Translate This Page To: Spanish German French Italian Portuguese Norwegian Brought to you From FreeTranslation.com Give a gift in honor of this child. Harley S. UPDATE: 5-21-08 HAPPY 5th BIRTHDAY, HARLEY!!! Harley is doing good and had her 5th birthday on May 15th. She is such a sweet little child. Please continue to pray for her and also add me to your list. God bless all, Angel Jen UPDATE: 4-12-08 This is Angel Jen (Aunt Jennie to Harley) and I have not been able to update lately. I am having a bit of health problems, so if you all will be pray for me, I would appreciate it. Please pray for my son, Jason Harley is doing about the same. She is still weighing in at around 27 lbs. She can not eat yet. She has to be fed by the tube in her stomach a formula that costs around $1,000 a month, I have been told. It is all the vitamins etc that her little body needs. The doctors increased the nutrients so it went up around $200. (from $800.00 to $1,000.00) Thank God, that He is the provider. Harley does wear (when they can get her to keep them in) hearing aids in each ear. She is learning sign language. She is such a sweet child. I see videos and pictures from the family holidays and she loves to help my sister with the picture taking. She got a small camera for Christmas from Santa. I will update again as soon as I feel up to it. God bless all and remember to pray for all the sick. UPDATE: 3-12-08 This is Angel Jen (Aunt Jennie to Harley) and I have not been able to update lately. I am having a bit of health problems, so if you all will be pray for me, I would appreciate it. Please pray for my son, Jason Harley is doing about the same. She is still weighing in at around 27 lbs. She can not eat yet. She has to be fed by the tube in her stomach a formula that costs around $1,000 a month, I have been told. It is all the vitamins etc that her little body needs. The doctors increased the nutrients so it went up around $200. (from $800.00 to $1,000.00) Thank God, that He is the provider. Harley does wear (when they can get her to keep them in) hearing aids in each ear. She is learning sign language. She is such a sweet child. I see videos and pictures from the family holidays and she loves to help my sister with the picture taking. She got a small camera for Christmas from Santa. I will update again as soon as I feel up to it. God bless all and remember to pray for all the sick. UPDATE: 1-3-08 Harley had a great Thanksgiving and Christmas. My sister, Seal made a scarf and cap for her and when she opened up the gift, she immediately put the scarf around her neck (after holding it up in front of her) and then threw it around her shoulder and took her hands and pulled it around her neck. LOL She then stuck her tongue out like she was choking herself. I didn't get to be there but Seal made a video and I got to see it. I will share with everyone as soon as I am able to put it on here. She doing good as far as I know. Still a tiny little girl but seems to be full of energy. She loves my sister and always stays close to her during the holidays. She loves the camera and she and Seal takes pictures together. She received from Santa and cute little child camera that really takes pictures. Will share more news later. God bless, Angel Jen, SOEW (Aunt to Harley) UPDATE: 9-5-07 Harley is weighing in at 25 lbs. 3 ozs. at last doctor's appointment. Thank God!!!! This is more than she has ever weighed that I know of. She is 4 years old. She is not a happy camper with the hearing aids in her ears. She doesn't want them in and keeps taking them out, I have been told. God bless all, Angel Jen (Harley's Aunt Jennie) UPDATE: 5-30-07 I was talking to Ruby (Harley's other aunt) and she told me that Harley had lost a few ounces. She is down to 24.4 lbs. now. (I am not 100ure of the ozs. but am sure it was 24 lbs.) She is so active all the time. They had a birthday party for her at the park the Saturday before her birthday. Ruby said she was riding her tricycle and running around having a great time. She still does NOT like the hearing aids in her ears. Hard to keep them in. She keeps taking them out from what I understand. Ruby made a few pictures and I am sure I will get a copy of them but she also said she didn't know how good they turned out cause all the little cousins of Harley's was playing around and she couldn't get very good shots of her. Hopefully they will be good ones even with the little ones playing together. We are so glad she is feeling good enough to play. I don't know if they have gotten another cat or not. I know Sam had to be put to sleep and Dalton cried all the way home holding the box that Sam was placed in at the vet. So sad, he was so upset when his dad was killed and now their pet. Thanks for your continued prayers for all the sick children. Harley turned 4 on May 15th. If you have not signed her guestbook to wish her a happy birthday, it is never to late for good wishes. God bless, Angel Jen, SOEW Harley's Aunt Jennie UPDATE: 5-16-07 Harley's birthday was Tuesday, May 15th. She turned a whopping 4 