Translate This Page To: Spanish German French Italian Portuguese Norwegian Brought to you From FreeTranslation.com Give a gift in honor of this child. Alexia (Lexy) Guest Book        Photo Album Current Page Page One Page Two UPDATE: 2-28-05 TODAY IS A GOOD DAY!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! NO FEVER, NO DIARHEA, NO THROW UP!!!!!!!!!!!!!!!!! WHAT MORE COULD YOU ASK FOR, LEXY HAS BEEN A LITTLE LIKE THE OLD LEXY. LEXY HAD CHEMO AND PLATELETS ON SATURDAY AND TODAY SUNDAY IS A DAY OF REST FROM CHEMO. IT IS ACTUALLY SUPPOSE TO BE 2 DAYS OFF FROM CHEMO AND THEN THE NEXT 5 DAYS AGAIN. SINCE THERE IS NO BAD SYMPTOMS FROM THE CHEMO LIKE DIARHEA, FEVER OR THROW UP MAYBE THEY WILL BE ABLE TO DO CHEMO TOMORROW INSTEAD OF WAITING TILL TUESDAY SINCE THAT WOULD GIVE HER 2 DAYS OFF AND THAT WILL BE DR. MATTHAY'S CALL AND THEY WILL SEE HER TOMORROW. DR. MATTHAY WILL LOOK AT LEXY'S HEAD AND DECIDE WHAT TO DO ABOUT THAT. TODAY LEXY CHASED HER DAD DOWN THE HALL PLAYING AND EVEN STOOD ON HER LEFT LEG AND KICKED AT DAWN WITH HER RIGHT LEG AND BY THE WAY PLAYING. THAT IS GREAT THAT SHE HAS EVEN FELT LIKE PLAYING. DAWN DID SAY HER HEAD LOOKED A LITTLE BETTER TO HER. DAWN SAID SHE SEEMS TO FEEL BETTER AND ACT LIKE THE OLD LEXY SO GOD AND THE CHEMO IS HELPING. MELODY FROM NEDERLAND TEXAS WHICH IS DAWN'S FRIEND FROM TEXAS ARRIVED TODAY WITH A SUITCASE FULL OF SURPRISES FOR LEXY AND ADEN. I HEARD THEY ARE DOING GIRLY THINGS EVERYONE IS PUTTING ON MAKE-UP, JEWELRY AND JUST HAVE TO LOOK CUTE AND OF COURSE GET YOUR PURSE IN ORDER SHE IS REARRANGING HER NEW PURSE AND THAT IS SO GOOD TO HEAR BECAUSE SHE HAS NOT EVEN WANTED TO PLAY JUST LESS PUT MAKEUP OR WHATEVER ON. MELODY DID SHOW UP WITH THE ECHO MIKES AND IF YOU ARE FROM DAWN'S AGE OF TIME YOU MAY REMEMBER THE ECHO MIKES SO MELODY BROUGHT ALL THREE OF THEM ONE, THAT IS DAWN, MELODY AND LEXY ONE AND THEY HAVE BEEN SINGING, CAN'T YOU JUST HEAR THAT, ALTHOUGH I WOULD LOVE TO HEAR IT. UNCLE JARED AND AUNT KATIE IS FLYING FROM TEXAS ON FRIDAY AND WILL BE LEAVING ON SUNDAY. JARED IS DAWN'S BROTHER AND LEXY JUST LOVES HER UNCLE JARRRRED AND AUNT KATTIE ON WEDNESDAY MARCH 9TH PAPA AND MYSELF AND MY MOM WHO IS 79 AND HAS NEVER FLOWN BUT HAS TO SEE LEXY AND ADEN WHO IS HER ONLY GREAT GRANDSON WILL BE ARRIVING IN SAN BRUNO TO SEE THEM AND I CANNOT WAIT. MIRACLES DO HAPPEN AND LEXY MIGHT AS WELL BE THE ONE TO GET IT SO YOU KEEP PRAYING FOR OUR LITTLE MIRACLE. I WILL UPDATE AS SOON AS I HAVE ANY INFO. PAT UPDATE: 2-25-05 FRIDAY A.M. FEBRUARY 25, 2005 LEXY HAD HER CHEMO YESTERDAY AND DID GET BLOOD. LEXY'S PAIN IS BETTER IN HER LEGS AND ARM SINCE HER PAIN MEDICINE HAS BEEN MORE THAN DOUBLED. PAPA GOT A SURPRISE PHONE CALL LAST NIGHT WHEN HE ANSWERED, LEXY WAS ON AND SHE TALKED FOR A COUPLE OF MINUTES AND PAPA TOLD HER "CAN I COME SEE YOU" SHE SAID YES AFTER MELODEEEE AND UNCLE JARED AND AUNT KATIE SO WE ARE PLANNING A TRIP AND I HAVE EVEN TALKED MY 79 YEAR OLD MOM TO GOING. SHE HAS MISSED SEEING THEM AND WANTS TO SEE THEM SO BAD BUT HAS NEVER FLOWN AND IS A LITTLE SCARED BUT SHE WILL MAKE IT. WHILE TALKING TO DAWN LAST NIGHT LEXY STARTED CRYING AND WHEN DAWN ASKED WHAT IS WRONG SHE SAID HER HEAD WAS HURTING THAT IT IS BURNED, SHE DESCRIBES IT AS A SUNBURN. THE SPOT IS ON THE UPPER BACK OF HER HEAD AND YOU CAN NOT TOUCH IT BECAUSE IT DOES HURT HER. YESTERDAY THEY HAD A PROBLEM WITH HER CENTRAL LINE HOPEFULLY IT WILL BE OK TODAY, AND THEY WILL NOT HAVE TO REPLACE IT. WEDNESDAY, SINCE LEXY HAD RUN A FEVER THEY TOOK BLOOD CULTURES AND YESTERDAY THEY GOT THE RESULTS THAT THEY HAVE GROWN SO THEY GAVE LEXY IV ANTIBIODICS AND TODAY AT CHEMO THEY WILL FIND OUT WHAT KIND OF INFECTION. PLEASE PRAY FOR LEXY TO HAVE NO MORE PAIN AND MAKE HER COMFORTABLE AND TO HAVE ANGELS ALL AROUND HER AND KEEP HER SAFE. I ALSO WANT TO THANK THE MANY PEOPLE THAT HAVE CHECKED ON LEXY WHETHER BY PHONE MAIL EMAIL OR THE GUESTBOODK ENTRIES, IT MEANS SO MUCH TO GET ENCOURAGING MESSAGES FROM YOU. MOST OF ALL I WANT TO THANK YOU FOR THE PRAYERS AND THE HUGS ON THE HUG METER, SO PLEASE KEEP THE PRAYERS AND HUGS GOING. MAY GOD BLESS EACH AND EVERYONE OF YOU. PAT (LEXY'S NANA) UPDATE: 2-24-05 WEDNESDAY 9:00 P.M. FEBRUARY 23, 2005 WE JUST TALKED TO DAWN AND THEY HAD JUST MADE IT HOME FROM THE CLINIC. LEXY GOT CHEMO TODAY AND SHE HAD TO GET PLATELETS AGAIN TODAY, THE COUNT WAS 12,000 AND ON MONDAY WAS 9,000 AND SHE RECEIVED PLATELETS ON MONDAY ALSO. LEXY'S HEMOGLOBIN IS A LITTLE LOW SO THEY WENT AHEAD AND CROSS TYPED HER BLOOD IF SHE NEEDS IT TOMORROW, HER COUNT IS 8.2 SO MOST PROBABLY SHE WILL NEED IT. THE REASON SHE NEEDED PLATELETS SO QUICK WAS SHE HAS BEEN IN SO MUCH PAIN AND HAS HAD FEVER AND THAT TAKES AWAY YOUR PLATELETS AND LEXY IS NOT MAKING NORMAL AMOUNTS OF PLATELETS IF ANY. LEXY WAS ALREADY TO GO TO BED SHE HAD BENEDRYL BEFORE HER PLATELETS AND IT ALWAYS MAKES HER SLEEPY AND SHE HAD NOT SLEPT SINCE THE BENEDRYL. lEXY DOES NOT HAVE MUCH PAIN AT THE TIME THEY ARE UPPING HER OXCOTYN FROM 2 PILLS IN 24 HOURS TO 4 PILLS IN 24 HOURS AND CAN ALSO HAVE OXICODYNE AS NEEDED EXTRA FOR PAIN EVERY 2 HOURS. LAST CHEMO ROUND LEXY HAD LOTS OF PROBLEMS WITH DIARHEA AND THAT IS WHY THEY CUT THE DOSE DOWN THAT LEXY WILL BE RECEIVING BUT LEXY HAS HAD LOOSE BOWELS TONIGHT SO HOPEFULLY SHE IS NOT GETTING DIARHEA AS DAWN SAID SHE IS SO SKINNY. ADEN IS DOING GREAT JUST DOING A LOT OF SLEEPING AND BEING A GOOD BOY. LEXY WILL SEE MELODEEEE AS LEXY SAYS, ON SUNDAY AND SHE WILL BE VISITING FROM TEXAS AND WHEN SHE LEAVES ON SATURDAY, I THINK THE FRIDAY BEFORE THAT UNCLE JARED AND AUNT KATIE WILL BE VISITING THEM FOR THE WEEKEND SO LEXY WILL BE GETTING LOTS OF HUGS. CHEMO TOMORROW AT 10:00 A.M. AND MOST LIKELY BLOOD AND HOPEFULLY THE PLATELETS WILL BE OK TOMORROW. I WILL UPDATE AGAIN AS SOON AS I HEAR FROM DAWN. THANKS FOR CHECKING ON LEXY. ***** WEDNESDAY 7:00 P.M. FEBRUARY 23, 2005 I WILL START THIS UPDATE WITH A LITTLE HUMOR. I ASKED DAWN IF LEXY WAS EATING AND SHE SAID YES AT THE MOMENT SHE IS EATING SALAMI WITH CREAM CHEESE AND JELLY BEANS WHAT A MIXTURE OH AND I CANNOT FORGET THE BARBQUE CHIPS AND OREOS. I ASKED DAWN IS THAT WHAT SHE IS EATING FOR DINNER AND SHE SAID WHATEVER SHE WANTS AT LEAST SHE IS EATING. DAWN TOLD ME LAST NIGHT LEXY HAD 102. FEVER BUT DID NOT BRING HER IN BECAUSE LEXY BEGGED NOT TO GO TO THE DOCTOR'S SO DAWN DECIDED NOT TO TAKE HER AND GAVE HER TYLENOL. THE FEVER AT THIS TIME IS DUE TO THE CANCER WHICH THEY CALL TUMOR FEVER OR CANCER FEVER. THIS MORNING LEXY ALSO HAD FEVER AND DAWN DID GIVE TYLENOL AND KNEW THEY WERE GOING TO CLINIC FOR CHEMO, SO WHEN THEY GOT TO CLINIC LEXY HAD NO FEVER BUT WHILE THEY WERE THERE SHE DID RUN FEVER OF 102. SO THEY TOOK BLOOD CULTURES AND GAVE AN IV ANTIBIODIC, WHICH THEY ALWAYS DO JUST IN CASE OF AN INFECTION. DAWN DID SAY IF THE FEVER WOULD HAVE BEEN HIGHER THEY WOULD HAVE BROUGHT HER IN LAST NIGHT. YESTERDAY GREG WAS ABLE TO GO TO THE CLINIC WITH THEM AND IT WAS A GOOD THING BECAUSE LEXY IS STUCK TO GREG RIGHT NOW, WHAT A GOOD THING TO HAVE 2 LOVING PARENTS. TODAY DAWN TOOK LEXY AND ADEN BY HERSELF, I ASKED HER HOW DID YOU DO THAT SHE SAID EASY I PUT LEXY IN THE BIG STROLLER AND ADEN IN THE HALTER. TODAY WHEN