Translate This Page To: Spanish German French Italian Portuguese Norwegian Brought to you From FreeTranslation.com Page 1 Page 2 Page3 Page4 Page 5 Page 6 Page 7 UPDATE: 9-29-09 Lyndsay is turned 9 years old in July. She has been doing really well up until this past week. She started with a cough a week ago which looked like it was getting better until early yesterday am. Her cough got worse and she started running a temp up to 103. I took her to the ER as she was diagnosed with right upper lobe pneumonia and a UTI. Her chest xray showed that the right middle lobe had collapsed likely due to mucus. Her white blood cell count was 16,000 (normal up to 10,500). They were debating about admitting her to the hospital, but since I have oxygen and can do breathing treatments at home they gave her a shot of Rocephin antibiotic and another antibiotic by mouth and we came home. She seems to be doing better his am and I will give her another Rocephin injection this am. Please pray for Lyndsay's continued recovery and that the infections will go away. Here are some recent pictures of Lyndsay. One is Lyndsay with a friend on Lyndsay's birthday and the other is Lyndsay with Mary, her wonderful nurse. Thanks, Lynne UPDATE: 1-07-09 Lyndsay is 8 years old and growing. She is wearing size 8 now and getting taller. She enjoys going to school and has not been hospitalized for several years which is a blessing. She is walking around the house and school in a gait trainer and now is participating in P.E. at school in her gait trainer. She is mainstreamed into a first grade class for music, PE, and calendar math. Her biggest change is in her eating pureed school lunch by mouth and enjoying all the new food choices. Lyndsay broke her arm this summer after she fell off Drew's bed, but this healed well. This happened on her birthday the day before we were flying to Denver, CO for the annual SOFT conference. We thank God for taking care of us as we traveled with her by plane for the first time. UPDATE: 2-20-08 Lyndsay is doing well at 7 ½ years old. She weighs 41 lbs. and is getting quite long. She is now taking steps and walking around our house in her gate trainer. The other day when I came into the house after being at work she walked right up to me in her gait trainer to get a kiss. Lyndsay is also doing well at school. She is the most advanced in her special needs class and is being mainstreamed into a kindergarten class—Mrs. Wilde's class, for music and library. The children in this class love Lyndsay and they have a sign up sheet for which child gets to stand by Lyndsay in her wheelchair and hold her hand when she is in their class. Lyndsay's scoliosis curve seems to have gotten worse and she recently got a new scoliosis jacket to help with this. Please pray for her back curve not to progress even get better, so that we will not have to consider surgery. Attached are pictures of Lyndsay in her gait trainer and her school picture. Lynne UPDATE: 5-28-07 Lyndsay is doing well. She has gotten a new stander which only supports her starting at her pelvis and she supports herself in her trunk and head. She is really getting stronger. She has gotten quite long and has been more verbal in the last few months. As you can see by the pictures she enjoyed reaching in her Easter basket for chocolate eggs and riding the pony. Healthwise, our main issues are her scoliosis and seizures. We have had to increase her seizure medicine as she had another seizure in April one night which caused her oxygen saturation to drop down to 60%. She recovered after stimulation and putting oxygen on her, but it can be scary. Lyndsay is still wearing her scoliosis brace in the daytime and we pray that her spine will get stronger and that the curve will improve so we will not have to be faced with doing anything surgical for correction. Lyndsay is eating her food well by mouth and enjoying more big girl food—like birthday cake and cotton candy at the party where she rode the pony. Thanks for your prayers and support. Love, Lynne UPDATE: 1-18-07 Lyndsay was hospitalized early Tuesday morning after having a third apnea event over the last 3 months. They ran an EEG (brain wave study) on her which showed some seizure activity. She has been placed on seizure medicine now. We think that seizures could be a cause of the apnea but time will tell depending on if the apnea episodes stop now that she is on the seizure medicine. Children with Trisomy 18 are prone to seizures, but Lyndsay had not had a problem with them to date. She came home from the hospital Tuesday night and went back to school this morning. We saw her eye surgeon yesterday in follow up from her eye surgery in June and he is pleased and states she is seeing binocular. Each eye when looking laterally (out) does float up a little, but only in that position. He plans on seeing her in 4 months and will do a dilated eye exam then to see if she needs glasses. We also saw her spine doctor yesterday to follow up her scoliosis since getting a new scoliosis vest in September. Her curvature of the spine in the new vest is only 39 percent which is an improvement as out of the vest over the summer her curvature was 62 percent. He plans on seeing her back in 6 months and at this time no surgery is needed to correct her spine. Praise God! The neurologist who came in and saw Lyndsay in the hospital was awed by how awesome Lyndsay does with her condition. He stated that most of these children have a tracheostomy to breathe and he could not believe how well she ate by mouth using a spoon. He also was amazed at how happy and interactive she was as he has had contact with other Trisomy 18 children who weren't like Lyndsay. He was very complimentary to us as to how well we have done with Lyndsay. All praise goes to God for the many answered prayers. Lyndsay was able to free stand with her AFO's (ankle braces) 2 weeks ago for up to 30 minutes which is a record for her. She is also showing preferences for switch toys at school and hits the one she likes even when placement in front of her is switched. She is really progressing in strength with her hands being able to pull off socks on her hand in no time once they are put on. Please pray that these apnea episodes will stop and that her back will get stronger as not to cause worsening of the curvature. Love, Lynne UPDATE: 10-26-06 Lyndsay is in need of some extra prayers. She became sick on Monday and had a CXR and saw the pulmonary doctor yesterday who agreed that she had pneumonia. She is pretty miserable. We have had two rough nights and she is on oxygen as her oxygen level had been dropping down to 85% when on room air. She is coughing quite a bit and running a temperature. We started her on antibiotics last night. Please pray that this antibiotic will take care of the bacteria present and that her body will heal from this infection. Lyndsay has been doing well @ school. It is hard to believe she is already 6 years old. She is going to school all day until 3 PM, which she loves. She has started to take some steps with one leg when the other is out in front of her! She is a happy child as you can see in her new school picture. Thanks again for your prayers and concern. Lynne UPDATE: 7-26-06 We have just returned from the annual SOFT (Support Organization for Trisomy 18, 13 and related disorders) Conference in Chicago. This was our first conference and very informative. We met quite a few families with children who have chromosome disorders such as Lyndsay and were able to share our stories and gain insights. There were clinics one afternoon at Advocate Hope Children's Hospital which we were able to sign up for. We attended Speech, PT/OT, Nutrition and Orthopedics and received helpful information and tools at each clinic. One evening we lined up all the Trisomy 18 children who were born in 2000. This totaled seven girls which was just amazing to see that many together in one place. Lyndsay had her 6th birthday on July 20th. Here are some pictures from her birthday party. Lyndsay was one of the best oral eaters among her Trisomy 18 peers. We were able to witness some Trisomy 18 children who were walking and using walkers. This was exciting and we watched Lyndsay move her legs to walk in PT clinic when knee immobilizers were placed on her legs and a pivot/shift position was held at her pelvis. We hope to get Lyndsay in a walker apparatus soon. Thanks for all your continued prayers and support. Love, Lynne If you would like to add a page for your child, click on "Add A Child" below. Please be aware that once a child's page is added to this website the information becomes public. 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