years old. Her Aunt Ruby told me that she still was at the same weight of 25 lbs. Is this little baby girl ever gonna gain some weight? Thanks for all the prayers and please continue to pray for all the sick. Include me in them also, please. God's love 'n blessings always, Angel Jen, SOEW (Harley's Aunt Jennie) UPDATE: 3-21-07 getting ready to turn 4 on May 15th. Except for the hearing aids and having the feeding tube in her tummy and her small weight size, you wouldn't know anything was wrong with her. I sure do pray for a miracle on her and all that are sick. I even ask for a miracle for myself. Seal has not uploaded the pictures yet but as soon as she does, I will for sure post them for you all to see. I haven't heard if they (Harley and Dalton) has gotten another pet or not. I will try and find out this week. ~God bless all and keep the prayers going~ UPDATE: 2-28-07 Harley is doing good. I think she has gained, Loretta her granny, told me. She is now 25 lbs., I believe was the last report that I got. She lost her pet, Sam. Brother Dalton cried all the way home from the vet. It is sad to lose a pet. I will (promise) post some more pictures. We have some on my sister's camera, but she has not downloaded them to the computer. But, just as soon as she does, I will post. God bless, Angel Jen (Aunt Jennie to Harley) UPDATE: 2-8-07 On a previous update, I stated that Harley loved bacon. I was wrong, she loves the taste of bacon but can not eat just licks the bacon. She gets sick when she watches her brother eat. She is still having to be fed with the special formula through the tubes in her stomach. The formula runs around $800.00 a month. She still only weighs 23 lbs, the last time I asked the family about the weight. Please keep her in your prayers as well as all the other sick. Harley was helping Seal (my sister) on Christmas. She would point to different ones for Seal to take pictures of. She remembered doing that with Seal on Thanksgiving. She is getting to be a real little lady now. No more Baby Harley, it is a little girl with a sweet smile. So much energy, to be so small. Still 23 lbs. We all keep praying for a miracle, hearing to be in both ears and the leukemia to be completed gone now and forever. UPDATE: 9-13-06 Harley and the family that went to Disney had a great time. Harley did NOT like the plane ride, cause she didn't want to sit. She wanted to be active up and down the rolls. LOL They all had a great time on their trip and are now back safe and sound at home. The family had a labor day picnic (which I don't get to attend any longer) and Harley (I was told) pecked Jason (my son) on the back and she held his finger for a while. I wished I could have seen that. She is so tiny and Jason is some over 6 ft. She does not like to stay still so her mom had a lot of excerise at the park on Monday. My back is some better, but still am having numb fingers on right hand. Very painful, like they are stuck in a block of ice all the time. God bless all, Angel Jen Harley's Aunt Jennie UPDATE: 7-18-06 Harley and her siblings with mom and granny is getting a trip to Florida (Disney) at the end of July.  I believe they told me Make A Wish Foundation is treating them to this trip. Also, as far as I know her hearing aids are doing ok.  She is in school (special learning sign language).  Look at her picture with her birthday cake.  The cake is almost as big as her, or should I say she is almost as small as the cake?  She only weighs 21 pounds and is 3 years old as of May 15th.  God bless all.  Please pray for me as you are praying.  I am having pain in the lower back and hip and right leg.  Can hardly sit for more than just a few minutes. Love, Angel Jen UPDATE: 6-14-06 She was a candate for hearing aids, so she has one for each ear but can not wear them while in the car. Road noise would be to much for her little ears with the hearing aids. Hope everyone enjoys her new page. I enjoyed doing it for her. It is still under construction as I add to it as time permits. She had a great birthday. Her mom gave her a birthday party and also her brother, Dalton had one the month before. I didn't get to attend as usual but hopefully someday I will be able to go and enjoy the parties. I hopefully will have some new pictures, if and when I can get the family to send me some. I know they are taking many cause that is one of the main things our family does is takes pictures. Everyone have a great June and to all the guys, Happy Father's Day!!!! Angel Jen UPDATE: 5-17-06 Well, today is Mother's Day and Harley and the family went out to eat but I didn't get to go again. They did have her birthday party yesterday, I was told. Our girl will be 3 years old tomorrow, May 15th. Our little friend, Barrett will be 3 on May 25th. Harley's brother, Dalton had a birthday party last month and I am sure both got some neat toys for their special days. No change, that I have been told about in regards to Harley's condition. I do know that the last time I was told, she is still at 21 pounds. Asking for prayers that she will be