Translate This Page To: Spanish German French Italian Portuguese Norwegian Brought to you From FreeTranslation.com Give a gift in honor of this child. David "Fisher" Clark We now have a post office box for Fisher. If you get the chance, he would love to get a letter, or card from his friends. He love you all so much!. The address is: Fisher Clark c/o Carolyn Clark PO Box 2781 Chesapeake, Va 23327 Fisher's Guestbook       Fisher's Photo Album Fall                   Spring Current Page Page One Page Two Page Three UPDATE: 8-04-08 Hi everyone! Just a real quick update. Fisher has an MRI tomorrow. Please keep him in your prayers. His 10th birthday is Sunday. I can't believe he is going to be 10. I will update again tomorrow to let yall know how everything went. Please pray for a STABLE result!! With love from Va, Carolyn UPDATE: 2-25-08 Well, Fisher's appointment at the brain tumor clinic appointment went pretty good. Thankfully, Fisher only had to see two doctors this time. First he saw Dr B, his neuro-oncologist. The doc examined Fisher, and thought Fisher looked good. At this point with Fisher being so far out of chemo (4 years off!!), he should be getting MRI's once a year. The doctor and I agreed that with all the issues Fisher has going, it would be better to continue the every 6 months schedule. Then the endocrinologist came in. She explained to me about Fisher's bone age study. Fisher's bones “thinks” he is 7. She said that since he is growing at the pace of a 7 year old, that is good. I still don't really get it. I don't understand why it's a good thing that my 9 year old is the size of a 7 year old. We will do another study when we have his next MRI. Now for the “big thing” I would like y'all to help out with. I got this idea from a school project Fisher is doing. Fisher's buddy Kati is helping with this. (Kati is my nephew's sweet wife) This project is “Flat Stanley”. Flat Stanley is a flat little boy who travels all over the world with host families. What I would like to do is, have “NF Buddies” emailed to people who would volunteer to take them and make them a “part of their family”. The sky is the limit on what can be done. You can take them on family outings; you can take them to sporting events, or to tourist attractions. Be sure to take pictures!! Everything can be done via email. I will be setting up a special email address for the buddies. Depending on the response, I may even set up a myspace page so everyone can see where all the buddies are. I am coping this on Fisher's caringbridge page. His post office box is on that page should the buddies want to send him a postcard or anything. I am excited about this because Fisher just loves getting postcards and hearing from people all over the world. Thanks for reading!! Check back for Buddy updates!! UPDATE: 10-1-07 Wow! Its been a long time! I couldn't sleep tonight, so, I thought I'd post an update about our favorite little charmer, Fisher :). Fisher is doing pretty good. He is trying to get adjusted to being back in school. He is now in the third grade, and is 9 years old. He acts so grown up in many ways, but in others, he is still a baby. I do have to say that he is quite the charmer, and he works hard to make sure the people he cares about knows that he cares about them. He is convinced that one day he will help lead Jesus in the charge to defeat the Devil. In fact, he talks about that on a daily basis. He starts talking from the time his eyes open till the time he falls asleep at night. I don't know if I have posted here about his latest MRI, but, it showed the tumors are still stable! He is doing so great I felt comfortable changing his last appointment with the brain tumor clinic. Well that and the fact that he had his visit with Dr Frank the previous week and he gave him a good report. That's about it. Im so sorry I haven't posted here in awhile. Please forgive me. With Love from Va, Carolyn UPDATE: 5-21-07 Boy, my week has been full of ups and downs. I had a real bad health scare. I can't go into details here, but thankfully, I am ok. Thanks to Terrie, Dawn and Mandee for helping me through it. I don't know what I would have done without you guys. Also, my Mom is sick again. She has another infection in her spine. She is in a nursing home getting IV antibotics. Please keep her in your prayers. My oldest giant, Josh is leaving us in a week. I am so sad he is leaving. I knew it would happen sooner or later. He has met a wonderful young lady, and he is leaving to go and be with her. Don't