LEXY NEEDED TO GO TO THE POTTY SHE CARRIED LEXY AND ADEN AND WHEN SHE GOT TO THE DOOR SHE PUT LEXY DOWN AND SHE WALKED IN AND WHEN THEY STARTED OUT OF THE POTTY, LEXY SAID DON'T BOTHER MOMMY YOU CAN'T CARRY ME AND ADEN AND DAWN SAID "NOW GIRL YOU WOULD BE SURPRISED WHAT ALL I CAN DO" AND LEXY THOUGHT THAT WAS SO FUNNY AND JUST GIGGLED. LEXY DID WALK BACK TO HER ROOM WHICH WAS A WAY FOR HER TO WALK WITH A LIMP. I SAID YESTERDAY THAT IT WAS LEXY'S RIGHT LEG BUT ACTUALLY HER LEFT LEG IS BOTHERING HER MORE AND DAWN DID SAY SHE COULD TELL HER LEFT KNEE IS LARGER. PLEASE KEEP LEXY IN YOUR PRAYERS. NOAH IS DOING OUTPATIENT CHEMO THIS WEEK AND AUNTIE SAID HE IS DOING GOOD, SO KEEP NOAH IN YOUR PRAYERS. THANKS TO EVERYONE THAT HAS CHECKED ON LEXY. I PUT A NEW HUG METER ON LEXY'S WEBSITE SO PLEASE CLICK ON IT AND GIVE HER A HUG AND SAY A PRAYER. MAY GOD BLESS EACH AND EVERYONE OF YOU. PAT UPDATE: 2-23-05 TUESDAY P.M., FEBRUARY 22, 2005 I JUST TALKED TO DAWN AT ABOUT 9:00 OUR TIME AND THEY HAD JUST GOT HOME FROM THE CLINIC. LEXY HAS HAD SUCH A ROUGH DAY WITH LOTS OF PAIN. LEXY DID GET MORPHINE A COUPLE OF TIMES AND THE CHEMO DID START TODAY. THEY DID UP THE DOSE OF HOME MEDS. TOMORROW LEXY GOES BACK TO CLINIC FOR CHEMO AND THEY WILL TALK ABOUT PUTTING LEXY ON A MORPHINE PUMP. DAWN DID SAY THEY WILL ASK THE DOCTOR IF THERE IS SOMETHING ELSE LEXY CAN BE PUT ON BECAUSE MORPHINE MAKES LEXY FEEL BAD AND IT DOES HELP WITH THE PAIN BUT THE SIDE EFFECTS OF THE MORPHINE MAKES LEXY JUST SO OUT OF IT AND UNCOMFORTABLE. WHEN I ASKED DAWN IF SHE HURT AND DAWN SAID YES MOM AND I SAID WHERE, IS THE SAME PLACES THAT HURT HER RIGHT LEG AND LEFT ARM AND DAWN JUST SAID PRETTY MUCH IF SHE MOVES SHE HURTS. THE CLINIC DID TELL THEM IF LEXY'S PAIN GETS OUT OF CONTROL AGAIN TONIGHT TO BRING HER IN AND THEY WILL ADMIT HER. WHILE I WAS TALKING TO DAWN LEXY WAS CRYING AND DAWN ASKED IF SHE HURT AND SHE SAID YES BUT I DO NOT WANT TO STAY AT THE DOCTOR'S TONIGHT. I JUST WISH THERE WAS SOMETHING I COULD DO TO TAKE THE PAIN AWAY BECAUSE SHE HURTS SO MUCH. I LOVE HER SO MUCH, I JUST WISH EVERYONE THAT HAS EVER WRITTEN ON LEXY'S WEBSITE ASKED ABOUT HER OR EVEN HEARD ABOUT HER COULD KNOW HER LIKE I DO, SHE IS SO LOVING AND WANTS TO BE HUGGED AND SHE CAN SURPRISE YOU AND PUT HER ARM AROUND YOU AND GIVE YOU A PECK ON THE CHEEK AND SAY "I LOVE YOU" AND THAT WILL JUST MELT YOU AND THAT IS MY LEXY. I KNOW WHAT THAT FEELS LIKE AND I REMEMBER PAPA AND AUNTIE TELLING ME LEXY GAVE THEM A SURPRISE HUG AND A KISS, AND THAT IS SO WONDERFUL. I DO PRAY THE CHEMO WILL START WORKING AND TAKE AWAY THE PAIN AND I KNOW YOUR PRAYERS THAT ARE FLOODING HEAVEN CAN TAKE AWAY THE PAIN. THANKS TO EVERYONE FOR CHECKING IN ON LEXY AND LETTING US KNOW YOU STOPPED BY. MAY GOD BLESS EACH AND EVERYONE OF YOU. PLEASE PRAY FOR LEXY TO MAKE HER COMFORTABLE AND GIVE OUR FAMILY STRENGTH TO GET US THROUGH OUR TRYING DAYS. TUESDAY A.M., FEBRUARY 22, 2005 I TALKED TO DAWN THIS MORNING AND SHE HAD NOT HEARD FROM CLINIC IF THEY WOULD START LEXY'S CHEMO TODAY BUT DID SAY LEXY WAS HURTING. I JUST TALKED TO DAWN A FEW MINUTES AGO AND THEY ARE AT THE CLINIC AND LEXY IS IN LOTS OF PAIN AND I COULD HEAR HER CRYING WHICH WAS AWFUL HARD TO HEAR. THEY WERE GIVING LEXY MORPHINE AND ARE GOING TO UP HER DOSE OF PAIN MEDICINE AT HOME AND THEY ARE GOING TO START THE CHEMO TODAY. THAT WAS THE NEWS I GOT ABOUT 12:30 THEIR TIME AND IF ANYTHING CHANGES I WILL UPDATE. PLEASE KEEP LEXY IN YOUR PRAYERS. PAT UPDATE: 2-21-05 I am just reminding everyone we still need prayers for Lexy. Friday night when I talked to Dawn, Lexy had told Dawn a couple of times her leg would hurt so Dawn did give Lexy ocicodine. It is Lexy's right leg that is hurting. Saturday during the day Lexy did complain some that her leg hurt and Saturday night her left arm just below the shoulder started hurting, and Sunday her leg and arm are hurting but Dawn is keeping Lexy on pain medicine and hopefully it will make Lexy feel better with no pain. My heart is so heavy and I am so upset, thinking about Lexy and I cannot forget the pain Lexy was in last month shen she was screaming and could not get relief. It is horrible when you hear her scream and there is nothing you can do but hold her and try to wish the pain away. Lexy did enjoy Jodie's trip to see them and of course Lexy wanted to show the sealions to Jodi which they went to see and what a sight they are to see. Greg kept Aden while Dawn, and Lexy took Jodi to see the town. Lexy was not feeling real good as her leg had started to hurt. Jodi left on Sunday to go back to Texas, then Dawn, Greg and Lexy and Aden went to Galt for the baby shower for their good friends Traci and Kurt which are expecting twin girls. Lexy was hurting some so Dawn did give medicine and Lexy helped Traci with the gifts. Lexy had to shop on her own for the twin baby girls, she got them their first baby dolls. Please keep Lexy in your prayers as chemo will start next Tuesday and hopefully it will give Lexy some relief. May God Bless each and everyone of you. Pat (Lexy's Nana) UPDATE: 2-18-05 LEXY IS DOING GREAT!!!!!!!!!!!!!!!!!! LEXY HAD BLOOD TAKEN TUESDAY AND RESULTS CAME BACK TUESDAY EVENING. PLATELETS ARE GOOD THEY ARE AT 30,000 AND ON THE 11TH THEY WERE AT 37,000, WHICH IS GOOD AND SHE IS NOT GETTING PLATELETS EVERY OTHER DAY. TUESDAY NIGHT LEXY THREW UP 1 TIME AND DIAHREA 2 TIMES, BUT THE LITTLE STINKER SNEAKED AND GOT HER A YOGURT AND SHE HAD A BEAR DRINK(INSURE LIKE PRODUCT) AND SHE IS NOT SUPPOSE TO HAVE MILK PRODUCTS RIGHT NOW, SO MAYBE THAT IS WHERE THE THROW UP AND DIARHEA CAME FROM. WEDNESDAY, LEXY HAD AN APPOINTMENT WITH DR. MATTHAY. DR. MATTHAY SAID SHE LOOKED GREAT. TUESDAY, FEBRUARY 22, LEXY IS SUPPOSE TO START THE 2ND ROUND OF CHEMO, WHICH SHE WILL BE GETTING A SMALLER DOSE THAN LAST TIME AND IT WILL BE OVER 10 DAYS INSTEAD OF A LARGER DOSE OVER 5 DAYS. DR. MATTHAY DID NOT THINK THAT LEXY COULD GO THROUGH A ROUND OF CHEMO LIKE SHE WENT THROUGH 3 WEEKS AGO BECAUSE OF ALL THE COMPLICATIONS SHE HAD WITH DEHYDRATION AND THROW UP AND DIAHREA. LEXY WAS GIVEN 1 DOSE OF MEDICINE THAT IS GIVEN TO PEOPLE WITH BONE CANCER LAST ROUND OF CHEMO AND THIS ROUND OF CHEMO THEY ARE NOT GIVING HER THE 1 DOSE MEDICINE TO SEE IF THAT IS WHAT HELPED LEXY'S PAIN OR WAS IT THE CHEMO THAT HELPED THE PAIN, AND THIS WILL TELL IF THE CHEMO DID ANYTHING. WE ALL THINK THE CHEMO MUST BE DOING SOMETHING BECAUSE OF LEXY'S PLATELET COUNT. DR. MATTHAY SAID SHE WOULD NOT DO ANY SCANS UNTIL AFTER 2 MORE ROUNDS OF CHEMO BECAUSE IF THEY DID SCANS NOW THERE IS NOTHING ELSE TO TRY AT THIS TIME ANYWAY, SO AFTER 2 MORE ROUNDS OF CHEMO THEY HOPE IT WILL MAKE A GOOD CHANGE TO LEXY. LEXY GOT A VISIT FROM JODIE,THURSDAY NIGHT AND WILL BE THERE UNTIL SUNDAY. JODIE IS THEIR FRIEND FROM NEDERLAND, TEXAS SO THAT WILL BE GREAT, AS LEXY DOES LOVE JODIE, AND OF COURSE RILEY, DAISY AND MIKE, EVEN THOUGH IT HAS BEEN A WHILE SINCE SHE SAW THEM SHE STILL TALKS ABOUT THEM AND NEVER FORGETS ANYTHING. JODIE'S SISTER N LAW, ANNE MARIE WILL HAVE A TEAM FOR RELAY FOR LIFE IN VIRGINIA BEACH AND THE TEAM NAME WILL BE IN HONOR OF LEXY AND THE NAME OF THE TEAM WILL BE "LEXY'S FRIENDS". RELAY FOR