee his balloon art.Lexy made instant friends with Morgan Hanes and they ran around playing. Then Lexy's old friends Riley and Daisy arrived. All 4 were having a blast. They were inside playing make-up and saw the trailer pull in with the petting zoo and pony. Lexy ran to find me yelling the animals are here. She couldn't wait to see them. There were 3 small bunnies, a goat,2 lambs, 2 chickens and the pony to ride. Lexy really enjoyed the bunnies as did every other kid there. Needless to say, Lexy refused to ride the pony. We finally managed to get her by the pony fo take a picture only when my cousin Wes bribed her with money. Look for the pictures soon. You will see one of Lexy by the pony with $5 sticking out of the saddle. Lexy had loads and loads of fun as all of us did. She also got lots of wonderful gifts. I think we figured out there were over 100 people there. We had guests from as far as the Houston area to Deridder Lousiana, even Lexy's first and favorite nurse Emily Downing from Texas Children's came to celebrate with Lexy. I'd like to give a special thanks first to mom and dad for throwing such a wonderful party and for making my little girl feel so special and loved each and every day. To Katherine Martindale for helping us set up and taking pictures which I can't wait to see. To Melody Martindale for handling the grill, helping us set up, the veggie tray, and the tables and chairs. To Aunt Jeannie for the chocolate dipped tray of goodies, the cookies and for taking care of Aden. To Aunt Ouida for making the wonderful coconut cake. Janice for the lemon cake, Kaye and James for the sandwich tray, Michelle and Steve for the fruit tray, Ken and Amy for the chips,salsa and drinks, Mimma for the cookies and drinks, Mr Heslop our wonderful clown, Heartstrings ranch for the animals, Wes and Laura for the buns and brownie, Uncle Jared for being the valet and parking cars, Aunt Faye and Aunt Ruth for the autograph dog that served as our guestbook. I really hope I didn't leave anyone out. I feel like I'm on an the Academy Awards.Every one of you helped Lexy have a wonderful day. I would like to also thank all of you that brought gifts and Lexy even got a bouquet of roses from Uncle Bulldog. What a lucky girl she is. I wound like to thank Brother Stancil and Brother Frasier from Val Verde Baptist Church for coming amd praying for Lexy. Thanks also to Alexandria's Angels for there gift to help make her trip special. I can't begin to explain how full my heart is when I think of all the people that love and pray for Lexy everyday. I really never knew such kindness was possible. A lot of you only know Lexy from her website, yet she has become a part of your lives. I feel like she is truly an Angel of Earth to have touched this many people. My gratitude is never ending. Please continue to pray for her. Our miracle is on the way. Dawn UPDATE: 4-15-05 I JUST TALKED TO DAWN A LITTLE BIT AGO, AND LEXY WAS GETTING CHEMO AND HAD BLOOD DRAWN FOR BLOOD COUNTS. LEXY, GOT PLATELETS LAST TUESDAY. TOMORROW ON FRIDAY LEXY WILL GET PLATELETS AND BLOOD AND THE CHEMO WHICH WILL BE FINISHED FOR THE WEEK. LEXY'S PLATELET COUNT WAS AT 5000 AND BLOOD AT 6.6. LEXY IS FEELING GOOD. I HAD WRITTEN ON THE LAST JOURNAL THAT WE ARE HAVING A PARTY FOR LEXY AND TO MEET HER LITTLE BROTHER ADEN. LEXY CALLED ME TODAY AND WANTED TO KNOW IF SHE COULD HAVE A CAKE AND I SAID YES AND SHE SAID SHE WANTED A RED CAKE AND WITH WHITE STUFF ON TOP WITH A CANDLE AND I SAID YES WE WILL HAVE YOU A CAKE WITH WHITE ICING WITH YOUR PICTURE ON TOP AND A CANDLE THEN SHE SAID CAN I HAVE 2 CANDLES. LEXY WANTS A PICTURE OF HER AND MINNIE ON HER CAKE. I THINK SHE THINKS A PARTY IS LIKE A BIRTHDAY TO HER, SO I WILL HAVE TO GET A PRIZE FOR HER. I TOLD HER SHE WOULD HAVE A CLOWN AT HER PARTY WITH BALL0ONS AND I CALLED HEART STRINGS RANCH IN BEAUMONT AND THEY WILL BE THERE WITH A MEDIUM SIZE PONY FOR PONY RIDES AND A PEN 12X12 WITH ANIMALS FOR A PETTING ZOO. KAREN AND CHARLIE CRAIG FROM HEART STRINGS RANCH MADE LEXY'S DAY. LEXY WAS SO EXCITED WHEN SHE HEARD ABOUT THE PONY AND PETTING ZOO AND STARTED JUMPING ON THE BED AT CLINIC TODAY. I AM SO HAPPY SHE HAS SOMETHING TO LOOK FORWARD TO. REMINDER: PARTY FOR LEXY!!!!!!!!!!!!!!!!!!! EVERYBODY IS INVITED. WILL BE IN NEDERLAND, TEXAS ON SUNDAY, APRIL 17, 2005 AT JOHN & PAT'S (NANA & PAPA'S) TIME 2:00-TILL-5:00. THE ADDRESS IS 