Translate This Page To: Spanish German French Italian Portuguese Norwegian Brought to you From FreeTranslation.com Page 1 Page 2 Page3 Page4 Page 5 Page 6 Page 7 Lyndsay was born in July with trisomy 18 and is planning heart surgery at U.Va. to repair a VSD and perhaps a PDA this Friday. She weighs about 4 lbs. We covet your prayers and support. God Bless, UPDATE: THURSDAY, 8-17 Lyndsay's surgery has been postponed until Monday morning because her sodium level was extremely low. The surgery is to take place first thing Monday morning. I will go up on Sunday night to be with Lynne and Lyndsay during the surgery. Thanks Buster UPDATE: 8-22 THANK YOU JESUS! Lyndsay did very well with her heart surgery on Monday morning! They repaired the VSD and PDA, and while they were probing around, they discovered a small ASD and repaired that as well. Lyndsay also did well last night, better than the physicians expected. They said usually infants seem to go into a crises 6 to 8 hours after being taken off the heart and lung machine. Lyndsay had no complications. Her color is now normal pink. And her stats are all normal. She has some swell and had put on 800 grams of fluid directly from her surgery ordeal. They were to start lasics today and begin to take the fluid off slowly. Once that is accomplished, they will begin to wean her off the vent. Already they are taking some vent support off, due to her being over ventilated, i.e., her O2 and pH is too high. But that is a good thing, We were having too much CO2 and a low pH. They are reluctant to give a goal time of weaning her off the vent, but other infants without trisomy complications usually take three to five days. Thank you for all of your prayers. From what I can tell, Lyndsay surgery, outcome and recovery so far has surpassed ours and the doctors expectations-- short of a miracle. This surgery was the biggest of serveral procedures needed for Lyndsay's journey home. Please continue to remember us in your prayers. To God be the Glory, Buster and Lynne UPDATE: 8-25 I just finished talking to Lynne in re to Lyndsay. She is doing great!. They will take one of the two IV lines out today and begin weaning her off the vent tomorrow. Lyndsay's kindney output is great and her fever us under control. The doctor want her bowels to work a little faster, but overall are very pleased with Lyndsay's progress. Please continue praying for Lyndsay, especially regarding her weaning off the vent. This is a critical milestone in her recovery. UPDATE: 8-27 Hi everyone, The doctors extibated Lyndsay today, but she was unable to stay off. Her C02 went very high and she had to work very hard to breathe, The doctors believe she may take some time to build up more muscle mass in order to expand her lung well enough to breathe. They will attempt a slower weaning off the vent and try again to extibate her on Wednesday. Lynne seems to be doing fairly well, but I could tell she is getting very tired and her emotions are fraying somewhat. Please keep them both in your prayers, as well as, the Drew and Jordan. They miss their mother. They haven't seen her for nearly 12 days. God Bless you all and thank you for your Support. Buster UPDATE: 8-28 Hi everyone, Lyndsay is going to transfer back to Kings' Daughter tomorrow morning about 9 a.m. We have decided that since she will need to weaned slowly, she might as well be close to home. We may go ahead and have her lip repair now, since she will need to be intibated for that surgery too. Lynne seems to be in good spirits and relieved to be coming home, too. Please pray for traveling safety for both Lynne and Lyndsay. Thank you. Buster UPDATE: 8-30 Lyndsay arrived back at Kings' Daughters Hospital today without incident. When Lynne saw her today, she was alert and looking well. The doctor's seemly have a better attitude toward her care now at KD. We have given the plastic surgeon the go ahead to schedule and do the lip repair. We hope it can be done by this Friday. We decided that since she is still on the vent, and she will need to be on the vent for surgery, we might as well make use of this time. Her heart is functioning very well. Her stats are normal with minimum support. The lip repair surgery will only take about one hour. The next hurtle will be the weaning her off the vent. They longer she stays on the vent, the harder it will be for her to come off it. So, please direct your prayers toward the weaning post lip repair surgery. Again, thanks. Buster UPDATE: 9-4 I am back home from University of Virginia Hospital and Lyndsay is back at Children's Hospital of the King's Daughters. She traveled safetly by transport which was another answer to prayer. Lyndsay is scheduled for repair of