one that will be able to have the inplants or whatever it is they put in ears for her to be able to hear. God bless all and Happy Mother's Day everyone! Angel Jen (Harley's Aunt Jennie) UPDATE: 4-19-06 Happy Easter to all of Harley's friends who takes the time to come by and visit. Thanks for all your prayers for Harley. The family is waiting to see if Harley will be able to have the things put in her ears and hopefully it will make her be able to hear. As of right now she is deaf in both ears. Still have not been able to start doing any chemo nor do any bone marrow transplant that needs to be done due to the leukemia. Again, hope all has a great Easter and remember the reason for Easter....HIS name is JESUS UPDATE: 3-22-06 Weight = 21 lbs. DOB: May 15, 2006 {Will be 3 years old} Harley had a very complicated hearing test on Tuesday and she had to be putto sleep for the doctors to do the test.The test results show that her hearingloss is profound. They do not think hearing aids will help. There is a good chance that she will be a canidate for couplear implants. This is just another hurdle she and the family will have to jump over. Lori {mom} will start sign language classes on Monday. Please continue to pray for all the sick. Please pray for a complete miracle healing on all. God's love 'n SONshine, Angel Jen (Harley's Aunt Jennie) UPDATE: 3-21-06 Update on Baby Harley (we have to start calling her Harley girl now, she getting to big to be called Baby Harley. lol I have gotten permission from the family to tell the reason that Baby Harley (Harley girl) needs extra prayers. Besides the leukemia the type of leukemia is posted on her website. All I know is it is a rare form, the doctors told her mom and only one in a million has that type. Our Harley is also deaf in both ears. Vandy is teaching her sign language. So this means that our family will have to learn sign language to be able to talk to her. She has already learned several words, I was told. Vandy is also still teaching her to eat. She still loves bacon. I don't know if I had let you all know but when she gets into trouble with mommy (like pulling Sam, the cat's tail) she will get time-out and be punished by been sent to the corner. Now, she knows what that means, so she goes to the corner herself without being told when she does something she knows is NOT good. Look around to see if Mommy is watching or coming. LOL What a sweet baby girl who will be 3 on May 15th. I was told she now weighs 21 pounds. Please pray for Harley and all involved. God's love 'n SONshine, Angel Jen UPDATE: 2-8-06 Harley is still a tiny little girl. She is only weighing in at around 20 lbs. She will be 3 years old on May 15th. Her little friend, Barrett will also be 3 on May 25th. The last time I got a report from Barrett, she is still in remission. Thank God!!!! Harley is still going to Vanderbilt Children Hospital learning how to eat and to talk. She loves to dance and model. The is a sweet little girl. The phone run on Christmas Day and I called back to see who called. Thinking it was one of the adults, but guess what? It was my Harley girl. Her was calling her Aunt Jennie. LOL Sweet little baby voice. Well, will report more as soon as I can get more information. God's love 'n blessings, Angel Jen (Aunt Jennie to Harley) UPDATE: 12-29-05 On Christmas day as usual, I was home and did not attend the family Christmas dinner. I called them after sending some site address that Harley had received from different friends and then was back on puter. The phone rung. I picked it up but my finger slipped and I cut off the call. I checked caller ID to see who it was and it was the family calling. I called back up there and they said that they didn't call. But, it turned out the call was from there but from a precious baby called Harley. She had hit the redial button to call her Aunt Jennie. (lol) They got her on the phone and I heard her trying her best to talk. Of course she is taking speak therapy at Vanderbilt alone with learning how to eat. It was so sweet and it made my day. My heart just felt so proud to hear her little voice on the phone. BUT then she got interested in trying to stick batteries in her pocket and left her Aunt Jennie just hanging on the phone. lol It was a great day to hear my sweet baby Harley's voice. I could have cried and still could, so I better go on to something else. She is around 20 lbs. now. She will be three years old on May 15th. I am posting a new picture that I received from her Aunt Ruby. It is really good. UPDATE: 12-21-05 I wanted to take this time to say thanks to everyone who has been so kind in visiting Baby Harley's website and signing her guestbook.  Also thanks to the ones who has sent her cards and/or small goodies.  I thank you for the family.  Her mom is kept busy taking care of Harley and her brother, Dalton.  Since Harley's dad was accidently killed 7 months before Harley was born, it has left Lori being both mommy and daddy to the little ones. I know I have not updated much and also have not sent in current pictures but I have tried to obtain some.  