2803 ERWIN OFF 27TH IN NEDERLAND. IF YOU HAVE ANY QUESTIONS PLEASE CALL. IF YOU ARE CLOSE AND WOULD LIKE TO COME BY AND SEE LEXY AND MEET ADEN AND OF COURSE SEE DAWN THEN COME BY AND JOIN IN THE FUN. WE WILL HAVE CAKE, COOKIES AND SNACKS AND JUST WATCH A LITTLE GIRL HOPEFULLY HAVE THE TIME OF HER LIFE BECAUSE WE WANT THIS DAY TO BE SO SPECIAL FOR HER. IT WILL BE OUTSIDE WITH THE ANIMALS. COME AND HAVE FUN! PLEASE CONTINUE TO KEEP LEXY IN YOUR PRAYERS. PAT UPDATE: 4-13-05 MONDAY I DO BELIEVE I WAS ON TOP OF THE WORLD. I ANSWERED MY CELL PHONE AND I HEAR LEXY SAY "NANA, I COMING TO SEE YOU" AND SHE HAD EXCITEMENT IN HER VOICE AND SHE SAID YOU WANT TO TALK TO MY MOM AND I SAID YES!! DAWN, TOLD ME SHE HAD TALKED TO DR. MATTHAY AND THEY WILL BE COMING TO SEE US ON SATURDAY, APRIL 16TH. DR. MATTHAY DID SAY SHE THOUGHT IT WOULD BE WONDERFUL FOR LEXY, AS LONG AS DAWN HAS LEXY'S PAPERS AND A HOSPITAL CLOSE IN CASE SHE WOULD NEED PLATELETS, AND DAWN DID TELL HER THERE WAS A HOSPITAL 5 MINUTES AWAY. MONDAY, JANET THE NURSE PRACTIONER CAME IN AND SAID LEXY MAY NOT START CHEMO BECAUSE SHE HAS BEEN GETTING PLATELETS ABOUT EVERY 3 DAYS, AND IT MAY BE ON ACCOUNT OF THE CHEMO BRINGING THE PLATELETS DOWN. DR. MATTHAY, CAME IN AND SAID SHE DID NOT THINK THAT IT WAS THE CHEMO THAT WAS BRINGING THE PLATELETS DOWN AND TO START THE CHEMO WHICH THEY DID. THEY DID COUNTS ON MONDAY AND LEXY'S PLATELETS WERE DOWN TO 5000 AND THEY DECIDED NOT TO GIVE PLATELETS YESTERDAY BUT GIVE THEM TODAY, SO SHE COULD GET PLATELETS AGAIN ON FRIDAY SINCE SHE WILL BE COMING TO TEXAS ON SATURDAY. TODAY ON TUESDAY LEXY GOT CHEMO AND PLATELETS AND A REACTION TO THE PLATELETS WHICH WERE HIVES TO HER BACK AND SHE IS ITCHING. LEXY IS NOT IN PAIN NOW. SATURDAY, DAWN,LEXY AND ADEN WILL COME TO TEXAS, AND SATURDAY EVENING UNCLE GLENN AND AUNT JEANIE WILL HAVE DINNER FOR US AND THAT WILL BE A GREAT TRIP SINCE JEANIE COOKS GREAT AND LEXY WILL BE ABLE TO PLAY WITH MUFFIN WHO IS A MINATURE YORKIE AND LEXY USUALLY DRAGS AROUND, POOR MUFFIN. THIS WILL ALSO BE THE FIRST TIME FOR THE FAMILY TO MEET ADEN WHO IS A LITTLE CHUNK AS I AM SURE YOU HAVE SEEN THE PICTURES OF ADEN. UNCLE JARED AND AUNT KATIE, BRITTANY AND HER HUSBAND CHRIS WILL BE THERE, BRANDON AND BREANNE, MIMMAW AND AUNTIE AND UNCLE MARTY AND DYLLON, SHANE AND NOAH. SUNDAY WE ARE PLANNING TO GO TO CHURCH WITH MIMMAW AND THEN FROM 2:00 - 5:00 WE ARE PLANNING A PARTY AT OUR HOUSE FOR LEXY. THERE HAVE BEEN SO MANY PEOPLE PRAYING AND ASKING ABOUT LEXY WE THOUGHT THIS WOULD BE A GREAT WAY TO LET PEOPLE COME BY AND HAVE SNACKS WITH LEXY AND SAY HI!!!!!!! SUNDAY WILL BE AN OPEN INVITATION TO ANYONE WHO WOULD LIKE TO COME BY, YOU DO NOT HAVE TO LET US KNOW JUST SHOW UP AND SEE LEXY AND SEE THE NEW LITTLE ONE "ADEN" AND OF COURSE DAWN. GREG, WILL NOT BE ABLE TO COME SINCE HE JUST TOOK A WEEK OFF TO GO TO DISNEYLAND. WE ARE SO HAPPY TO HAVE THEM COME SINCE WE WERE NOT SURE LEXY WOULD BE ABLE TO MAKE ANOTHER TRIP TO TEXAS. IF YOU HAVE ANY QUESTIONS YOU CAN EMAIL ME AND I WILL EMAIL YOU BACK. PLEASE CONTINUE TO KEEP LEXY IN YOUR PRAYERS AND GOD BLESS EACH AND EVERYONE OF YOU. PAT UPDATE: 4-9-05 LEXY, STARTED CHEMO ON MONDAY. LEXY HAS BEEN IN PAIN THIS WEEK, HER ARMS AND LEGS HAVE BEEN HURTING. TWICE THIS WEEK SHE DID GET A DOSE OF MORPHINE AT THE CLINIC TO HELP THE PAIN. LEXY DID GET BLOOD AND PLATELETS. TODAY LEXY IS FEELING BETTER AND IN NO PAIN SO THAT IS A GREAT THING. LEXY DID GET PLATELETS AGAIN TODAY. LEXY WILL START CHEMO AGAIN NEXT MONDAY. PLEASE CONTINUE TO KEEP LEXY IN YOUR PRAYERS. PAT UPDATE: 4-5-05 Hello everyone, Well we made it back from Disneyland. What a wonderful trip. Lexy had so much fun and no one deserves it more. Tuesday morning at 9am a limo showed up to take us to the airport. Lexy was unimpressed, she asked if she could go to sleep: I on the other hand was so excited that we didn't have to drive to the airport, park and haul all of our bags in. It kind of made me wonder if this trip was going to be to much for her. We got on the plane and she still wasn't that excited. The flight was only an hour and twenty minutes. As we were about to land I was looking out the window and just happened to see Disneyland(at least I think it was Disneyland, it could have been some other amusment park)anyway, it was enough to get her excited. She couldn't wait to get off of the plane. She even got to run to her