LIFE IS A GREAT ORGANAZATION AND YOU ALL KNOW WE NEED A CURE FOR THIS CANCER BEAST, THERE ARE SO MANY OF US COUNTING ON A CURE AND A MIRACLE. I WILL PUT A LINK ON THE WEB SITE FOR THE TEAM. I WISH ALL THE LUCK TO "LEXY'S FRIENDS" TEAM. PLEASE CONTINUE TO KEEP LEXY IN YOUR PRAYERS AND KEEP CHECKING ON HER AND I WILL UPDATE AS SOON AS I GET NEW INFO. MAY GOD BLESS EACH AND EVERYONE OF YOU. PAT (LEXY'S NANA) UPDATE: 2-14-05 UPDATE TO LET EVERYONE KNOW LEXY IS OUT OF THE HOSPITAL. LEXY WENT HOME FROM THE HOSPITAL SATURDAY EVENING, AND TRYING TO LET EVERYONE KNOW SHE WANTED CHEESE ENCHILDADAS. WEDNESDAY EVENING LEXY WAS PUT IN THE HOSPITAL BECAUSE OF DEHYDRATION. LEXY HAS ENJOYED AUNTIE BEING THERE AND THURSDAY AND FRIDAY NIGHT AUNTIE STAYED WITH LEXY AND DAWN AND GREG WENT HOME WITH ADEN. LEXY IS DOING GOOD. THEY PUT HER ON FLUIDS UNTIL SATURDAY THEN THEY SAID BLAND DIET BUT LEXY WANTED ENCHILADAS SO ON THE WAY HOME THEY STOPPED AND HAD ENCHILADAS, I KNOW THAT IS NOT TOO BLAND BUT AGAIN THAT IS WHAT LEXY WANTED. SUNDAY THEY WANTED TO SHOW SAN FRANCISCO TO AUNTIE SO THEY WENT TO THE WHARF AND SHOWED AUNTIE THE SEALIONS (ARF ARF'S) AND OF COURSE HAD TO HAVE DUNGENESS CRAB WHICH DAWN SAID SHE ATE ALMOST A HALF OF ONE WHICH WAS PRETTY BIG. LEXY RODE THE CAROUSEL AT THE WHARF WHICH IS ONE OF HER FAVORITE THINGS TO DO. AUNTIE, SAID LEXY HAS HAD A GREAT DAY TODAY, NO ACHES OR PAINS, LOTS OF LAUGHTER, NO THROWING UP AND NO DIAHREA AND THEY WERE GOING TO HAVE ICE CREAM NOW. I WAS REMINDED THAT AUNTIE AND LEXY ARE SLEEPING IN A TENT IN LEXY'S ROOM TONIGHT, THAT OUGHT TO BE FUN AND I WISH I WAS THERE WITH THEM. THIS HAS BEEN A GREAT DAY FOR LEXY. SHE WANTS AUNTIE TO COME BACK AND BRING NO ONE (NOAH) WITH HER AND NANA AND PAPA. TOMORROW WILL BE A SAD TIME FOR LEXY WHEN AUNTIE LEAVES. NEXT THURSDAY JODIE, DAWN'S FRIEND FROM TEXAS WILL VISIT FOR A FEW DAYS AND LEXY WILL ENJOY THAT. PLEASE KEEP LEXY IN YOUR PRAYERS AND MAY GOD BLESS EACH AND EVERYONE OF YOU. PAT UPDATE: 2-10-05 I feel like this is a big Roller Coaster. Lexy is back in the hospital. Last journal entry on the 8th which was yesterday she just came home from the hospital. Today when I talked to Dawn Lexy was playing with her valentines she was so busy making, or her work as she says. This morning Janet, the nurse practioner called and said they were going to try and set up Home Health to give Lexy fluids at night so she would not have to have them during the day. The home health came out and took blood for blood counts and Dr. Matthay called Dawn and said she needed to bring Lexy to the hospital within the next 2 hours to be admitted unless Lexy looked worse. Dawn told her she had actually done a little better today and wanted to go outside for a few minutes. Dr. Matthay told Dawn that Lexy was close to being acidic like she was last Saturday when Lexy was admitted to ICU for dehydration. Lexy is getting so dehydrated from all of the diarhea, they cannot seem to stop it. Lexy goes at least several times an hour. Lexy is on fluids now and was asleep when I called a few minutes ago and so was Aden and probably Daddy. Dawn had left to pick up Auntie (Angie) which is Dawn's sister from Texas, as she flew in today. The story is with Auntie that she left 3 little boys at home with Marty but Auntie's youngest, my grandson who is 4 has leukemia and is being treated at Texas Children's Hospital in Houston. I know Lexy will be excited when she wakes up and sees Auntie as I know Auntie will love seeing Lexy and Aden. I will update again as I get any info. Please continue to let us know you stopped by and sign the guestbook as I know the entries uplift me and I know Dawn and Greg read the entries and they do need to be uplifted. Keep Lexy in your prayers and to put angels all around Lexy to watch over her. Pat UPDATE: 2-8-05 Lexy is still in the hospital and hopefully she can go home tomorrow. Dawn has had her hands full today with Greg going to work today Dawn had Aden and Lexy. Being the person my daughter is she never complains and keeps on going, I am so proud of her for being so strong. Dawn thought they would be going home today after the 1st doctor came around but Dr. Matthay thought they should stay another day so they could monitor her input and output. Lexy got platelets and fluids which were enough to keep her lines open so they can monitor her input. They will check the electrolytes in the morning. Lexy's ANC is at 180 which is low and hopefully it will start coming up and it usually comes up within 7-10 days after chemo begins. Lexy started the GCSF Shot which is a shot to bring her ANC up. The GCSF will be given through Lexy's line so she will not have to have a shot. From the blood that was taken Saturday the cultures did not grow anything so that is good. Lexy still has diarhea but NO PAIN, and she has not had any pain meds so that does tell us that God and the chemo are working everyday. Lexy is on Cefixime which is an antibiodic to help with the diarhea. Just because there is no pain please do not quit praying we need those prayers everyday. Not only does Lexy need prayers but Dawn and Greg need an uplifting. I cannot even imagine how it is to watch your child suffer, I know how it is to watch as a grandmother and that makes my heart so heavy and I feel so helpless. May God bless each and everyone of you and I will update as soon as I have any other news. Pat UPDATE: 2-6-05 LEXY IS IN THE HOSPITAL!!!!!!!!!!!!!!!! I talked to Dawn several times yesterday and Lexy was not feeling good with all the throw-up and diarhea it is hard to feel good. Kurt and Tracie came to see Lexy yesterday and Lexy even sat in their new car and watched tv for a little bit and that was good considering she does not want to do anything as I as sure she is weak from not eating since the 27th of January and she has lost about 7 pounds she is at 15.8 kilograms or 35 pounds. The home health nurse came out and took blood for blood counts and her hemoglobin is 12.1 and her platelets were at 55,000 which is good because the last time she got platelets was on Thursday. The dodctor did call Dawn with the blood results and told her if the diarhea got more frequent to bring her in. Last night about 9:00 their time Dawn called me and told me she was bringing Lexy in because of the diarhea, and they had a room for her. When Lexy and Dawn got to the room the nurse came in to take blood pressure and could not get a pressure and then came in with a resident could not still get a pressure with the machine, they tried on both of her arms and legs and they could not get Pulses in her extremities and especially her feet because of being so cold and dehydrated and then the ICU doctor came and then the room was full of doctors and nurses and 2 nurses out in the hall waiting they were trying to hurry and get oxygen stats, blood cultures and other things and Lexy was so cold. At that time Dawn asked the nurse if she should call Greg and they said yes as Greg was home with Aden and Dawn as she said was so upset and scared to have so many people working on Lexy, and again God was there. The reason for not getting a blood pressure with the machine