Translate This Page To: Spanish German French Italian Portuguese Norwegian Brought to you From FreeTranslation.com Page 1 Page 2 Page3 Page4 Page 5 Page 6 Page 7 After lip surgery. PICTURES 9-27 UPDATE: 10-22 Lyndsay had her video swallow test on Friday and can suck/swallow and did not aspirate. Her suck/swallow is not real strong yet but with time we pray it will improve. I fed her a bottle starting one feed daily Friday night. She took 7 cc's and again last night she took 7cc's. It took 30 minutes to do the 7 cc's. I'll try again tonight and maybe tomorrow they will up her to more than one feed attempt daily. Drew got to help me give her a bath this afternoon and held her for awhile. This really thrilled him especially since he was just with me and could spend more time at Lyndsay's bedside instead of having to trade off with Jordan sharing time. Only 2 people can be at Lyndsay's bedside at a time(that's the rules). Please pray for Lyndsay to strengthen her suck/swallow abilities and coordination so we can get her to full feeds and home soon. Lyndsay is continuing to amaze the doctors and nurse practitioners at the hospital as no other Trisomy 18 baby has come this far in their NICU and as one of the nurse practitioners said they're "on a learning curve." We just praise God and give Him the glory for what has been accomplished in Lyndsay's life at 3 months of age and how she's been able to touch so many lives through her struggles. Love in Christ, Lynne UPDATE: 10-20 Lyndsay is progressing with her tube feedings. She vomited earlier this a.m. but once the nurse replaced her feeding tube with a smaller tube she did not gag any longer. She is now back on breastmilk which she is tolerating better with no residuals. Her liver enzymes are coming down as of the blood work done this a.m.--Praise God! The doctor feels that the liver enzymes were up because she was on IV nutrition for 10 days solid and now that we've started back tube feedings her liver is processing things better and not in "cholestasis." The doctor plans on doing the video swallow test next week after working her tube feedings back up to were they were before her bowel infection. Lyndsay weighed 5lbs. 9.2ozs. tonight and is also off oxygen as of late afternoon which she had been on since over the weekend when she had some fluid buildup on her lungs. Thank you Lord for answered prayer and Lyndsay's continued growth and strength. UPDATE: 10-19 Lyndsay's weight tonight was 5lbs. 8ozs. Praise God! The doctors are working her tube feeds up slowly after her bowel infection which appears to be cleared by xray. Her last day of antibiotics was Friday. On lab work done Monday her liver enzymes were elevated quite high and the nurse practitioner feels this is likely from being on TPN (nutrition through the vein) and once she's at full feeds orally this should resolve. They are also checking her for any viruses she could have gotten through blood transfusions and we pray that whatever the cause that there will be no permanent damage to her liver. Ultrasound pictures of her liver and gallbladder etc. all looked fine. The plan now is to do the video swallow test end of the week or first part of next week to see if Lyndsay will be able to take a bottle. We pray that she will be able which would avoid a G-tube for her to be fed through. Thank you for your continued prayers and support. Love in Christ, Lynne UPDATE: 10-14 Lyndsay had some breathing problems yesterday with fluid build-up again on her lungs; however is doing better today after being given more Lasix, a diuretic. She still remains off the ventilator--Praise God! Her bowel infection has cleared up and the antibiotics were stopped today. They also started back her feeds to the stomach slowly this a.m. We hope to have the video swallow test done next week to be able to know if Lyndsay's suck-swallow ability is there to take a bottle without aspirating. She has a great suck on the pacifier! Please pray for her not to get anymore infections, for her ability to take a bottle successfully and for further healing of her heart. The patch that was sewn over the hole in her heart has a leak around it which causes the fluid build-up on her lungs. Specifically pray for this leak to be closed and that the valve that they did the heart surgery through will not leak blood back into the upper part of her heart. We are anxious to get Lyndsay home which could happen in the next few weeks barring any further setbacks. Love in Christ, Lynne UPDATE: 10-7 Lyndsay is improving as she is being treated for her bowel infection. One of the complications which could occur from this infection is a bowel perforation; however this has not occurred and the surgeons who were following her just in case signed off yesterday as they felt they were not going to be needed. Her bowels x-rays looked improved yesterday. She is receiving nutrition (TPN and lipids) through and IV and is still growing. She weighed 5lbs. 2ozs. yesterday. We praise God for his faithfulness and pray she will continue to heal. The doctors