Papa. Nana and Papa were waiting for us when we got off of the plane. We finally got our bags loaded into the rental car. Trying to fit all of our bags into it was no easy feat especially with the way I pack. Thank god they gave us a mini van. We got to the hotel(it was beautiful and right there on the grounds, we could walk out on the balcony and see Disney California Adventure). Pretty cool. We made it over to Disneyland just in time to see the Princess show. Lexy was so excited to see everyone. Then it was on to toontown. We made a stop along the way at a few rides. Dumbo was a favorite. At toontown we got to say hi and take pictures with Minnie and Mickey mouse. We had a pass that got us to the front of the lines. After I finally learned what exit I was supposed to go in to use it, it was absolutly wonderful. Lexy loaded up and prizes and we headed back to the hotel about9:00 after the fireworks of course. We headed out again to Disneyland for breakfast with the Princesses. Lexy said she didn't want to go until she realized she could get their autographs. She met Cinderella,Snow White, Jasmine, Belle, Fairy Godmother, and Mary Poppins. Lexy loved every minute of it. They kept calling her princess Alexia.Then it was on to the rides. Aden got to ride his first ride, It's a small world. After realizing he could ride some of the rides, every once in a while Lexy would tell us she wanted to ride something Aden could ride. When asked she will tell you her favorite ride is the one that goes real fast where her Nana closed her eyes and her eyes got real big. (roller coaster in toon town) Thursday we had breakfast at Goofy's Kitchen. It was lots of fun for her. She will tell you everyone was there. Then it was back to Disneyland for lots more rides. I forgot to mention that before going to Disneyland she told us all that me, Nana, and her were going to wear Minnie ears and Papa,Aden and Daddy were going to wear Mickey ears. This changed only slightly before we got there. Daddy had to wear Goofy ears. So, Lexy and I got our Minnie ears, Dad got his Goofy hat and Aden got Pooh ears. How cute we all looked. Lexy and I only had to wear ours on the first day, but she made her Daddy wear his everyday. Anything for Princess Alexia. Lexy did really well overall. She felt pretty good and didn't need to go in for plateletts. She got a little cranky at times, but I think we all did. Make-a-Wish gave us a wonderful experience. One we will definitly never forget and will always be gratful for. Friday, Lexy woke up with some pain in her leg. This is about par for the course. She always had some pain the weekend before chemo is about to start. She was also pretty tired. We took Nana and Papa to LAX and then drove down the coast back to Orange County since we had time to spare. When we arrived back in San Fran the limo was waiting for us with a sign with her name on it. How cool is that. Saturday we went to the hospital for counts and plateletts. Then it was off to Galt to pick up Major from Grandma Ivy's. Lexy was insisant that we all got to pick up the dog. So we left about 5 after spending all day in the hospital. Chemo started today. Can't wait for it to get that pain under control. Thanks all of you for your continued support and prayers. We are forvever gratful. Love, Dawn UPDATE: 3-28-05 HAPPY EASTER TO EVERYONE!!!!!!!!!!!!!!!!!!!!!!!!!! THIS IS JUST A QUICK UPDATE TO LET YOU IN ON WHAT'S GOING ON IN LEXY'S BUSY LIFE. TUESDAY MARCH 22, LEXY GOT PLATELETS AND PAMIDRONATE WHICH IS THE MEDICINE THAT HELPS WITH BONE PAIN. THEY WERE AT THE CLINIC ALL DAY. IT TOOK 4 HOURS FOR THE PAMIDRONATE THEN THE CHEMO TOOK 1 HOUR AND 1 HOUR OF FLUIDS THEN SHE GOT PLATELETS WHICH TAKES ABOUT AN HOUR AND A HALF. FRIDAY MARCH 25, LEXY GOT HER LAST DAY OF CHEMO FOR THIS ROUND AND SHE ALSO GOT PLATELETS AND RED BLOOD. LEXY HAS BEEN FEELING PRETTY GOOD, SHE IS TIRED AND NOW NOT EATING MUCH OR DRINKING MUCH. SATURDAY, UNCLE KURT AND HIS MOM TINA SKINNER CAME TO VISIT THEM AND BRING ALL KINDS OF EASTER THINGS TO LEXY AND ADEN. AUNT TRACI COULD NOT COME BECAUSE SHE IS VERY PREGNANT WITH TWINS. SATURDAY, THEY GOT A VERY IMPORTANT DELIVERY, LISA FROM "MAKE A WISH" CAME OVER AND BROUGHT A HUGE LION KING MYLAR BALLOON, PRINCESS MYLAR BALLOON AND A MICKEY MOUSE MYLAR BALLOON, AND ALSO A FEATHER BOA AND A NEW PEN SO SHE CAN GET HER AUTOGRAPHS. TWO YEARS AGO