was severe dehydration and cold. The doctors decided at that time that they would take her to I C U which they did and gave her 3 boluses of fluids which is large amounts of fluids given quickly. When I talked to Dawn this morning Lexy has 6 Bags of different things hanging on her pole. Last night at about 1:00 Lexy woike up and said she felt better and she even wanted to watch cartoons. This morning Lexy was still asleep and Dawn said this was the most peaceful sleep she had seen her in and that she needed it so much. At 11:00 this morning they were moving Lexy back to her room on the oncology floor and she was still asleep. I will update as soon as I have any info. Please keep Lexy in your prayers and thank you so much for all of the prayers and the entries in the guestbook as that lets us know you are stopping by and saying a prayer. Pat UPDATE: 2-2-05 Lexy had Ironotecan IV Chemo today, which was her 4th day and she takes it for 5 days. Lexy also got platelets again today and blood, so she had a full day at the clinic. Lexy got platelets last Thursday, Sunday, Monday and Today. They also gave Lexy medicine for diarhea which they can only give her 1 dose, hopefully it will help with that problem and she has not thrown up today, but the diarhea is still there. Lexy also had fever today which was at 102 but it finally went down. The fever is caused from the neuroblastoma tumor cells. Dawn did tell me she has not complained about pain which is good news, so the chemo and God are doing their job, because I do give God all the credit for letting us have Lexy this long. This is when family and friends pull together to help us get through the tough times. Lexy will have company the next few weeks by some special people Lexy loves. Auntie (Angie Ard) who is Dawn's sister and Lexy's Auntie and Melody Gilbert who is Justin's mommy and Dawn's friend from Texas will be visiting them next week, and then the following weekend Dawn's friend Jodi Love from Texas will be visiting them. Jodi is Riley and Daisy's mommy. Lexy will be ready to be spoilt a little more since they have not seen Lexy in awhile. Uncle Jared and Aunt Katie will be making plans to see Lexy soon. Aunt Katie is having a busy month, she has been visiting lots of hospitals around the country, and these are the maybe the top 5 hospitals where she would like to do her internship for child phycologist like Orange County Hospital, Chops, Children's Hospital in Minneapolis, Texas Children's and Cincinnati Ohio Childrens Hospital, hopefull, she has visited several other good hospitals around the country. Please keep lexy in your prayers we are still seeking a miracle. I will post new pictures soon and they are so cute and baby Aden is beautiful and of course my Lexy is so beautiful. Pat UPDATE: 1-31-05 Just thought I would take a little time to update. Lexy came home from the hospital today. She is only taking the oral pain meds and they are keeping her pain under control. She finished her second day of chemo and either that or the med she got friday seems to have worked a little or either her pain is just under good control. (of course I'd like to believe that is was the chemo) She got out of bed today and walked around quite a bit and her limp was alot better. She also walked around quite a bit at home. According to the doctors we are no longer looking for a cure, but something to buy us more time and keep her quality of life good. We are hoping the pamidronate and the chemo ironotecan are the answer. We were told by the doctors that we don't have much time left; however we all know that doctors don't know everything. After all the doctors are just people in the end God has all the control, so we are asking all of you to take a minute and say a prayer for Lexy. Thanks to all of you for your wonderful guestbook entries. Your words of encouragment and prayers mean so much to all of us. Love, Dawn (Lexy's mommy) UPDATE: 1-30-05 THIS MORNING STARTED OFF REALLY SCARY. LEXY WAS IN PAIN THIS MORNING AND WAS VERY HOT AND THEY TOOK HER TEMP AND IT WAS AT 104.9 AND 30 MINUTES LATER IT WAS 105.1. THEY GAVE TYLENOL AND PUT HER ON A COOLING MATTRESS AND WITHIN AN HOUR IT WAS DOWN TO 102.0. THEY GAVE LEXY MORPHINE TO GET THE PAIN BACK UNDER CONTROL AND SHE HAS DONE A LITTLE BETTER TODAY. LEXY DID HAVE A WONDERFUL NURSE ANN MARIE TODAY THAT WAS ON TOP OF EVERYTHING TODAY. LEXY DID HAVE LOTS OF COMPANY TODAY. CAROL, JIMBO, TIFFANY AND AMANDA CAME TODAY AND GRANDMA IVY. TRACI AND CURT CAME TODAY FROM RENO TO SEE LEXY. GRANDMA IVY WILL BE VISTING, FOR A FEW DAYS. I WILL UPDATE AS SOON AS I HAVE ANYMORE INFO. PLEASE KEEP LEXY IN YOUR PRAYERS. PAT UPDATE: 1-29-05 THIS IS THE UPDATE I ALWAYS PRAYED THAT I NEVER WOULD HAVE TO ENTER: DAWN, GREG AND JOHN(PAPA) MET WITH DR. MATTHAY THIS EVENING FOR A PLAN OF ACTION. THE PLAN IS NOT FOR A CURE BUT TO KEEP HER COMFORTABLE. DR. MATTHAY GAVE 4 OPTIONS: (1) IV CHEMO IRINOTECAN (2) ORAL CHEMO CYTOXIN (3) ORAL CHEMO VP16 (4) KEEPING LEXY COMFORTABLE THEY ARE TRYING LEXY ON A DRUG (PAMIDRONATE) THAT IS USED FOR BONE CANCER THAT HOPEFULLY WILL GIVE HER A LITTLE RELIEF FROM PAIN. IT IS GIVEN IV FOR 4 HOURS AND CAN BE GIVEN 1 TIME IN 3 WEEKS. DAWN AND GREG DECIDED ON OPTION 1 WHICH IS THE IV CHEMO. DR. MATTHAY SAID THEY COULD TELL RESULTS IF IT WAS HELPING FASTER THAN USING ORAL MEDS. WE WILL KNOW IN A COUPLE OF WEEKS IF IT IS HELPING. LEXY DOES NOT QUALIFY FOR ANY OTHER STUDIES. HIGH DOSE CHEMO IS NOT AN OPTION SINCE HER COUNTS HAVE NOT CAME UP ON THEIR ON SINCE THE MIBG THERAPY LAST NOVEMBER. HIGH DOSE CHEMO COULD MAKE HER SICKER AND MAKE HER BE IN THE HOSPITAL LONGER AND NOT A GOOD QUALITY OF LIFE. THE NEW CHEMO IRINOTECAN WILL START ON SATURDAY MORNING AND WILL BE FOR 1 HOUR FOR 5 DAYS. AS OF TONIGHT LEXY IS OFF IV PAIN MEDS AND ONLY ON ORAL PAIN MEDS (OXYCOTIN ) AND (OXCODINE). LEXY HAS HAD A FEVER TODAY FROM 103 TO NOTHING TONIGHT. DR. MATTHAY TOLD THEM IN HER EXPERIENCE AT THIS POINT THERE IS NOT A CURE FOR LEXY AND TIME IS SHORT AND FOR LEXY AS SHORT AS WEEKS TO MONTHS. THE MAIN GOAL IS TO KEEP HER COMFORTABLE. THE WAY LEXY IS NOW MAY BE THE WAY SHE WILL BE AND NOT THE LITTLE GIRL WE ALL KNOW AS RUNNING AROUND AND BEING SILLY LEXY. THERE IS ALSO A CHANCE THAT THIS IS THE TREATMENT WE HAVE BEEN LOOKING FOR LEXY AS IT IS OUT OF DOCTORS HANDS AND IS IN GOD'S HAND NOW. PLEASE PRAY FOR LEXY AND GREG AND DAWN AS THIS IS VERY HARD ON THEM. LEXY IS THEIR HEART AND IF YOUR COULD ONLY SEE LEXY CONSTANTLY HOLDING HER LITTLE BROTHER AND SINGING TWINKLE TWINKLE LITTLE STAR TO HIM. ALL OF LEXY'S FAMILY AND FRIENDS NEED YOUR PRAYERS TO HELP EACH OF US THROUGH THIS AS I KNOW GOD WILL SEE US THROUGHJ. I WILL UPDATE AGAIN AS SOON AS I HAVE ANY INFO. THANKS FOR THE MANY CALLS TODAY AND THE PRAYERS. PAT UPDATE: 1-28-05 THURSDAY NIGHT AT ABOUT 9:30, LEXY WAS ADMITTED TO THE HOSPITAL AT SAN FRANCISCO CHILDREN'S HOSPITAL. LEXY WAS IN SO MUCH PAIN, THAT WE HAVE ALL BEEN IN TEARS TODAY. LEXY WAS SCREAMING MY LEG, MY LEG AND SHE WOULD CALL OUT TO ALL OF US AND THERE WAS NOTHING WE COULD DO BECAUSE SHE HAD ALL THE MEDICINE SHE COULD HAVE AT THE TIME. LEXY'S LEG HAD BOTHERED HER A FEW DAYS BUT