My sister was on her way to their home on Thanksgiving (I am unable to go anymore) and she was taking her new camera/video to make me some new pics of Harley and the Thanksgiving dinner in general for me to be able to see.  She was going to do a video with everyone giving me a message.  BUT, her truck started to overheat and she had to turn around and come back home. BUT, I was talking to Harley' aunt last night and she has a really good picture of Harley for me.  PLUS Seal is suppose to get her truck repaired this Friday so praying she will be able to go up there on Sunday and take some good pictures.  I will for sure share them with everyone when I get them.  Thanks everyone again and Merry Christmas and remember the reason for the season is JESUS!!!! Angel Jen UPDATE: 11-16-05 HAPPY HOLIDAYS!!!! I talked to Harley's Aunt Ruby the other night and she said that Harley was a few ounces over 20 lbs. now. She received a package from one of our SOEW member/friend and as soon as mom handed Harley the gift, she laid down in the floor and started to color. She knows what to do, just needs to learn what those lines in the coloring book are for. Update on Harley from a friend of Harley's mom: I have a quick update on Harley. She went to the doctor on Wednesday. She weighs in at 19lbs this week. She said her first word to me last week. Bye - Bye. It was Sooo Great!!! And the news of the week is she is now caught up as far as Physical Therepy goes. That is one less apt. each week.Whoo Hoo!I will update again next month. Thanks for all your prayers and good wishes! Thanks Vonnie for the update. I will be posting new pictures after Thanksgiving. My sister will be taking some for me to share with the friends of Harley. Thanks God for sisters and especially with a good camera. Hope everyone has a great Thanksgiving and remember to be thankful for what you have. Angel Jen (Aunt Jennie to Harley) UPDATE: 10-17-05 Harley went to the doctor yesterday. She now weighs 18lbs 10oz. The test results finally came in from Alabama, the bone marrow shows no improvement but it has not gotten any worse either. She seems to feel well and is playing like any other two year old. Thanks to everyone for their continued prayers and good wishes. (Friend of Harley's mom) Shavon "Vonnie" UPDATE: 9-17-05 Harley went to the doctor yesterday. She now weighs 18lbs 10oz. The test results finally came in from Alabama, the bone marrow shows no improvement but it has not gotten any worse either. She seems to feel well and is playing like any other two year old. Thanks to everyone for their continued prayers and good wishes. (Friend of Harley's mom) Shavon "Vonnie" UPDATE: 9-13-05 All the yahoo groups that I am a member of, I made a photo folder and posted a message "MISSING CHILDREN" for Jennifer and Lee Ann.  That was about 1,000 - 2,000 members in all the groups I am in including SOEW and ROL. I also plan on posting in my Delphi Sunshine on Eagles Wings Forum and all the many forums that I am member of there.  I can't post a picture there (I don't believe) but I could if I was a premium member. I am trying.  I also sent out many emails this am on this. Harley is doing good.  She is going to Vanderbilt every week still, learning to eat and talk.  She still likes her bacon.  They had a benefit dinner week-end before last for her medical needs. God bless, Jen UPDATE: 6-19-05 Harley went back to the doctor this past week. She has not gained any weight but she did not lose any either. She has become so active she just burns off all the calories, the can get in her. It is wonderful to see her running around, jumping and playing. Her curley hair framing her beautiful ,smiling face. She is a sweet baby. Thanks to everyone for all the prayers and well wishes. vonnie UPDATE: 6-6-05 Hello everyone................. I will be posting at least 4 new pictures of Harley in a few days. These were made at the family's picnic on Mother's Day at Montgomery Bell State Park which is only about 6 miles from my home. I sure miss being with the family. I always get food sent home to me, but it is not like being there in the flesh with the family. The family sends thanks to everyone who sent birthday wishes for Harley's on the 15th. Thanks for all the messages left in her guestbook. She is getting to be a big now!! I also would like to say thanks for all the birthday wishes for Barrett also. Thanks for signing her guestbook and sending cards for her. UPDATE: 5-30-05 Hello everyone. The family sends thanks to everyone who sent birthday wishes for Harley's on the 15th. Thanks for all the messages left in her guestbook. She is getting to be a big now!! Barrett also turned 2 years old on the 25th of May. So, now we have two (NOT) terrible twos, but two sweetie pies that are loved by many!!!! Now for Harley's update: This is a good report/update for our Harley. She went to the doctor this week and now weighs 18lbs 6oz. She also had her bone marrow test done. The results will not be known for a while but will let everyone