WHEN WE TOOK HER THAT WAS HER MOST FAVORITE THING TO DO WAS TO GET AUTOGRAPHS. LIS ALSO BROUGHT OVER THE MAKE A WISH PACKET WITH THE AGENDA. LEXY'S LIMO WILL PICK THEM UP AT THEIR HOUSE AND BRING THEM TO THE AIRPORT ON TUESDAY AND THEY WILL BE STAYING AT THE CALIFORNIA GRAND RESORT. IT WAS SUCH SHORT NOTICE LESS THAN A WEEK FOR LMAKE A WISH TO PUT THIS TOGETHER. THIS WAS AN EMERGENCY TRIP SO LEXY CAN GET HER MAKE A WISH TRIP WHILE SHE IS FEELING GOOD. LEXY HAS PACKED HER ESSENTIALS IN ONE SUITCASE SHE HAS HER BABY AND TOYS AND HER WRITING STUFF, IN THE OTHER SUITCASE SHE PACKED THE MOST IMPORTANT THINGS HER BLANKIE, PANTS WITH LONG SLEEVES, AND PANTIES AND AN OLD TIE DYED SHIRT SHE MADE A CAMP THEY ATTENDED LAST YEAR. LEXY IS SO EXCITED AND COUNTS THE DAYS. LEXY DID ASK DAWN IF WHEN SHE GETS OFF THE PLANE IF SHE CAN RUN TO US LIKE SHE USUALLY DOES. IT WOULD MAKE MY DAY TO SEE HER RUN. TODAY IS EASTER AND THEY ARE ON THEIR WAY TO GALT THEY WILL BE AT CAROL AND JIMBO'S AND TIFFANY AND AMANDA WHICH LEXY LOVES SO MUCH AND HAVE FUN WITH THEM HOPEFULLY. LEXY DID TELL DAWN SHE DIDN'T WANT TO THROW EASTER EGGS AND DAWN SAID NO FIND THEM AND LEXY SAID NO I DON'T WANT TO. MAYBE SHE WILL WHEN SHE SEES OTHERS. LEXY DOES NOT HAVE LOTS OF ENERGY SINCE SHE IS NOT EATING OR DRINKING MUCH, SO LAST NIGHT DAWN DID GIVE LEXY FLUIDS TO KEEP HER HYDRATED SINCE SHE WAS NOT TAKING MUCH IN AND HAD THROWN UP (CHOKE UP) ONCE. MONDAY LEXY GOES TO CLINIC AND SHE WILL GET PLATELETS AND HOPEFULLY IT WILL GET HER THROUGH FRIDAY WHEN THEY RETURN. DR. MATTHAY TOLD THEM PLATELETS USUALLY ONLY LAST 5 DAYS. WE WILL WATCH LEXY CLOSELY, AS DAWN KNOWS THE SIGNS FOR SPOTS OR BLEEDING. DR. MATTHAY WILL LET ORANGE COUNTY HOSPITAL KNOW ABOUT LEXY AND DAWN WILL BRINGING PAPERS FOR LEXY IN CASE A DOCTOR IS NEEDED. PLEASE PRAY THAT LEXY WILL BE ABLE TO ENJOY HER TRIP OF HER LIFETIME BEGINNING ON TUESDAY. PRAY THAT SHE HAS NO PAIN AND CAN ENJOY HER SELF TO THE FULLEST. I WILL UPDATE AS SOON AS I CAN. OFF TO DISNEYLAND WE GO. WHERE I HOPE ALL OF LEXY'S DREAMS COME TRUE. PAT NEWTON (LEXY'S NANA) UPDATE: 3-22-05 Hello to everyone, Well, where to start. We went to the clinic today and met with Dr. Matthay. The cancer is still growing despite the chemo. The chemo is helping some because it seems to help with the pain, but the pain returns a few days after the chemo has stopped. We were given 2 options. The number two must be every doctors favorite number. It always seems like there are only 2 options. Enough rambling. Option 1 we could continue the chemo or option 2 put her on hospice to manage the pain(what an option). As I sat there speachless, Greg was left to answer. As long as the chemo doesn't cause any painful or unmanagable side effects we would continue the chemo. She is already on pain medicine, but the other option would mean putting her on some stronger medicine that would manage the pain when the cancer grows again. This would cause her to be out of it most of the time. This did not seem like an option to us at all. We are going to give her the pamidronate (a medicine used in some cancers to help relieve bone pain) tomorrow to hopefully hold the pain off a little longer. Her platelets are only 14,000 today but we did not have a transfusion. The doctor wants to try and wait a couple of days. On the happier side of things. Disneyland here we come. Make a Wish came to the house friday to meet with Lexy. At the time she was uncooperative and wouldn't even talk to the ladies that were here. The only thing she did say was "Mom if it's ok can we go to Disneyworld". At the time, we knew the doctor would not approve that, but while we were in clinic this morning I mentioned Disneyland. Dr Matthay said she thought that would be wonderul. When we got home I made a phone call and set it in motion. We will leave tuesday of next week and come back friday evening. Nana and Papa will be meeting us there. Lexy is very excited. She was actually jumping up and down earlier while I was on the phone. Lexy had some visitors this weekend. Carol, Jimbo, Amanda, and Tiffany came to see her. They got here saturday. We went to Chuck E Cheese because that is where Lexy wanted to go. Then we went to Fisherman's Wharf. It was Tiffany's birthday weekend and she chose to spend it with Lexy. Thanks to all of them . Lexy was up and playing with Amanda. It was good to see that. Thanks