her cleft lip on Wednesday. She is weaning well on the ventilator and hope to have her off of the ventilator this week. She developed another infection or apparently did not clear the sepsis she developed at UVa as she was only treated with seven days of antibiotics. She's back on antibiotics and seems to be responding to them. We covet continued prayers for Lyndsay especially with her lip repair and getting off the ventilator so we can have her home with us soon. In Christ, Lynne UPDATE: 9-5 Yesterday Lyndsay was extibated and it doing really well. It was touch and go for the first couple of hours, but now she is holding her own. Tomorrow she is scheduled to have her lip repair. She has no fever now, although they are still giving her antibiotics from the fever and infection she acquired last week. Everything seems to be going as scheduled. They will have to intibated her for the surgery, but the whole procedure should not go beyond two hours. She should be extibated soon afterwards. Our hope is that she will be home next week. Following the surgery, we want to do a swallowing study on her to ensure she can swallow normally. Typically, trisomy 18 babies do have that problem, i.e., a week suck and swallow. In your prayers, please include tomorrow surgery, we do not know the time yet. Again, thank you for your interest and support. Buster, Lynne, Drew, Jordan, and especially Lyndsay. UPDATE: 9-5 Here is the latest picture of Lyndsay taken earlier today. Her surgery is at 9:45 am tomorrow. Thanks again for you support. Buster UPDATE: 9-6 Lyndsay's cleft lip surgery was postponed this morning due to her sodium level being too low and her heart rate being too fast due to being dehydrated from too much diuretics. After giving her some IV fluids and replacing some of her sodium she looked better and her surgery is tentatively scheduled now for Monday. She still is breathing a little fast and has some chronic lung issues after being on the ventilator for nearly 6 weeks total but hopefully after starting some steroids today this will help along with just being off the ventilator. Continue to pray for Lyndsay to gain weight and strengthen her lungs. After much discussion with the doctors today they are not giving her anymore diuretics as the cardiologist feels after her cardiac surgery she should not have anymore fluid build up on her lungs as before. We'll keep ya'll posted on any changes as each day seems to hold changes in our game plan but I know that God's in control of the timeline and knows what's best. Love in Christ, Lynne UPDATE: 9-7 Hi Folks, It seems like every step forward is followed by a step backwards, so far. Lyndsay had to be reintibated again early this morning. Her PCO2 went up to 80% and her pH went down to 7.15. She also lost 200 grams, 10% of her body weight yesterday from what we believe to be her effort of breathing burning all her calories. We will leave her on the vent now until after the surgery, perhaps longer so that she can gain some weight. Of course, this may all change at anytime. But for now this is the game plan. Tomorrow, the nurses have arranged a family meeting with all the doctors involved in Lyndsay's care and ourselves to discuss Lindsay's care. Please pray for this meeting so we will have wisdom and knowledge to make the best decisions for Lyndsay. Again, we cannot tell you how much we appreciate your support and prayer. Buster UPDATE: 9-11 Lindsay's lip surgery has been postponed until this Wednesday. The surgeon wanted her off antibiotics for a couple of days and be without any temp prior to surgery. Today was her last dose of meds. The good news is Lyndsay weighs 5 lb. 4.5 oz. That is a full pound over her birthweight and she has grown an inch since birth. Lyndsay will stay on the vent for now. She has been using all her calories on breathing; the vent will allow her to conserve her strength. Some of the weight she has put on is fluid buildup, but not all. Please prayer for her surgery on Wednesday. Her doctors also need our prayers. They need to work out her medicines i.e., the diuretics, so she will stop going to extremes of heart failure and dehydration. We thank you for your support and continued prayers< Buster UPDATE: 9-13 Lyndsay's cleft lip repair is scheduled for 2:45p.m. tomorrow (9-13-00). Please pray for her strength, the doctor performing the surgery and her speedy recovery. The neonatologist plans on leaving Lyndsay on the ventilator about a week after surgery to allow the lip to heal and for her to gain more strength and weight. Pray that she'll come off the ventilator and stay off of it successfully in order to be able to come home soon. 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