know when they come in. Her counts this week were very good. Thanks again for all the B-day wishes and for all the prayers. Harley's grandpa, Peanut is home from the hospital now. Thank God!!!! UPDATE: 5-14-05 I am so glad you stopped by to visit Harley's page. Be sure and sign her guestbook and wish her a happy birthday. She made an appearance at the Mother's Day picnic the family had. I sure wished that I was able to go but I have not been to the family get togethers in a couple of years. Maybe next year, I will be able to go. Or even the 4th of July picnic. The last time I checked on Harley, she was up to 17 lbs. and 15 ounces and the doctors says she is gaining to fast now. So, now she has been cut back on calorie intake. Poor baby, when she does get to putting some pounds on, then she has to be cut back. I bet she wishes she could eat what she wants. They cut back on the fluids that is put in the tube in her stomach. You all know what I am talking about, I am sure. I would really appreciate it if you all would just fill up these guestbooks with birthday wishes for the girls. I know the the moms would love it. I do and I "ain't" the mom. lol Well, better get amd do some more decorating. Love you all and God bless, Angel Jen UPDATE: 5-1-05 Just wanted to take a short break and let everyone know that Harley has decided she is big enough to help her mommy mop the kitchen floor. The only thing is she has not learned yet is that you don't mop Sam, the cat's food bowl. BUT, she is a big girl wanting to help her mommy clean house. She is finally up and walking and with the tube out of her nose, I am sure she is much happier. It is directly in her stomach now, but was in her nose for around 20 months. Little Harley and her little friend, Barrett, both will be 2 years old in the next few weeks. Harley is 10 days older than Barrett. May 15th for Harley and May 25th for Barrett. Both are Vanderbilt Children Hospital kids. Barrett's cousin works with my sister and this is how I met Barrett. Harley's mom has seen Barrett at the doctor's visits before. She is a little doll. Already had her chemo treatment and bone marrrow transplant. Harley is still not heavy enough. She is just a little over 17 lbs. Anyone that would like to wish Harley and/or Barrett birthday wishes may do so by using my post office box address and I will see that both girls gets it. Angel Jen P O Box 623 Burns, TN 37029 Barrett does not have any siblings. Harley has a brother, Dalton, will be age 8 in a couple of months. Harley also has a half brother, Ryan but he lives with his mom. Ryan is probably close to 14 years old. Not real sure of his age. UPDATE: 4-15-05 She is beginning to eat a little. I was told that she likes bacon. She also has been caught sneaking her brother, Dalton's spoon from his bowl of soup and licking the soup off the spoon. So she must like chicken noodle soup. I wonder if it was Campbell's? She is a little over 17 lbs and still needing to gain. The doctors has not started chemo on her yet, due to the fact that she does not have enough weight on her. Hopefully, a miracle will be done and God will heal her without chemo or bone marrow transplant. This is what I am praying for. Her grand-dad, Peanut is in the hospital in ICU, so that is a concern of the family. He is having trouble with breathing and his lungs. They are slowly taking him off the machine that breaths for him. Would like for everyone to pray for him. There was a chicken benefit supper on April 3rd for Harley's medical expenses. I was again unable to go, but I am sure if it was like the last one they had, everyone said the food was really good. I miss not being able to go out to these places but I just am unable to go. I only go out when I have to go to the doctor. I would like (if possible) let everyone (especially the little ones) know about the page that angel jen did for them and it has been updated. It is a fun page for all the kids. I will be changing and adding all the time, so visit often. Be sure and check out the photo album, I have done a little something special for you all. http://www.caringbridge.org/tn/happymail . God bless Children of the Promise and all the organizations and groups that loves the kids and making their lives special. Sunshine with love, Angel Jen (Harley's Aunt Jennie) ADDED: 4-06-05 Harley's dad, Preston, (age 39) was killed on October 27, 2002 in a tragic tree accident only a few weeks after they found out that Harley was on the way. Preston was a tree surgeon. Harley has two brothers, Ryan & Dalton. Please keep them all in your prayers. I would like to thank everyone that has taken the time to pray for healing for little Harley & ask that you also pray for all the many other sick children & adults. Baby Harley % Angel Jen P O Box 623 Burns, TN 37029 She lives with her mom & Dalton (6 years ) Her older brother, Ryan (12 years ? ) lives with his mom. Condition=JUVENILE MONOMYELOCYTIC LEUKEMIA (dad was killed 7 months before she was born) Comments=I have everything sent to my P O Box & get it to my niece for mom.