to everyone that writes in the guestbook and to all of those that read the updates, but don't write in. It means a lot to know that our little angel has touched so many of you. She truly is an angel on Earth. Love, Dawn UPDATE: 3-18-05 JUST A GOOD UPDATE!!!!!!!!!!!!!!!! DAWN JUST CALLED ME AND TOLD ME LEXY CALLED PAPA AND TOLD HIM HER LEG WAS ALL BETTER AND DID NOT HURT. IT SOUNDED SO GOOD TO HEAR HOPE AND HAPPINESS IN DAWN'S VOICE AGAIN AND I EVEN HEARD LEXY TALKING. DAWN TOLD ME LAST NIGHT HER AND LEXY WERE LAYING ON THE BED TALKING TO AUNTIE ON THE PHONE AND LEXY WAS KICKING HER LEG AND GIGGLING AND HAD EVEN WALKED DOWN THE HALL AFTER GREG TRYING TO HIT HIM AND PLAY WHAT A GOOD SOUND. LAST NIGHT WHEN DAWN TOOK HER BATH SHE ASKED LEXY IF SHE WANTED TO TAKE A BATH WITH HER AND LEXY SAID YES AND GOT IN AND DAWN SAID MAN HOW LONG HAS IT BEEN SINCE YOU TOOK A BATH WITH MOMMY AND LEXY SAID SINCE ZURRIE (MISSOURI) AND DAWN SAID THAT'S A LONG TIME AGO AND LEXY SAYS YEP!!!!! LEXY EVEN GOT OUT OF THE BATH BY HER SELF AND THAT IS WONDERFUL. ISN'T IT AMAZING HOW WE GET EXCITED ABOUT LITTLE THINGS LIKE THAT BUT IT IS SUCH A GREAT THING. LIKE I SAID EARLIER WE ARE NOT GIVING UP AND WE WILL KEEP FIGHTING AS LONG AS LEXY CAN. DAWN DID ALSO SAY ADEN HAS A COLD HOPEFULLY HE WILL FEEL BETTER IN A FEW DAYS. JUST AN UPDATE TO LET YOU KNOW LEXY IS STILL IN PAIN. LEXY IS EATING AND THAT IS GOOD. I TALKED TO DAWN YESTERDAY DURING THE DAY AND YOU KNOW A MOM'S INSTINCT I COULD TELL SOMETHING WAS WRONG. I ASKED DAWN IF SHE WAS OK AND SHE SAID YES BUT NOT VERY CONVINCING. SHE TOLD ME SHE WAS SITTING BESIDE LEXY AND HOLDING ADEN AND SHE COULD NOT TALK ABOUT IT RIGHT NOW IN FRONT OF LEXY, AND I ASKED HER IF SHE WOULD TALK TO ME LATER AND SHE SAID YES AND I ASKED HER IF I NEEDED TO COME TO CALIFORNIA NOW AND SHE TOLD ME SHE WOULD LET ME KNOW WHEN I NEEDED TO BE THERE. GREG, LEXY'S DAD CALLED LAST NIGHT AND TALKED TO JOHN AND TOLD HIM THAT DR. MATTHAY DID TALK TO DAWN YESTERDAY AND TOLD HER SHE NEEDED TO TALK TO GREG ABOUT A DNR WHICH IS "DO NOT RECESUTATE". DR. MATTHAY DID SAY SHE WAS NOT GIVING UP ON LEXY AND WOULD STILL TREAT HER TO THE BEST QUAILTY OF CARE OF LEXY. DR. MATTHAY DID SAY IT WOULD NOT BE SOON BUT IT WAS COMING. THIS DOES NOT MEAN THAT THE DOCTOR OR OUR FAMILY IS GIVING UP AND WE WILL KEEP FIGHTING AS LONG AS LEXY CAN FIGHT AND GOD WILL HELP HER FIGHT. DAWN AND GREG WILL TALK WITH DR. MATTHAY ON MONDAY. WHEN I TALKED TO DAWN LAST NIGHT SHE HAD BEEN TO THE STORE TO GET MORE EGGS, CRESCENT ROLLS, DORITOES, COKE, AND OREOS AND THAT IS HER FAVORITE FOOD RIGHT NOW, SHE HAS NOT GOT SICK FROM THE CHEMO AND IS STILL EATING. DAWN AND GREG ARE FEELING LOTS OF EMOTIONS THAT THEY SHOULD NOT BE FEELING, AND I JUST TRIED TO TELL DAWN THEY ARE GREAT AND ALL DAWN COULD TELL ME WAS "SHE IS JUST A BABY" AND I CAN'T HELP HER AND I TOLD HER JUST LOVE HER. PLEASE KEEP THE FLORY FAMILY AND ALL OF LEXY'S FAMILY AND FRIENDS IN YOUR PRAYERS. LEXY HAS AND STILL DOES TOUCH SO MANY PEOPLE. I CAN TELL BY THE GUESTBOOK ENTRIES AND THE EMAILS AND PHONE CALLS WE GET, LEXY IS DOING HER JOB ON EARTH. I LOVE LEXY SO MUCH AND IT HURTS TO SEE HER IN PAIN AND I CAN ONLY IMAGINE WHAT HER MOM AND DAD FEEL TO SEE HER THAT WAY NOT PLAYING AND RUNNING AROUND PLAYING KITCHEN, MAY I HELP YOU TO GET OUR ORDER AND MAKE US FOOD WITH HER LITTLE KITCHEN AND BARBIES AND HER WORK WHICH IS "WRITING" AS SHE CALLS IT. INSTEAD WE SEE HER JUST LAYING AND WATCHING MOVIES OR SLEEPING AND PLAYING WITH "MAJOR" HER DOG AND OF COURSE HOLDING ADEN. LEXY LOVES ADEN SO MUCH AND HE HAS BEEN SUCH A GOD SEND, GOD CERTAINLY KNEW WHAT HE WAS DOING WHEN HE BROUGHT ADEN INTO OUR LIFE, HE IS SO SWEET AND JUST GETS PASSED AROUND. UNCLE MARTY AND AUNTIE CAME OVER LAST NIGHT TO SEE US AND WE SHOWED THE PICTURES THAT WE TOOK LAST WEEK AND WHAT A BEAUTIFUL FAMILY AND I WILL PUT THE NEW PICTURES ON AS SOON AS I CAN. THANKS TO EVERYONE FOR CARING AND LOVING LEXY. MAY GOD BLESS EACH AND EVERYONE OF YOU. PAT (LEXY'S NANA) UPDATE: 3-15-05 JUST A QUICK UPDATE TO LET YOU KNOW AFTER TALKING TO DAWN YESTERDAY SHE DID NOT GET GOOD NEWS. LEXY STARTED THE IRINOTECAN WHICH WILL BE FOR 5 DAYS THEN OFF 2 DAYS AND THEN FOR 5 MORE DAYS. LEXY IS STILL IN PAIN HER RIGHT LEG IS HURTING AND WHEN I ASKED ABOUT HER BACK, DAWN SAID SHE DOES NOT BEND DOWN BECAUSE SHE KNOWS IT WILL HURT. LEXY SAW DR. MATTHAY YESTERDAY AND SHE