THE PAIN STARTED GETTING WORSE YESTERDAY ON WEDNESDAY. WEDNESDAY EVENING LEXY KEPT COMPLAINING ABOUT HER LEFT LEG HURTING AND HER RIGHT ANKLE, SO DAWN CALLED THE DOCTOR THAT EVENING. DR. MATTHAY DID TELL DAWN SHE WOULD GET LEXY'S PAIN UNDER CONTROL THAT AT THIS TIME SHE COULD NOT DO HARSH CHEMO BECAUSE HER PLATELETS ARE STILL NOT COMING UP ON THEIR ON WITHOUT GETTING TRANSFUSED ABOUT EVERY 7 DAYS BUT THAT SHE MIGHT COULD DO A COUPLE OF RADIATION TREATMENTS ON A SPOT BUT NOW HER PAIN IS IN HER RIGHT LEG. DR. MATTHAY DID TELL DAWN THAT HER OR ONE OF THE OTHER DOCTORS WOULD BE OVER TO SEE HER TODAY IN CLINIC SINCE LEXY HAD TO GET BLOOD COUNTS TODAY WHICH SHE DID RECEIVE PLATELETS. THIS MORNING, DR. MICHELLE SAW LEXY AND BY THE TIME WE GOT LEXY TO CLINIC LEXY WAS IN SO MUCH PAIN THEN AND DAWN HAD ALREADY GIVEN HER TYLENOL AND OXYCODONE. WHEN THE DOCTOR DID SEE HOW MUCH PAIN LEXY WAS IN THEY GAVE HER MORPHINE BEFORE DRAWING BLOOD, AND BEFORE THYEY GAVE PLATELETS THEY GAVE HER TYLENOL AND HYDROCORTIZONE AND MORPHINE AGAIN SINCE SHE WAS IN SO MUCH PAIN. THE DOCTOR DID COME IN AND TALK WITH, SHE SAID IT WAS MOST LIKELY THE YUCKY NEUROBLASTOMA DOING IT'S DIRTY WOK AND IT TRAVELS AND DAWN TOLD THE DOCTOR ABOUT LEXY SAYING HER HEAD HURT ON MONDAY AND SHE SAID IT COULD HAVE BEEN THE CANCER IN THE BONE MARROW WOKING BECAUSE IT TRAVELS. AGAIN THEY CANNOT DO ANYTHING HARSH ON ACCOUNT OF THE PLATELETS, BUT THEY WILL KEEP THE PAIN UNDER CONTROL. DAWN DID TELL THE DOCTOR THAT WE ARE NOT GIVING UP AND WE WILL KEEP FIGHTING AND THE DOCTOR SAID I DID NOT MEAN THAT. THEY DID GIVE A PRESCRIPTION FOR OXYCODONE AND OXYCOTIN. DAWN DID TRY THE MEDICINES BUT THEY WOULD NOT MAKE THE PAIN GO AWAY. DAWN CALLED THE DOCTOR AGAIN THURSDAY NIGHT AND THEY SAID TO BRING HER. DAWN, GREG AND PAPA TOOK LEXY IN AND I STAYED WITH ADEN. DAWN DID CALL AND THEY HAD GIVEN HER 2 MORE DOSES OF MORPHINE AND THEY TOLD DAWN SHE MAY GO HOME TOMORROW OR WHEN THEY GET HER PAIN UNDER CONTROL AND THE THEY WILL PROBABLY HAVE HOME HEALTH OUT WITH A PCA PUMP FOR PAIN. I KNOW THAT WAS THE WORSE DAY OF MY LIFE TO SEE HER IN SO MUCH PAIN AND WE COULD DO NOTHING THEN SHE WAS ALL FOR GOING TO THE HOSPITAL TO FEEL BETTER AND THEN WHEN DAWN TOLD HER THAT THEY WERE TALKING TO THE DOCTOR TO BRING HER TO THE HOSPITAL AND THEN SHE GOT SO UPSET SHE DID NOT WANT TO GO SCREAMING I WANT TO STAY HOME DAWN KEPT TELLING HER I CANNOT LET YOU STAY HERE I CANNOT HELP YOU. I SAW THE PAIN IN MY DAUGHTERS EYES TODAY AFTER TALKING TO THE DOCTOR AND WE SHED A FEW TEARS A I TOLD DAWN IT MAY SEEM DIM RIGHT NOW BUT WE HAVE GOT TO HAVE FAITH. THEY HAVE AN APPOINTMENT WITH DR. MATTHAY ON MONDAY FOR A PLAN OF ACTION OF WHAT CAN BE DONE FOR LEXY. I KNOW WE NEED SOME MIGHTY PRAYERS AND ONLY GOD CAN GET US THROUGH NOW. PLEASE SAY A PRAYER FOR LEXY. THURSDAY EVENING AFTER LEAVING THE DOCTORS OFFICE WE STILL HAD TO TAKE LEXY TO THE ZOO, NOW SHE WAS HALF OUT OF IT FROM ALL THE MEDICINE, SHE COULD NOT WALK BECAUSE IT HURT TOO BAD AND GREG DID MEET US THERE SO HE HELD HER MOST OF THE TIME AND HE WOULD SKIP WHILE HOLDING HER AND I GUESS IN HER MIND SHE THOUGHT THIS HAS GOT TO BE EASY I CAN DO THIS SO SHE TOLD GREG TO PUT HER DOWN AND WE ARE JUST LOOKING AT HER THINKING WOOWWW BUT SHE TOOK TO STEPS AND COULD DO NO MORE, WE RENTED A WAGON BUT SHE WANTED TO BE CARRIED, SO WE HAD AN EVENING AT THE ZOO. PAPA WENT TO SEE LEXY AND ADEN ON THE 17TH OF JANUARY AND I GOT THERE ON THE 24, SO WE HAVE ENJOYED THE KIDS SO MUCH AND THE NEW ADDITION TO THE FLORY FAMILY IS BEAUTIFUL AND LEXY LOVES HIM SO MUCH AND I KNOW HE IS SO GOOD FOR LEXY. I WILL UP DATE AGAIN AS SOON AS I HAVE ANY NEW INFO. PAT UPDATE: 1-16-05 I DO HOPE EVERYONE HAS HAD A GREAT WEEKEND. LEXY HAD BLOOD DRAWN TODAY FOR COUNTS AND THE RESULTS ARE GOOD, AND WE HOPE THAT IT MEANS SHE IS DEFINATELY MAKING HER OWN BLOOD PRODUCTS SINCE GETTING THE STEM CELLS BACK. LEXY'S COUNTS: HEMIGLOBIN: 9.1 PLATELETS: 45,000 WHITE COUNT: 2.7 ANC: 1300 LAST THURSDAY LEXY'S GSF SHOTS WERE STOPPED BUT IF THE ANC GOES BELOW 500 SHE WILL START THEM AGAIN. PLEASE PRAY THESE ARE TRUE COUNTS AND SHE IS MAKING THEM. LEXY SEES THE DO9CTOR AGAIN ON WEDNESDAY. I WILL UPDATE AGAIN AS SOON AS I HAVE ANY NEW INFO. PAT (LEXY'S NANA) SATURDAY JANUARY 15,2005 JUST A QUICK UPDATE, SINCE THINGS HAVE BEEN A LITTLE CRAZY. LEXY, ADEN AND DAWN WERE RELEASED FROM THE HOSPITAL ON MONDAY. WHEN DAWN WALKED INTO LEXY'S ROOM LEXY LOVED HER NEW BABY BROTHER ADEN WAS NOT NOT QUITE SURE IF SHE WANTED TO HOLD HIM SO SHE STOOD BY DAWN WHILE SHE HELD HIM. THEN SHE SAW HIS ARMS AND LEGS MOVE AND GOT EXCITED. THEN GREG MADE A NOISE AND DAWN SAID DADDY YOU SCARED ADEN. LEXY WAS THEN READY TO HOLD HIM AND THEN SHE DID NOT WANT TO PUT HIM DOWN. LEXY GOT PLATELETS THAT MORNING. TUESDAY MORNING WHEN I WAS TALKING TO DAWN LEXY WALKED IN THE ROOM AND SAID WHERE IS ADEN AND DAWN TOLD HER HE WAS IN HIS BED AND SHE CAME BACK AND SAID NO HE'S NOT AND DAWN SAID YES HE IS AND SHE CAME BACK AND SAID HIS COVER IS ON HIS HEAD I WILL MOVE IT AND SHE DID, I DO BELIEVE SHE WILL BE A LITTLE MOTHER HEN. WEDNESDAY LEXY AND ADEN HAD DOCTOR APPOINTMENTS. THEY TOOK ADEN TO HIS DOCTOR APT. AND HE IS JAUNDICE, SO THEY TOOK BLOOD WORK ON HIM AND THEN THEY LEFT TO GO SHOPPING AND LEXY'S APT WAS FOR LATER IN THE EVENING. DAWN GOT A PHONE CALL TO BRING ADEN IN BECAUSE OF HIS COUNTS THE JAUNDICE COUNT WAS TOO HIGH SO DAWN DID AND THEY PUT HIM IN ICU WITH THE LIGHTS AND GREG TOOK LEXY TO HER APT. BUT WRONG DATE FOR HER SO THEY WENT BACK TO THE HOSPITAL WITH DAWN AND ADEN. THURSDAY MORNING LEXY WENT FOR BLOOD COUNTS AND SHE GOT PLATELETS. ADEN WAS RELEASED LATE THURSDAY EVENING AND HE WENT BACK FOR BLOOD COUNTS ON FRIDAY MORNING AND IT WAS DOWN TO 11 BY THE METER AND IT WAS AT 14 WHEN HE LEFT THE HOSPITAL. SUNDAY HOME HEALTH WILL COME OUT AND TAKE BLOOD FOR COUNTS ON LEXY, BECAUSE OF THE CLINIC BEING CLOSED ON MONDAY. HER BLOOD WAS HOLDING ITS ON AND HER ANC IS COMING UP. LEXY IS FEELING GOOD AND IS NOT HURTING. I DID TELL DAWN SHE WILL HAVE TO PUT A CALENDAR AT THE DOOR SO SHE WILL KNOW SHERE SHE IS SUPPOSE TO BE GOING. PLEASE KEEP THE FLORY FAMILY IN YOUR PRAYERS. PLEASE SAY A PRAYER FOR NOAH, HE HAS BEEN FEELING A LITTLE STINKY HERE LATELY. GOD BLESS EACH AND EVERYONE OF YOU. PAT UPDATE: 1-3-05 Hope all of you enjoyed your New Year. Lexy is doing good. She is still needing platelets every other day and blood about the same, but the pain seems to be gone. She has been off of all of the pain meds for 2 days now. Yesterday, however was the first day that she has not ran a fever. Hopefully counts will start to come up soon. The doctor came in this morning and told Greg that she expects counts to start coming up in 7-10 days. She also said that if Lexy doesn't run any more fevers then they may consider sending her home sooner on some i.v. antibiotics. She will have to go to the clinic everyday for blood counts. I think they are doing this because they don't want me to go into labor on them.