will not start up feeds by mouth until another week and then do it slowly. She continues to be off the ventilator and breathing well even without any oxygen support. Baby dedication is October 29th at our church and we hope to have her home by then as what a testimony it will be to God's awesomeness as witnessed through the power of prayer. UPDATE: 10-5 Lyndsay is having another struggle as of today. She began vomiting in the last few days and today the doctors have diagnosed her with a bowel infection called necrotizing enterocolitis. She has been taken off her feeds to allow her bowels to rest and heal. She will be on IV antibiotics for 10 days and needs to receive her nutrition through the IV. Please pray for complete healing of her bowels and to give the doctors wisdom in treating this problem. We continue to praise God for her being of the ventilator and breathing on her own without the need for any oxygen. Once we are over this latest hurdle we will be able to proceed with testing out her coordination with suck and swallow in order to move closer to getting her home. Continue to keep Buster, Drew, Jordan and myself in your prayers for strength as we go through each struggle in dealing with Lyndsay's health. For me being back at work full-time creates more stress for me in not being able to be with Lyndsay at the hospital like I was able to be before (twice a day) in order to watch over things. But God is faithful and watching over Lyndsay when I can't be there. Love in Christ, Lynne UPDATE: 9-29 Hey Everyone, Here's our girl. She was taken off CPAP last night and is doing just fine. Next week they will start bottle feedings and with your prayers, we should be able to bring her home in a couple of weeks. The nurses have been holding off and on all day today and PT is working on her hands. Thanks for all your prayerful support. Buster UPDATE: 9-27 Lyndsay was taken off the ventilator today. She is on nasal CPAP as a transition for a few days which gives her some positive pressure in expanding her lungs. She is not requiring any extra oxygen and is on room air with good oxygen saturations. Her lip repair is remarkable and the neonatal nurses say they've not seen a repair look so good. I will send an updated picture of Lyndsay tomorrow as her lip/nose repair is near totally repaired. Pray for her continued strength in order to stay off the ventilator and for her continued growth. She is not quite 5 lbs. now that she's been getting Lasix-a diuretic twice a day. Pray that the leak around the patch sewn over the hole in her heart will close so she won't need continued Lasix which causes her sodium level to drop. Another praise is that her Lasix dose was lowered this week as it appeared she did not need as much! Pray for her continued improvement and no setbacks so that we can have her home with us soon. Bottle feeds are the next step in the next few days after she's off CPAP. UDATE: 9-22 Lyndsay is nine weeks old today! Here's a picture of Lyndsay's lip repair after one week. She continues to improve on the vent. Tonight the setting was on 12 breaths per minute. She may be taken off the vent either tomorrow or Saturday. The nurses have witnessed what they thought was seizure activity which was confirmed with an EEG. She has been put on anti-seizure medication. Please pray for her continued improvement in re to staying off the vent and weight gain. We hope to bring her home soon. Our other two children are excited about the prospect of having her home. Lyndsay's Latest Picture (Taken 9-5) Lyndsay was born in July with trisomy 18 and is planning heart surgery at U.Va. to repair a VSD and perhaps a PDA this Friday. She weighs about 4 lbs. We covet your prayers and support. God Bless, UPDATE: THURSDAY 9-14 Lyndsay came through her cleft lip repair surgery well. The plastic surgeon did a beautiful job and the nurses were amazed at how good the repair looked. Praise God for He is faithful! Continue to pray now for Lyndsay's strength and weight gain in order for her to come off the ventilator. Please pray that God will heal the leak which is around the patch sewn over the ventricular septal defect so that there will not be fluid build up in her lungs and the need for diuretics. Love in Christ, Lynne If you would like to add a page for your child, click on "Add A Child" below. Please be aware that once a child's page is added to this website the information becomes public. Please keep this in mind when posting information. It is recommended that you DO NOT post your full names or addresses unless using a post office box. We can not be responsible for who views these pages as they are open to the general public. We suggest a password protected page for optimum privacy. Need information? Contact: Elizabeth Ricard, President Children of the Promise, Inc. 405 Shady Pine Lane Newcomb, TN 37819 866-565-KIDS president@childrenofpromise.net JOIN FOR DAILY UPDATES Please join thousands of prayer warriors around the world as we pray for our children. 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