FEELS LIKE THERE IS MORE BONE MARROW INVOLVEMENT SINCE SHE HAD FEVER YESTERDAY AND THE PAIN AND HER COUNTS ARE DROPPING OFF QUICK. LAST FRIDAY HER PLATELET COUNT WAS AT 19,000 AND ON MONDAY THEY WERE AT 8,000 SO SHE DID GET PLATELETS AND HER HEMOGLOBIN COUNT WAS AT 8.4 AND ON MONDAY IT WAS AT 7.7 SO SHE WILL GET RED BLOOD TODAY AND ALSO THE CHEMO. DR. MATTHAY DID SAY IF THE PAIN IS NOT BETTER TOWARD THE END OF THE WEEK SHE MAY ADMIT LEXY AND GIVE HER A DOSE OF PAMIDRONATE WHICH IS A MEDICINE THAT SOMETIMES HELPS WITH BONE PAIN. IF THE PAIN HAS NOT DECREASED BY MONDAY THEY WILL MEET WITH DR. MATTHAY AND REVISIT THE OPTIONS FOR LEXY. OPTIONS ARE WHETHER THE IRINOTECAN IS WORKING OR IF SHE IS SICK FROM THIS ROUND OF CHEMO AND CAN CONTINUE NEXT WEEK FOR THE NEXT 5 DAYS OF IRINOTECAN OR THERE IS ONE OTHER CHEMO SHE CAN TRY BUT IT USUALLY BRINGS THE PLATELET COUNTS DOWN AND SHE WOULD MOST PROBABLY BE IN AT LEAST EVERY OTHER DAY GETTING PLATELETS AND THAT IS NOT GOOD. THE OPTION IS STILL TO GIVE LEXY THE BEST QUALITY OF CARE WITHOUT MAKING HER SICKER AND BEING IN THE HOSPITAL WHICH LEXY DOES NOT WANT TO BE IN THE HOSPITAL. WE WILL KNOW MORE ON MONDAY OR TOWARDS THE END OF THIS WEEK. HOPEFULLY LEXY WILL NOT GET TOO SICK FROM THE IRINOTECAN. PLEASE CONTINUE TO KEEP LEXY IN YOUR PRAYERS. PAT (LEXY'S NANA) UPDATE: 3-14-05 WE JUST RETURNED TONIGHT FROM CALIFORNIA, AND YES I ALREADY MISS LEXY AND ADEN. WE GOT TO CALIFORNIA ON WEDNESDAY MORNING AND MY MOM LEXY'S MAW MAW, CAME WITH US AND SHE HAD NO TROUBLE FLYING AND WITH ALL THE WALKING SHE EVEN KEPT UP WITH US. IT WAS WONDERFUL SEEING LEXY BUT SHE IS SO SKINNY SHE WEIGHS ABOUT 33 POUNDS AND HAS NO MUSCLE, AND DAWN EVEN HAD TO GO AND BUY HER SIZE 2-3 PANTIES AND HER PANTS AND SHIRTS HANG OFF OF HER. SOME OF THE THINGS SHE SAYS IS SO CUTE. SHE WANTS PANTS WITH "LONG SLEEVES" WHICH ARE LONG PANTS AND SHE DOESN'T MEAN CAPRIE BECAUSE THEY DO NOT HAVE LONG SLEEVES, BUT I HAD BROUGHT HER A COUPLE PAIRS OF CAPRIS AND I DID TALK HER INTO WEARING THEM. WE HAD TIME FOR A QUICK LUNCH AND OFF TO THE CLINIC. LEXY STILL HAD NOT BEEN DRINKING ENOUGH OR EATING ENOUGH. LEXY NEEDED A POTASSIUM BOLUS OF FLUIDS SINCE SHE WAS NOT TAKING IN MUCH. SINCE SHE WAS GETTING POTASSIUM SHE WAS PUT ON A HEART MONITOR SINCE THE POTAASSIUM CAN CAUSE HEART PROBLEMS. LEXY HAD THE NURSES ALL EXCITED BECAUSE DAWN HAD BROUGHT A STOOL CULTURE. LEXY HAS ALSO BEEN DIAGNOSED WITH VANCOMYCIN RESISTANT ENTEROCCUS (VRE) WHICH IS INFECTION FROM THE INTESTINES THAT IS RESISTANT TO THE VANCOMYCIN ANTIBIODIC. TO BE CLEARED OF THE INFECTION LEXY MUST HAVE 3 NEGATIVE STOOL CULTURES AT LEAST 1 WEEK APART, THE THE ONE THAT DAWN DID TURN IN ON WEDNESDAY WAS POSITIVE. WITH LEXY HAVING VRE SHE HAS TO STAY IN AN ISOLATION ROOM AT THE CLINIC, SO FOR THE PEOPLE THAT TAKE THEIR KIDS TO THE CLINC KNOW THAT IS NO FUN STAYING IN A ISOLATION ROOM. WE HAD PLANNED TO GO TO CHUCKIE CHEESE THE NEXT NIGHT BUT LEXY DECIDED WE NEEDED TO GO WEDNESDAY NIGHT, WHICH WE DID. LEXY HAS NOT FELT TOO GOOD WHICH I AM SURE SHE JUST HAD NO ENTERGY SINCE SHE HAD NOT ATE. WE HAD A GOOD TIME WE CARRIED HER AROUND AND SHE EVEN ATE A SLICE OF PIZZA. JANET FROM CLINIC CALLED THURSDAY MORNING AND SAID LEXY'S ELECTOLYTES WERE STILL NOT IN LINE AND THAT DAWN WOULD HAVE A CHOICE TO EITHER GIVE LEXY FLUIDS AT HOME OR BRING LEXY IN FOR 24 TO 36 HOURS TO GET HER COUNTS IN ORDER AND START HER ON TPN WHICH IS A NUTRIONAL SUPPLEMENT THROUGH LEXY'S LINE. THEY WERE GOING TO TRY TO START TPN AT HOME BUT SINCE LEXY'S POTASSIUM WAS STILL OFF IT IS TOO DANGEROUS TO START TPN WITHOUT MONITORING BECAUSE IT CAN CAUSE HEART ARREST IF YOU BLOOD IS NOT IN ORDER AND THEY WILL NOT START IT ON HER AT HOME, SO THE DECISION WAS MADE TO GO INPATIENT ON TUESDAY TO START THE TPN WHICH THEN THEY WILL PUT HER ON A HEART MONITOR AND TAKE BLOOD AT ANY TIME THE HEART CHANGES AND THEN ADJUST THE TPN. LEXY WILL NOT BE HAPPY ABOUT THAT SINCE SHE DOES NOT WANT TO GO TO THE HOSPITAL. THURSDAY, WE WENT TO THE ZOO WHICH LEXY KEPT COMPLAINGING ABOUT HER LEG HURTING AND SHE TOLD US SHE WOULD RIDE IN A WAGON BUT NO WE JUST PULLED THE WAGON AND PAPA CARRIED HER AROUND THE ZOO. lEXY ALSO COMPLAINED ABOUT HER BACK HURTING, IT WILL BE GOOD FOR THE CHEMO TO GET STARTED ON MONDAY. FRIDAY WE WENT DOWN TO WHARF 39 WHERE THE SEA LIONS ARE AND SHE ENJOYED THAT BUT ONCE AGAIN PAPA DID HAVE TO CARRY HER SOME AND SHE