(ha,ha) Lexy had visitors yesterday. Carol, Jimbo, Tiffani and Amanda came to see her. It was really good to see her a little more active,giggling and playing with her cousins. Amanda and her Grandma had also made Alexia and Aden each a blanket which she has enjoyed showing to everyone. Today I was told to bring her "princess" shoes (ballet shoes) so she could show the nurses her princess dancing. I can tell she is feeling much better, because she is being her usual outgoing self. Thanks to all of you who are flooding heaven with prayers. Greg, Lexy and I appreciate it so much. Please keep praying. Love, Dawn UPDATE: 12-31-04 Hello to all. Hope you all had a wonderful Christmas. Happy New Year to everyone. I hope it doesn't put anyone into shock when they see that I have written this entry. Greg, Lexy and I are sitting in her hospital room waiting for the stem cells. They should start that infusion anytime now. Lexy is doing much better today. Yesterday they pulled her off of the oral pain med oxycodone. She is still on the 24hr iv morphine, but they also decreased the amount she was getting last night. She slept comfortably or as comfortably as you can sleep going to the bathroom every 2 hours. I guess Greg now knows how it feels to be pregnant since he has to take Lexy to the bathroom when she needs to go.(ha,ha) She has been awake alot more and even wanted to play babies last night. So we dressed her babydoll in her jammies and gave her a shot. We've also watched Barney 500 times at least. I keep bringing different movies from home, but Barney always wins. Fortunatly for us it is on DVD and she likes to use her headphones with her DVD player. Yesterday morning when the doctor came in Lexy was a little cranky (understandably so) she wanted to listen to Lexy with the stethescope. Usually this is no big deal to Lexy, she will pull up her shirt and let them at her. Well not this time, she told her no. Lexy's teddy bear (pink bear with a heart nose and heart ribbons around her neck) was laying next to her. The doctor asked if she could listen to the bear and Lexy was quick to tell her no her bear didn't have a heart. The doctor told her that her bear had lots of hearts all over the ribbon and Lexy told her that the bear didn't have a heart that made noise. Amazing how smart kids are. I'd like to think everyone for your guestbook entries and for all of the prayers being sent to heaven. Please keep praying for her. With God all things are possible. Our miracle begins with prayers. Please include Noah (my nephew) in your prayers also. He is in the hospital in Texas fighting with fevers and counts also. Love, Dawn (Lexy's Mommy) UPDATE: 12-27-04 CHRISTMAS IS OVER AND I AM LOOKING FORWARD TO THE NEW YEAR IN HOPES OF IT BEING A BETTER YEAR IN 2005. WHO KNOWS MAYBE THIS IS THE YEAR FOR THE CURE FOR NEUROBLASTOMA. LEXY HAD A GOOD CHRISTMAS, SHE IS LOOKING A LITTLE PALE TONIGHT AND DAWN DOES THINK SHE WILL NEED BLOOD TOMORROW AND PLATELETS. LEXY IS SCHEDULED TO BE AT THE HOSPITAL IN THE MORNING WHICH THEY WILL ADMIT HER AND GIVE HER HIGH DOSE CHEMO ON MONDAY AND TUESDAY AND WEDNESDAY WILL BE A DAY OF REST FOR LEXY AND THEN ON THURSDAY THEY WILL GIVE LEXY HER STEM CELLS BACK TO HER AND IF LEXY DOES GOOD WITH NO FEVER OR NO REACTIONS TO THE STEM CELLS SHE WILL BE ABLE TO GO HOME ON THURSDAY NIGHT. THE REASON THEY ARE GIVING LEXY HER STEM CELLS BACK IS THAT HER PLATELETS ARE NOT MAKING ON THEIR OWN AND HER ANC IS NOT COMING UP SO SHE HAS TO HAVE HER STEM CELLS SO HOPEFULLY IN ABOUT 3 WEEKS LEXY'S COUNTS WILL BE UP AND THEN THEY CAN FIND SOMETHING ELSE LEXY CAN TRY TO GET RID OF THE NEUROBLASTOMA CELLS. THE SCAN RESULTS LAST WEEK SHOWED NEUROBLASTOMA CELLS IN LEXY'S BONE MARROW AND IN BOTH OF HER LEGS WHICH HER RIGHT LEG HAS BEEN HURTING AND DR. MATTHAY SAID IT WAS MOST PROBABLY FROM THE CANCER CELLS IN THE BONE MARROW. ON A LIGHTER NOTE THERE IS STILL NO NEW BABY ADEN IN THE FLORY FAMILY WHICH WILL PROBABLY BE ANY DAY. I WILL UPDATE AGAIN AS SOON AS I HAVE ANY NEW INFO. PLEASE KEEP LEXY IN YOUR PRAYERS WE DO NEED A TOUCH FROM GOD. MAY GOD BLESS EACH AND EVERYONE OF YOU FOR HE KNOWS YOUR NEED. PAT UPDATE: 12-6-04 LEXY, HAD A BUSY WEEKEND. LEXY WENT TO A PARADE SATURDAY NIGHT. LEXY DID GET HER PICTURE WITH SANTA AFTER LOTS OF COAXING AS SHE DID NOT WANT TO SIT ON SANTA'S LAP. THE PHOTOGRAPHER TOOK SEVERAL PICTURES OF LEXY WITH OTHER THINGS LIKE A BEAR, HOBBY HORSE, AND A TOY BOX AND SANTA SNEAKED IN THE PICTURE BEHIND LEXY AND WHEN LEXY SAW THAT PICTURE SHE DECIDED SHE WOULD SIT ON SANTA'S LAP. WHEN I GET A COPY OF THAT PICTURE I WILL PUT IT ON HER WEB SITE. LEXY HAD BLOOD DRAWN FRIDAY AND HER PLATELETS WERE AT 7,000 SO NEEDLESS TO SAY SHE GOT PLATELETS. MONDAY SHE GOES FOR BLOOD COUNTS AND SEES THE DOCTOR MONDAY EVENING. TOMORROW IS DOCTOR DAY, LEXY GETS BLOOD DRAWN MONDAY MORNING, SEES THE DOCTOR IN THE EVENING AND BETWEEN THOSE TWO TIMES DAWN SEES HER DOCTOR. HOPEFULLY, SOON LEXY WILL START MAKING HER OWN PLATELETS AND NOT NEED A TRANSFUSSION OF PLATELETS. WE GOT THROUGH SOME TOUGH TIMES WHEN GING GING EARNED HER ANGEL WINGS LAST WEDNESDAY. GING GING, WAS A WONDERFUL PERSON AND WOULD TELL ME I CAN'T DO MUCH FOR LEXY BUT I SURE CAN SAY A PRAYER FOR HER, AND PRAYERS IS WHAT HAS GOTTEN LEXY THIS FAR, AS I GIVE GOD ALL THE CREDIT FOR LEXY BEING WITH US TODAY. THANKS TO EVERYONE FOR REMEMBERING LEXY IN YOUR PRAYERS, BUT PLEASE DO NOT STOP PRAYING WE STILL NEED A MIRACLE. MAY GOD BLESS EACH AND EVERYONE OF YOU. PAT UPDATE: 12-3-04 HOPE EVERYONE IS DOING GREAT. THINGS HAVE BEEN A LITTLE CRAZY AT OUR HOUSE THESE LAST COUPLE OF DAYS. LEXY'S GREAT GRANDMOTHER OR AS LEXY CALLS HER (GING GING) DIED WEDNESDAY. GING GING, WAS THE SWEETEST PERSON AND BEAUTIFUL AND NOT ONLY ON THE OUTSIDE BUT ON THE INSIDE ALSO. LEXY WILL BE TOTALLY CONFUSED WHEN SHE COMES TO OUR HOUSE AND NOT UNDERSTAND WHY GILNG GING WILL NOT BE IN HER ROOM AT OUR HOUSE. IN JULY WHEN THEY WERE DOWN WE TOOK LEXY TO SEE GING GING AT THE NURSING HOME AND I KNOW LEXY WILL NOT FORGET THAT BECAUSE SHE DOES NOT FORGET ANYTHING. LAST FRIDAY WHEN LEXY HAD BLOOD COUNTS, HER PLATELETS WERE AT 15,000 SO THEY GAVE LEXY PLATELETS, AND ON MONDAY HER COUNTS WERE AT 40,000. MONDAY THEY TOOK COUNTS AGAIN AND THE COUNTS WERE 15,000 AND AND ON FRIDAY THEY WILL TAKE COUNTS AGAIN. OTHERE THAN PLATELETS COUNTS LOW THEY WILL MONITOR HER AGAIN. I WILL UPDATE AGAIN AS SOON AS I HAVE ANY INFO. MAY GOD BLESS EACH AND EVERYONE OF YOU......... PAT UPDATE: 11-26-04 I HOPE EVERYONE HAD A GREAT THANKSGIVING DAY AND DID NOT EAT TOO MUCH. I NOT ONLY ATE ONCE AND THEN AGAIN BUT THEN DESSERT AGAIN, THERE GOES THE DIET. I TALKED TO DAWN AND LEXY LAST NIGHT AND THEY HAD A GOOD LUNCH AND HAS SEEN LOTS OF FAMILY. GREG IS STILL IN MISSOURI GETTING THEIR HOUSE IN ORDER AS THEY WILL BE MOVING TO THE SAN FRANCISCO AREA AND I MISS THEM ALREADY. I JUST GOT OFF THE PHONE WITH DAWN TODAY AND THEY ARE STILL AT THE HOSPITAL. LEXY IS DOING GOOD OTHER THAN NEEDING PLATELETS. THEY HAD TO BE THERE AT 9:00 AND AT 2:00 THEIR TIME AND SHE STILL DID NOT HAVE THE PLATELETS. LEXY'S PLATELET COUNT WAS AT 15,000, THEY HAD JUST GAVE LEXY PRE-MEDS FOR PLATELETS WHICH ARE BENEDRYL, TYLENOL AND HYDROCORTIZONE. AFTER THE PREMEDS ARE IN THEY WILL START THE PLATELETS. LEXY WAS GETTING ALL COMFORTABLE WITH THE BENEDRYL AND ALMOST ASLEEP. MAY GOD CONTINUE TO