get me wrong, I like her and I know she is going to be good for him. I amd just one of those moms who have to have my kids close by. That is the part I don't like about being a mom and an aunt. The kids grow up and move away. I miss my nephew and his wife. I miss my niece. I'm just in a sad mood this weekend. I am so proud on them all and I am happy they are making something of themselves. But that doesn't change the fact that I miss them. Fisher is doing good. He has been a wild man. He has been collecting Star Wars toys, the one with the coins in them. He is a Star Wars nut LOL. Well, that is about it for now. Thanks for reading!! UPDATE: 3-12-07 Fisher is doing good. He is still getting headaches, but not so bad that he has missed school. There for awhile, we were going through a huge battle at night trying to get hime to start his homework. Thankfully we have found the answer. I allow him some time to chill after schoool, then at 6, we do it. He is allowed to choose what he does first, second, etc. I know that sounds simple, but, it works. The patch he is on, has been amazing. It really helps him get control of himself. The downside is it really suppresses his appetite. So, we have to practically force feed him. We are trying everything short of cramming the food down his throat. (not really, but Im sure you guys know what I mean) As far as everyone else, the giants have been good. Well, they are your typical teenagers, but nothng really major thank goodness. I was sick for 2 weeks straight. I was in bed every day for 2 weeks. Thankfully, I feel much better now. While I was sick, we got such a wonderful surprise! Fisher got a package in the mail, and in it was a beautiful, beautiful quilt. It was from Quilts of Love. Im gonna take pictures of him with it soon and post them. It is perhaps the most beautiful quilt I have ever seen. That's about if from us. I keep all my cb friends in my prayers. I hope you all have a wonderful weekend. Thanks for checking on us. We love you all. With love and prayers from Va, Carolyn UPDATE: 1-22-07 Hello everyone! Thanks for all your patience in waiting for me to post the MRI results. The prelim results are that the tumors are stable!! Thank goodness! We are so thankful that for so long after his last chemo, the tumors remain stable. I, of course, stay on pins and needles. I worry about him all the time. For now though, I can breathe a sigh of relief. Thank you all for your prayers and support. I truly don't know what I would do without them. With Love from Va, Carolyn UPDATE: 1-15-07 Hello everyone. Boy it has been a wild past few months for us. Thankfully, my Mom is finally better and she is home. Thank you all for your prayers for her. Today was Fisher's MRI. He did fine for it. We won't have the results back until around Tuesday. I will update then. Thanks for all the well wishes. Have a wonderful weekend. With love from Va, Carolyn UPDATE: 1-1-07 Hello everyone. Things have been so busy around here. My mom is still in a nursing home getting IV Antibotics. Between going there to see her and trying to run and maintain a household I am at my wits end. I just wanted to let you guys know that Fisher has an MRI on January 12. Please pray that everything works out. I am so worried. As I normally get right before an MRI. Also, I want to wish you all a very HAPPY NEW YEAR. I love you all! With love and prayers from Va, Carolyn ADDED: 1-17-04 Fisher is 5 years old and suffers from Diffuse Intrinsic Pontine Glioma and Spinal Cord Tumors. Current Update: Fisher is doing fairly good. He keeps running a low grade fever (99.8). So I am hoping that we make it through the weekend without a trip to the ER. Oppps! Gotta go, he needs me. Have a great weekend! Love, Carolyn Introduction: Tuesday, August 5, 2003 9:28 PM My name is Carolyn, and Fisher is my four...... excuse me, FIVE year old son. Fisher has an inoperable brain stem/spinal cord glioma. He is currently undergoing chemotherapy at CHKD. Over the course of time, I will back track and give the full story on Fisher and how we got where we are now. Currently, he is at the half way point of his protocal. As his doctor says, its better than being at the 1/4 point. Fisher has a team of wonderful doctors. They are so patient.... with both of us. I am your classic neurotic mother. Fisher breathes "wrong", Im worried. He stumbles some I worry. His doctors patiently help me wade through what is "normal" and what isn't. I will try to update often. Thanks for reading! Have a blessed day!