RODE IN THE STROLLER SOME. LEXY DID START EATING A LITTLE MORE WHICH THAT WAS REALLY GOOD BECAUSE WHILE CARRYING HER YOU CAN FEEL EVERY BONE AND IT ALMOST FEELS LIKE THEY COULD BREAK. SATURDAY WE WENT TO SEE MONSTER INC ON ICE WHICH I THINK SHE REALLY ENJOYED IT IS JUST SHE DOESN'T SEEM LIKE A HAPPY LITTLE GIRL BECAUSE SHE DOES HURT A LOT. SATURDAY NIGHT SHE COULD HARDLY WALK AND IT HURT TO BEND DOWN BECAUSE HER BACK AND SIDE HURT AND HER LEG IS HURTING IN THE UPPER PART OF HER LEG THIS TIME. SHE DID MENTION A COUPLE OF TIMES THAT HER HEAD HURTS. THEY DO HAVE HER BACK ON THE PAIN MEDS TO TRY AND KEEP THE PAIN UNDER CONTROL. TONIGHT WHEN I TALKED TO DAWN SHE DID SAY THAT LEXY WAS WALKING AND HAS NOT COMPLAINED ABOUT PAIN BUT CAN TELL HOW SHE IS ACTIING THAT SHE STILL HURTS, BECAUSE SATURDAY NIGHT SHE WOULD HOLLER OUT IN PAIN, OR IF YOU PICKED HER UP DIFFERENT IT WOULD HURT, SO HOPEFULLY THE PAIN MED IS WORKING. IT DOES HURT SO MUCH TO SEE LEXY IN SO MUCH PAIN AND I CANNOT DO ANYTHING TO HELP. LEXY ASKED ME WHY WE HAD TO GO HOME AND I TOLD HER I HAVE TO WORK AND SHE SAID WHY AND I TOLD HER I NEED MONEY TO BUY YOU SOMETHING AND THEN SHE SAID NANA I DON'T WANT ANYTHING AND THEN THAT BROKE MY HEART. I LOVE HER SO MUCH AND I WILL HAVE NEW PICTURES UP SOON AND ADEN IS SUCH A CHUNK AND SO CUTE. LEXY NEEDS YOUR PRAYERS. EVERYTIME I SEE HER I SEE ALITTLE WORSE, AND THAT IS SO SCARY. IT REALLY HURTS WHEN LEXY SAYS PAPA CAN YOU HELP ME UP I CAN'T GET UP OR CAN YOU PUT YOUR ARM UNDER ME. THIS CHEMO HAS JUST GOT TO WORK VERY SOON, IT SEEMS DIFFERENT PARTS OF LEXY IS HURTING, WHEN SHE GETS THE PAIN BACK. MAY GOD CONTINUE TO BLESS EACH AND EVERYONE OF YOU AND THANK YOU SO MUCH FOR THE ENTRIES ON LEXY'S WEB SITE THEY ARE SO UPLIFTING AND WE READ AND APPRCIATE EACH AND EVERYONE OF THEM. PAT UPDATE: 3-9-05 JUST A QUICK UPDATE AS i AM PACKING TO SEE THE LITTLE STINKERS AND I CANNOT WAIT. FRIDAY, UNCLE JARED AND AUNT KATIE ARRIVED AND STAYED TILL SUNDAY AND HAD A GOOD TIME SEEING LEXY AND ADEN AND OF COURSE DAWN AND GREG. FRIDAY EVENING THEY DID GO TO THE WHARF BECAUSE LEXY SAID SHE DID NOT WANT ANYTHING TO EAT BUT I WOULD EAT SOME CRAB SO OF COURSE THEY WENT TO EAT CRAB AND LEXY HAD A BITE OF BREAD AND WATER. JARED DID TELL ME THAT IT WAS BAD NOT SEEING LEXY HYPER LIKE SHE USUALLY IS AS NOW SHE JUST SITS AROUND AND NEEDS YOU TO CARRY HER AND WHEN YOU DO YOU FEEL EVERY BONE IN HER LITTLE BODY SINCE SHE HAS LOST SO MUCH WEIGHT AND MUSCLE. SUNDAY, GRANDMA IVY, GRANDPA JOE AND AUNT DEB CAME TO VISIT THE FLORY' AND HAD A NICE VISIT. LEXY IS ON IV FLUIDS SINCE SHE IS NOT EATING AND THEY ARE TRYING TO GET HER ELECTROLYTES CORECT SO THEY CAN START HER ON TPN WHICH IS A SUPPLEMENT THROUGH HER LINE. LEXY HAS BEEN COMPLAINING OF HER TUMMY HURTING AND HAS BEEN THROWING UP. THE DOCTOR DID WANT TO PUT HER IN THE HOSPITAL TODAY TO TRY AND GET HER READY FOR TPN BUT LEXY DID NOT WANT TO GO IN THE HOSPITAL AND DAWN TOLD ME THAT WAS THEIR GOAL TO KEEP HER OUT OF THE HOSPITAL AS MUCH AS POSSIBLE AND FOR NOW SHE IS OUT AND TOMORROW SHE WILL GO FOR MORE COUNTS AND FLUIDS. I HAVE TO STOP WRITING NOW AND FINISH PACKING. PLEASE CONTINUE TO PRAY FOR LEXY AND I WILL UPDATE AS SOON AS POSSIBLE. PAT NEWTON (LEXY'S NANA) UPDATE: 3-4-05 LEXY IS DOING OK!!!!!!!!!!!!!! LEXY STARTED HER 2ND 5 DAY ROUND OF CHEMO LAST MONDAY AND WILL FINISH TODAY. LEXY WILL BE OFF FOR 2 WEEKS AND THEY WILL TRY TO GIVE CHEMO AGAIN. LEXY HAS NOT ATE OR DRANK ANYTHING IN THE LAST 2 DAYS BUT LAST NIGHT SHE DID EAT A COUPLE OF BITES OF A PEANUT BUTTER SANDWICH, WHAT A THING TO HAVE AFTER NOT EATING BUT THAT IS WHAT SHE WANTED. LEXY IS DOWN TO 35 POUNDS NOW AND THAT IS SKINNY FOR LEXY. DAWN CRIED A COUPLE OF DAYS AGO WHEN SHE GAVE LEXY HER BATH SHE IS JUST SKIN AND BONES AND WE ARE USE TO HAVING A "CHUNKY DUB" AS HER UNCLE JARED USE TO CALL HER. DAWN DID TALK TO THE DOCTORS ABOUT HER EATING AND ASKED ABOUT THE TPN AND THEY TOLD HER THEY FELT LIKE LEXY WOULD WANT TO EAT AFTER THE CHEMO ROUND IS OVER AND IF NOT THEY MAY GIVE HER MEDICINE TO STIMULATE HER TO HELP HER WANT TO EAT. LEXY DOES NOT WANT TO BE SICK SO SHE DOES NOT EAT. LEY DID THROW UP ON WEDNESDAY AND YESTERDAY SHE KEPT SAYING SHE WAS HOT AND WAS GETTING SICK BUT SHE NEVER DID THROW UP. AS FAR AS LEXY'S PAIN THAT HAS BEEN GOOD, DAWN HAS CUT LEXY'S PAIN MEDS DOWN TO 1 TABLET OF OXYCONTIN DURING THE DAY AND 2 TABLETS AT NIGHT SO