BLESS EACH AND EVERYONE OF YOU AND PLEASE KEEP LEXY IN YOUR PRAYERS. PAT NEWTON (LEXY'S NANA) UPDATE: 11-23-04 AM HAPPY TO SAY LEXY IS FEELING GREAT!!!!!!!!!!! LEXY, HAD BLOOD COUNTS TAKEN THIS MORNING AND SAW DR. MATTHAY THIS EVENING. LEXY'S PLATELETS ARE DOWN TO 39,000 AND THEY WERE AT 99,000 ON MONDAY, RED BLOOD IS 11.5 WHICH IS NORMAL AND HER WHITE BLOOD COUNT IS 2.8 WHICH IS LOW. LEXY WILL HAVE BLOOD COUNTS AGAIN ON WEDNESDAY AND IF SHE DOES NOT NEED TO BE TRANSFUSED WITH PLATELETS THEN SHE WILL HAVE BLOOD COUNTS AGAIN ON FRIDAY. DAWN, SAID SHE WOULD BE VERY SURPRISED IF SHE DID NOT NEED PLATELETS BY WEDNESDAY. THEY WILL GIVE LEXY PLATELETS IF THE COUNT IS 15,000 OR LESS. LEXY STILL HAS THRUSH BUT IT DOES LOOK BETTER AND IS STILL ON ANTIBIODICS ESPECIALLY SINCE HER WHITE BLOOD COUNT IS LOW. WE HAD SOME SAD TIMES WITH LEXY THESE PAST 2 WEEKS BUT WE ALSO HAD SOME GREATTTTTTTTT TIMES WITH LEXY. IF YOU COULD GET PAST LEXY'S BALD HEAD YOU MIGHT COULD FORGET SHE HAS CANCER BECAUSE SOMETIMES SHE ACTS LIKE SHE FEELS WONDERFUL. SOMETIMES LEXY GETS VERY FRUSTRATED AND I DO NOT THINK THAT SHE IS ACTING LIKE A SPOILT CHILD BUT MAYBE SOMEONE WHO DOES NOT HEAR RIGHT SINCE SHE WEARS HEARING AIDS. LEXY DOES MISS SCHOOL AND DOES NEED TO BE AROUND OTHER CHILDREN AND FOR HER SPEECH. LEXY HAD A GREAT BIRTHDAY PARTY NEAR GREG'S FAMILY AT JOHN'S INCREDIABLE PIZZA WHICH WAS A GREAT PLACE, SO ALOT OF FAMILY CAME TO CELEBRATE LEXY BEING 5 YEARS OLD. LEXY PLAYED TILL SHE WAS POOPED. LEXY ATE PIZZA, RAN AROUND, PLAYED GAMES, ATE CAKE, OPENED LOTS OF PRESENTS, MADE A BEAR AND WAS DEFINATELY OUR LITTLE PRINCESS. WE WENT TO PIER 39 ON THE WHARF, TO SEE LOTS OF SEA LIONS WHICH LEXY CAN SOUND AND CLAP LIKE THEM AND OF COURSE WE ATE AT THE WHARF, RODE THE CABLE CAR, WENT TO THE ZOO IN SAN FRANCISCO, WHICH WAS THE PRETTIEST AND BEST ZOO I HAD EVER BEEN TO. WE HAD A TEA PARTY WITH LEXY WITH HER NEW TEA SET AND SHE IS SO CUTE SHE WANTED TO TOAST AND WE WOULD RAISE OUR CUPS AND SHE WOULD HOLLER "BOOG-A-LEW" AND SHE WOULD THINK THAT WAS SO FUNNY. LEXY WAS SO MUCH FUN TO BE WITH EVEN WITH OUR SAD TIMES WE ENJOYED EVERY MINUTE. LEXY JUST MADE US ALL SO PROUD WHEN SHE WAS IN THE ROOM, SHE HANDLED IT PROBABLY BETTER THAN WE DID. I ALSO HAVE PICTURES OF HER THEN WHICH I WILL PUT ON LATER. I DO HAVE LOTS MORE PICTURES TO PUT ON AND I WILL TRY TO ADD THEM WITHIN THE NEXT FEW DAYS. DAWN WANTED ME TO THANK LEXY'S CHEMO AND HOLIDAY ANGELS FOR BEING SO KIND TO LEXY. RHONDA, LEXY GOT THE MADAME ALEXANDER DOLLS AND THANK YOU SO MUCH. DAWN IS DOING GOOD, AND I ALSO WANTED TO THANK GRANDMA IVY FOR BEING WITH DAWN AND LEXY SINCE DAWN STILL CANNOT BE REAL CLOSE TO LEXY BUT SOON SHE WILL BE AND DAWN CAN HAVE CUDDLE TIME WITH LEXY AS I AM SURE LEXY MISSES IT SO MUCH. MOST OF ALL I WANT TO THANK EVERYONE FOR YOUR PRAYERS AND YOUR CONCERNS AND DON'T EVER LET UP PRAYING FOR LEXY. I HOPE EVERYONE HAS A GREAT HAPPY THANKSGIVING AS I KNOW EVERYONE HAS SO MUCH TO BE THANKFUL FOR AND I WOULD LOVE TO LET EVERYONE IN THE WHOLE WORLD KNOW I AM SO THANKFUL FOR EVERYTHING GOD HAS DONE FOR LEXY AND MY FAMILY AND I BELIEVE HE WILL DO MORE, IT IS OURS JUST FOR THE ASKING AS THE SCRIPTURE READS "ASK AND YOU SHALL RECEIVE" AND GOD KNOWS I ASK ALL THE TIME "PLEASE HELP THIS BABY" AND NOT ONLY FOR LEXY BUT FOR ALL THE OTHER CHILDREN WITH CANCER, AS I KNOW WE ARE ALL WAITING FOR A CURE AND A MIRACLE. PAT UPDATE: 11-11-04 YESTERDAY WE DID MAKE IT TO THE MALL WITH NO RAIN. TODAY IT IS RAINING AGAIN BUT WE WILL TRY TO VENTURE OUT AND RIDE THE TRAIN TO DOWNTOWN TO CHINA TOWN AND RIDE THE TROLLY CAR, THAT SHOULD BE LOTS OF FUN FOR LEXY. DR. MATHAY CALLED YESTERDAY EVENING TO LET DAWN KNOW ABOUT THE MIBG SCAN: LEXY, HAS A SPOT ON HER RIGHT WRIST AND ON HER LEFT WRIST AND ON HER LEFT KNEE, AND ON HER RIGHT ADRENNAL GLAND BUT THE DOCTOR SAYS THAT IS NORMAL SINCE SHE HAD HER LEFT ADRENNAL GLAND REMOVED WHEN SHE WAS FIRST DIAGNOSED. LEXY HAS A DOCTOR APPOINTMENT TOMORROW FOR BLOOD COUNTS. LEXY WILL HAVE BLOOD TESTED ONCE A WEEK UNTIL HER COUNTS START GOING DOWN THEN THEY WILL TEST 2 TIMES A WEEK. DR. MATHAY WAS HAPPY THAT THERE WAS NOT ANY "BIG YUCKY STUFF" AS SHE SAID. I WILL UPDATE AGAIN SOON. PAT UPDATE: 11-10-04 TODAY IS WEDNESDAY AND EVERYTHING IS GOING GOOD. IT IS RAINING OFF AND ON AND WE ARE JUST HANGING OUT TODAY. WE WILL BE GOING TO THE MALL IN A LITTLE BIT, THEY HAVE A DISNEY STORE AND A CHILDREN'S PLACE STORE AND I THINK I COULD DO SOME DAMAGE IN THOSE STORES. LEXY HAD THE MIBG SCAN YESTERDAY EVENING BUT WE HAVE NOT HEARD BACK FROM DR. MATHAY. THIS MIBG SCAN WILL BE FOR A BASE LINE TO TELL THEM WHERE THE SPOTS ARE AND THEN IN ABOUT 6 WEEKS SHE WILL HAVE ANOTHER MIBG SCAN WHICH WILL BE COMPARED WITH THE 1ST MIBG SCAN TO SEE IF THE TREATMENT DID IT'S THING. LEXY WILL GO TO THE DOCTOR ON FRIDAY FOR BLOOD WORK. ONE OF THE MAIN REASONS FOR THIS UPDATE IS TO THANK EVERYONE FOR ALL OF THE PHONE CALLS, WRITING IN ON LEXY'S WEB SITE. I ALSO WANT TO THANK SOME VERY SPECIAL PEOPLE, FOR THINKING OF LEXY. LEXY HAS RECEIVED SO MANY CARDS FROM KENTUCKY, I DO NOT KNOW HOW MAY PEOPLE LIVE IN KENTUCKY BUT ACCORDING TO HOW MANY CARDS SHE GOT I THINK EVERYBODY IN KENTUCKY SENT HER A CARD. I WOULD LIKE TO THANK THE 6TH GRADE CLASS FROM LOWE ELEMENTARY SCHOOL, 2ND GRADE CLASS FROM LOWE OAK CHURCH OF CHRIST, LIBERTY BAPTIST CHURCH, WALMART IN MURRAY, KENTUCKY. THE CARDS WERE BIRTHDAY AND GET WELL AND THANKS FOR ALL THE NICE NOTES IN THE CARDS. I WOULD LIKE TO ALSO THANK MRS. RICHARDSON'S 1ST GRADE CLASS OF PICK ELEMENTARY IN FORT LEONARDWOOD, MISSOURI. THANKS ALSO TO THE TUMBLEWEED FOUNDATION FOR THE DISNEY BLANKET AND THE CARDS AND ALL THE CONCERNS. THANKS TO THE PARKER MUSIC GROUP IN MT. JULIET, TN. A BIG THANKS TO LEXY'S CHEMO ANGEL BONNIE FROM ORGAN CITY, OR. AND ALL THE HOLIDAY CHEMO ANGELS. I ALSO WANT TO THANK CINDY FOR TAKING CARE OF GING GING SO WE DO NOT HAVE TO WORRY ABOUT IF SHE IS BEING TAKEN CARE WHILE WE ARE GONE AND TO MY MOM AND OUR NEIGHBORS FOR TAKING CARE OF OUR PLACE, IT IS GREAT TO HAVE GOOD FAMILY AND GOOD NEIGHBORS. MOST OF ALL I WANT TO THANK EVERYONE FOR ALL OF THE PRAYERS FOR LEXY AND OUR FAMILY. MAY GOD BLESS EACH AND EVERYONE OF YOU. PAT UPDATE: 11-8-04 JUST A QUICK UPDATE TO LET EVERYONE KNOW LEXY IS DOING GREAT!!!!!!!! THE NURSES HAVE BEEN GREAT HERE. I WILL TRY TO NAME THE NURSES LEXY HAS HAD AND THEY ARE GRACE,CHRISTIAN,EVONNE,MARGARET, MARILYN AND PAM. WE HAVE TAKEN OVER THE COMPUTER, WE HAVE BEEN LOOKING FOR BEDDING FOR AIDEN AND LEXY THINGS FROM DISNEY STORE AS I THINK MOST OF YOU KNOW LEXY WILL HAVE A BIRTHDAY VERY SOON. TODAY, DAWN AND I WENT SHOPPING FOR SPECIAL PRESENTS AND PARTY FAVORS FOR HER BIRTHDAY PARTY. LEXY WILL HAVE A BARBIE PARTY, AND IT WILL BE AT A PIZZA FUN PLACE ON SATURDAY NOVEMBER 13TH. THEN ON THE 14TH WE WILL TRY AND TAKE HER TO THE ZOO, WHICH IS SUPPOSE TO BE REALLY NICE. LEXY IS SOOO FUNNY, WHEN WE WENT TO THE WHARF THE DAY BEFORE SHE WENT IN THE HOSPITAL SHE WANTED CRAB TO EAT SO SHE AND PAPA HAD DUNGESS CRAB. LEXY GOT TO SEE THE SEA LIONS ON PIER 39 AT THE WHARF. DAWN (MOMMY) GOT TO STAND NEAR THE DOORWAY TO LEXY'S ROOM AND AT LEAST SEE HER AND WAVE TO HER. TOMORROW THE CATHETER WILL COME OUT AND THAT WILL MAKE LEXY FEEL SO MUCH BETTER AND THEN ON TUESDAY SHE WILL HAVE THE MIBG SCAN AND THE DOCTOR DID TELL DAWN THAT MORE SPOTS MIGHT SHOW UP BECAUSE SHE WILL HAVE MORE RADIATION IN HER BODY THAN A NORMAL MIBG SCAN, THEN IN ABOUT 3 WEEKS SHE WILL HAVE ANOTHER MIBG SCAN. I WILL UPDATE WHEN I HAVE ANY OTHER INFO BUT REMEMBER LEXY IN YOUR PRAYERS. MAY GOD BLESS EACH AND EVERYONE OF YOU AND THANKS TO EVERYONE FOR CARING FOR LEXY. PAT UPDATE: 11-6-04 WELL I WILL TRY THIS AGAIN, I GOT INTERUPPTED AND I LOST WHAT I HAD WRITTEN, SO HERE IT GOES AGAIN. LEXY SHOULD BE GLOWING, SHE RECEIVED SO MUCH RADIATON TODAY THAT HOPEFULLY IT WILL GET RID OF EVERY BIT OF NEUROBLASTOMA CELLS IN HER LITTLE BODY. LEXY HAS FEVER AS OF NOW, WHICH STARTED AROUND 8:00 PM TONIGHT. THIS ALL STARTED ON THURSDAY NOVEMBER 4TH. LEXY WAS ADMITTED AND HAD AN IV PUT IN HER HAND AND A FOLEY CATHETER. LEXY WAS HAVING BLADDER SPASMS WHICH THEY GAVE HER MEDICINE FOR AND IS STILL CAUSING HER PAIN. FRIDAY MORNING THEY STARTED THE COMMODE RUNNING CONTINUOUSLY, WHICH THEN THEY RAN A TUBE FROM HER FOLEY TO THE COMMODE, SO THE BAG WOULD NOT BE TOUCHED TO BE EMPTIED. THEN THEY BROUGHT THE CAN OF RADIATON TO HER ROOM AND KEITH CUDABACK THE RADIATION SAFETY MAN WAS IN AND THE SCIENTIST JOHN HUBERTY AND THE ONCOLOGIST WAS ON HAND FOR THE 2 HOUR INFUSION OF RADIATION. JOHN HUBERTY SAID THAT THE MIBG IS GREAT FOR SOME CANCERS AND FOR NEUROBLASTOMA THE CHANCES ARE NOT AS GOOD BECAUSE THE NEUROBLASTOMA CELLS GROW SO FAST. LEXY HAS DONE GREAT TODAY BY WATCHING MOVIES AND BEING STILL BECAUSE THE CATHETER IS HURTING HER AND SHE KNOWS IF SHE MOVES IT WILL HURT. MOMMY HAS DONE VERY WELL TODAY AND SHE AND AUNT TRACI SAT AT THE NURSE'S STATION AND WATCHED LEXY ON THE MONITOR. LEXY HAD LOTS OF VISITORS TODAY, KURT, TRACI, BRYAN, GINA, CRAIG, CAROL, JIMBO, AUNT SARAH AND GRANDMA IVY AND OF COURSE PAPA AND DADDY AND MYSELF. AS JOHN HUBERTY SAID YOU ARE BUYING TIME TILL THERE IS A CURE FOR NEUROBLASTOMA AS ALOT OF OTHER CHILDREN ARE ALSO NEEDING A CURE FOR NEUROBLASTOMA. LEXY DOES HAVE A FEVER AT THIS TIME AND THEY HAVE CALLED THE DOCTOR AND HAVE TAKEN BLOOD CULTURES. WE STILL NEED A MIRACLE. PLEASE REMEMBER LEXY IN YOUR PRAYERS. I LOVE LEXY SO MUCH AS SHE IS MY HEART AND YES WE DO NEED A CURE. PAT UPDATE: 11-1-04 I TALKED TO DAWN TONIGHT AND LEXY IS GOING TRICK OR TREATING WITH HER COUSIN AMANDA. DAWN SAID SHE IS SO CUTE BUT THAT LEXY TOLD HER THAT HER RIGHT LEG HURTS AT THE KNEE AREA, AND THAT IS SOMETHING WE DID NOT WANT TO HEAR CONSIDERING THE CAT SCAN THAT WAS LAST WEEK SHOWED A SPOT ON HER LEFT KNEE AND NOT THE RIGHT KNEE. SATURDAY, LEXY AND DAWN WERE INVITED TO A CHARITY BENEFIT AT THE PIXAR ANIMATION STUDIO WITH A "SNEAK PREVIEW" OF " THE INCREDIABLES " WITH A MEET AND GREET THE CHARACTERS. THE BENEFIT WAS TO RAISE MONEY FOR PEDIATRIC CANCER. IT WAS A DAY THAT LEXY DID ENJOY, AS SHE GOT TO MEET LOTS OF PEOPLE. DAWN HAD HER DRESSED SO CUTE, FROM A SKIRT WITH TULLE NET AND SHIRT THAT TIED AND A BERET HAT. DAWN SAID LEXY WAS THE ONLY LITTLE BALD CHILD THERE, SO PEOPLE DEFINATELY KNEW SHE HAD CANCER. A LITTLE BOY AND GIRL WALKED UP AND SAID TO THEIR DAD LOOK SHE HAS NO HAIR AND AND THEIR DAD DID NOT KNOW WHAT TO SAY SO DAWN SAID SOME PEOPLE HAVE TO TAKE MEDICINE THAT MAKES YOUR HAIR COME OUT AND THEN LEXY SAYS IN HER LOUD VOICE " I AM GOING TO GET BLACK HAIR AND IT IS GOING TO BE BEAUTIFUL" AND THE BOY AND GIRL'S DAD SAID SOME PEOPLE ARE SPECIAL. DAWN SAID MOM IT DOES NOT HURT LEXY OR EMBARRESS HER BUT I FEEL SORRY FOR THE PARENTS BECAUSE THEY DO NOT KNOW WHAT TO SAY WHEN THEIR CHILD ASK WHY DOES THAT PERSON NOT HAVE HAIR. MONDAY DAWN WILL HAVE HER FIRST VISIT WITH A OBSTRETRICIAN IN CALIFORNIA. TUESDAY LEXY HAS A CAT SCAN AT 10:30 AND A DOCTORS VISIT AT 1:30 FOR THE RESULTS OF THE CAT SCAN. PAPA AND I ARE FLYING OUT AT 8:00 AM ON TUESDAY SO WE MAY GET THERE IN TIME FOR THE DOCTORS APPOINTMENT AT 1:30. LAURA PRUITT, WHO IS PAPA'S NEPHEW'S WIFE AND HER SISTER BECKY ARE MAKING JUICE BOX PURSES AND ARE SELLING THEM TO HELP WITH EXPENSES GREG AND DAWN ARE FACED WITH. LEXY IS HOLDING HER JUICE BOX PURSE ON ONE OF THE PICTURES IN PHILADELPHIA PICTURES AND IF YOU WOULD LIKE TO ORDER A PURSE YOU CAN EMAIL ME OR CALL ME. ANOTHER FUNDRAISER GOING AROUND FOR THEM IS A PAMPERED CHEF PARTY FUNDRAISER AND YOU CAN CONTACT ME IF YOU WOULD LIKE TO ORDER ANYTHING. THIS WEEK LEXY WILL GET THE 1131 MIBG TREATMENT. ON THURSDAY SHE WILL BE ADMITTED TO THE HOSPITAL FOR THE CATHATER AND IV AND THEN FRIDAY SHE WILL GET THE RADIATION ISOTOPE. PLEASE CONTINUE TO KEEP LEXY IN YOUR PRAYERS, AS THIS WILL BE A HARD WEEK COMING UP FOR LEXY AND ALL OF OUR FAMILY TO HAVE TO WATCH LEXY AND NOT TOUCH HER FOR A FEW DAYS. MAY GOD TOUCH AND BLESS EACH AND EVERYONE OF YOU AND PLEASE CONTINUE KEEP LEXY IN YOUR PRAYERS. LEXY IS ALSO HAVING A BIRTHDAY ON NOVEMBER 14TH SO PLEASE GIVE A HAPPY BIRTHDAY GUESTBOOK ENTRY. PAT UPDATE: 10-25-04 JUST A QUICK UPDATE TO LET EVERYONE KNOW THAT LEXY IS DOING GOOD. LEXY WAS RELEASED FROM THE HOSPITAL ON SATURDAY EVENING. THE BONE MARROW IS STILL CLEAR AND THE CAT SCAN SHOWED SMALL SPOTS ON HER LUNGS BUT HER DOCTOR THINKS IT MIGHT BE FROM THE INFECTION SHE HAD BUT SHE ALSO STILL HAS THE SPOT ON HER LEFT KNEE. THE DOCTOR SAID EVEN IF THE SPOT ON HER LUNG WAS NEUROBLASTOMA SHE WOULD STILL BE A GOOD CANIDATE FOR THE 131 MIBG TREATMENT. REPEAT OF THE CAT SCAN WILL BE DONE AGAIN NOVEMBER 2. LEXY IS STILL ON IV ANTIBIODICS 24 HOURS A DAY. SHE CARRIES THE PUMP IN A FANNY PACK AND IS LOVING TO EAT TODAY. MOMMY AND AIDEN ARE DOING GOOD AND GREAG WENT BACK TO FT. LEONARDWOOD TO PICK UP SOME THINGS AND BRING THEIR CAR BACK. I AM TRYING TO GET DAWN AND LEXY IN TEXAS FOR A FEW DAYS IF LEXY CAN GET AWAY. I DO MISS THEM AND HOPE TO SEE THEM SOON. I WILL UPDATE AS SOON AS I HAVE OTHER INFO. MAY GOD CONTINUE TO BLESS LEXY AND ALL OF THE OTHER CHILDREN THAT ALSO NEED GOD'S TOUCH. PAT ADDED: 5-11-04 IN NOVEMBER 2001 LEXY WAS DIAGNOSED WITH NEUROBLASTOMA STAGE IV CANCER, AND WENT THROUGH CHEMO, SURGERY, RADIATION, STEM CELL TRANSPLANT. IN NOVEMBER 2003, SHE RELAPSED AND IS ON CHEMO. PLEASE KEEP LEXY IN YOUR PRAYERS AS WE DO NEED A MIRACLE FOR LEXY. THANKS FOR EVERYTHING. PAT (LEXY'S NANA) Some History: Welcome to Lexy's Web Page. This page is intended to keep all of you up to date on Lexy's fight against Neuroblastoma Stage IV Cancer. Lexy was diagnosed on November 2,2001. Her primary tumor was on her left adrenal gland. Lexy went through 5 rounds high dose chemo, Surgery, 1 additional high dose chemo with stem cell transplant, Accutane and Vaccine Therapy Study. Lexy went in remission on March 13, 2002. Lexy remained in remission for 19 months. Scans on November 19, 2003 showed that Lexy's Neuroblastoma has returned. Lexy is now doing oral chemotherapy. Lexy's doctor said it will be an uphill battle but with your prayers we will win this again.We had another set back. When they did scans again the first of January 2004 Lexy had 4 other spots show up besides her original sites. She had a central line put in and will be on IV Chemos. This is a setback but with God on our side we'll walk through it again.