THAT IS ABOUT HALF OF THE DOSEAGE. THURSDAY AT CLINIC SHE DID HAVE BLOOD TAKEN FOR BLOOD COUNTS AND HER ANC IS HOLDING IT OWN AT 958, HER BLOOD IS AT 8.7 WHICH IS NOT GREAT BUT NOT DROPPING AND MAYBE BY MONDAY SHE MAY NEED BLOOD. PLATELETS WERE AT 21,000 AND TODAY SHE MAY GET PLATELETS. LEXY IS LOOKING FORWARD TO SEEING UNCLE JARED AND AUNT KATIE TODAY WHO WILL BE VISITING FROM TEXAS AND WILL BE THERE TILL SUNDAY. I WILL MENTION THAT AUNT KATIE HAS ACCEPTED HER INTERNSHIP IN MINNEAPOLIS WHICH SHE WILL BE DEALING WITH CHILDREN WITH PHYSCOLOGICAL PROBLEMS FROM BEING SICK SO WE ARE VERY PROUD OF HER. WEDNESDAY PAPA AND I AND MAWMAW WILL BE THERE AND I CANNOT WAIT. LEXY HAS HAD A GOOD TIME WITH MELODY AND DAWN SAID THAT MELODY HAS SEEN HOW SPOILT ADEN IS AND LOVES TO BE HELD AND MELODY HAS HELPED SO MUCH WITH ADEN AND LEXY. PLEASE CONTINUE TO KEEP LEXY IN YOUR PRAYERS. PAT LEXY'S NANA UPDATE: 2-28-05 TODAY IS A GOOD DAY!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! NO FEVER, NO DIARHEA, NO THROW UP!!!!!!!!!!!!!!!!! WHAT MORE COULD YOU ASK FOR, LEXY HAS BEEN A LITTLE LIKE THE OLD LEXY. LEXY HAD CHEMO AND PLATELETS ON SATURDAY AND TODAY SUNDAY IS A DAY OF REST FROM CHEMO. IT IS ACTUALLY SUPPOSE TO BE 2 DAYS OFF FROM CHEMO AND THEN THE NEXT 5 DAYS AGAIN. SINCE THERE IS NO BAD SYMPTOMS FROM THE CHEMO LIKE DIARHEA, FEVER OR THROW UP MAYBE THEY WILL BE ABLE TO DO CHEMO TOMORROW INSTEAD OF WAITING TILL TUESDAY SINCE THAT WOULD GIVE HER 2 DAYS OFF AND THAT WILL BE DR. MATTHAY'S CALL AND THEY WILL SEE HER TOMORROW. DR. MATTHAY WILL LOOK AT LEXY'S HEAD AND DECIDE WHAT TO DO ABOUT THAT. TODAY LEXY CHASED HER DAD DOWN THE HALL PLAYING AND EVEN STOOD ON HER LEFT LEG AND KICKED AT DAWN WITH HER RIGHT LEG AND BY THE WAY PLAYING. THAT IS GREAT THAT SHE HAS EVEN FELT LIKE PLAYING. DAWN DID SAY HER HEAD LOOKED A LITTLE BETTER TO HER. DAWN SAID SHE SEEMS TO FEEL BETTER AND ACT LIKE THE OLD LEXY SO GOD AND THE CHEMO IS HELPING. MELODY FROM NEDERLAND TEXAS WHICH IS DAWN'S FRIEND FROM TEXAS ARRIVED TODAY WITH A SUITCASE FULL OF SURPRISES FOR LEXY AND ADEN. I HEARD THEY ARE DOING GIRLY THINGS EVERYONE IS PUTTING ON MAKE-UP, JEWELRY AND JUST HAVE TO LOOK CUTE AND OF COURSE GET YOUR PURSE IN ORDER SHE IS REARRANGING HER NEW PURSE AND THAT IS SO GOOD TO HEAR BECAUSE SHE HAS NOT EVEN WANTED TO PLAY JUST LESS PUT MAKEUP OR WHATEVER ON. MELODY DID SHOW UP WITH THE ECHO MIKES AND IF YOU ARE FROM DAWN'S AGE OF TIME YOU MAY REMEMBER THE ECHO MIKES SO MELODY BROUGHT ALL THREE OF THEM ONE, THAT IS DAWN, MELODY AND LEXY ONE AND THEY HAVE BEEN SINGING, CAN'T YOU JUST HEAR THAT, ALTHOUGH I WOULD LOVE TO HEAR IT. UNCLE JARED AND AUNT KATIE IS FLYING FROM TEXAS ON FRIDAY AND WILL BE LEAVING ON SUNDAY. JARED IS DAWN'S BROTHER AND LEXY JUST LOVES HER UNCLE JARRRRED AND AUNT KATTIE ON WEDNESDAY MARCH 9TH PAPA AND MYSELF AND MY MOM WHO IS 79 AND HAS NEVER FLOWN BUT HAS TO SEE LEXY AND ADEN WHO IS HER ONLY GREAT GRANDSON WILL BE ARRIVING IN SAN BRUNO TO SEE THEM AND I CANNOT WAIT. MIRACLES DO HAPPEN AND LEXY MIGHT AS WELL BE THE ONE TO GET IT SO YOU KEEP PRAYING FOR OUR LITTLE MIRACLE. I WILL UPDATE AS SOON AS I HAVE ANY INFO. PAT ADDED: 5-11-04 IN NOVEMBER 2001 LEXY WAS DIAGNOSED WITH NEUROBLASTOMA STAGE IV CANCER, AND WENT THROUGH CHEMO, SURGERY, RADIATION, STEM CELL TRANSPLANT. IN NOVEMBER 2003, SHE RELAPSED AND IS ON CHEMO. PLEASE KEEP LEXY IN YOUR PRAYERS AS WE DO NEED A MIRACLE FOR LEXY. THANKS FOR EVERYTHING. PAT (LEXY'S NANA) Some History: Welcome to Lexy's Web Page. This page is intended to keep all of you up to date on Lexy's fight against Neuroblastoma Stage IV Cancer. Lexy was diagnosed on November 2,2001. Her primary tumor was on her left adrenal gland. Lexy went through 5 rounds high dose chemo, Surgery, 1 additional high dose chemo with stem cell transplant, Accutane and Vaccine Therapy Study. Lexy went in remission on March 13, 2002. Lexy remained in remission for 19 months. Scans on November 19, 2003 showed that Lexy's Neuroblastoma has returned. Lexy is now doing oral chemotherapy. Lexy's doctor said it will be an uphill battle but with your prayers we will win this again.We had another set back. When they did scans again the first of January 2004 Lexy had 4 other spots show up besides her original sites. She had a central line put in and will be on IV Chemos. This is a setback but with God on our side we'll walk through it again.