Children of Promise ~ Lyndsay






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Lyndsay




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Today's Picture. 10-23

UPDATE: 12-1

Lyndsay has been home nearly a month. She is up to 6lbs. now. She has had to be on oxygen since this past weekend due to a respiratory infection. This infection has slowed down working on her feeds as her stamina to take the bottle has been less. Please pray for her healing in recovering from this infection and to get off oxygen soon. Also pray for continued improvement in her feedings as our alternative is to proceed with a gastrostomy tube into her stomach if she's unable to take her full feeds by mouth. God has worked many miracles in her life and we pray for her continued well being and improvement in these areas. The physical therapist is amazed by her good muscle tone and says she's almost able to roll over and is lifting her head to change positions when on her stomach.

Love in Christ,
Lynne

UPDATE: 11-17

Lyndsay went to her cardiologist today. He could not hear her heart murmur and the echocardiogram showed that the leaks around the patch sewn over the hole between her ventricles had become small and were before moderate. There was no significant pressure differences between the ventricles as before and the tricuspid valve had less backflow of blood into the atrium as seen before. God's still performing miracles in Lyndsay's life and healing her heart. The cardiologist said we could increase her fluids to normal amounts as they have been restricted before now and this should help her to grow more. Continue to pray for Lyndsay to take more from her bottle. She took 20cc's from Buster two different feeds in the last two days. Praise God! We covet your continued prayers. Love in Christ,

Lynne

UPDATE: 11-14

Lyndsay is now up to 5lbs. 12ozs. as of yesterday. She is doing great at home and loving the security of her family and home surroundings. She has not had any breathing problems since being at home and her breathing is unlabored. We've only had to use oxygen briefly twice when she got mad from a soiled diaper which she does not like at all. We continue to work with her in regards to her feeds. She is taking between 10-18cc's by mouth each feed and needs to work up to 50cc's each feed in order to have the NG tube removed. Please pray for her continued improvement in taking her bottle and growth. She has a cardiology appointment on Friday to further evaluate her heart and the leak around the patch which was placed to cover the VSD (ventricular septal defect). The pediatrician last week said she could barely hear her heart murmur and we continue to pray for total healing of her heart so she won't have to continue on Lasix (a diuretic) and potassium.

Her dedication was Sunday at church and Buster and I both gave testimony to what God has done through Lyndsay. God gave me the scripture Psalm 105:1-8 as I read my Bible the night she came home 11-3-00. What a truth this scripture holds in Lyndsay's life!

Love in Christ,
Lynne

UPDATE: 11-3

Lyndsay is home! Praise the Lord for his rich blessings and his faithfulness through answered prayer. It's been a busy day with home health, equipment company, and early intervention program coordinators coming to see Lyndsay and get her care set-up. She's been sleeping alot today and seems to enjoy her new environment away from the hospital and home with her family. Jordan(our 3 1/2 year old) has been by Lyndsay's side most of the day just loving on her and wanting to show her toys. Please pray for Lyndsay's continued strength in taking her bottle feeds and growth. Pray that her lungs will stay clear of fluid. Her baby dedication is planned for Nov.12th at church--what a glorious day that will be! We pray for strength in dealing with a child with special needs and to enjoy each day that God gives us with her a day at a time. Love in Christ,

UPDATE: 11-1

Lyndsay is scheduled at this point to come home on Friday. Buster and I will room-in Thursday night with her at the hospital. We will provide all her care to include feeds, meds, etc. from 8p.m. to 8a.m. Buster learned how to put the NG tube in today and did well. He also took a CPR class and discharge class. Tomorrow we take the car seat in to be checked out and learn how to operate the home equipment. We will have oxygen available at home if she needs it, an oxygen saturation monitor, and kangaroo pump to deliver her feeds through her NG tube that she doesn't take by the bottle. Her hearing test revealed that she can hear but there are some deficits and it will be rechecked in 3 mo. Pray for her lungs to stay clear of fluid, more stamina with her feeds with the bottle so we can get rid of the NG tube, full restoration of her hearing, and healing of her heart where there is a leak around the patch. Thank you for your continued prayers, Emails, and concerns. God continues to work miracles as is evidenced by Lyndsay coming this far and what a blessing she has been already in the lives of so many. Last night and tonight I bathed her in the basin and she loved sitting her little bottom in the water and having the warm water poured on her--it was really cute! I'm sure it will be an adjustment for her at home with Drew and Jordan around to entertain her.

Love in Christ,
Lynne

UPDATE: 10-28

Lyndsay is scheduled to come home mid to late next week. She is still trying to progress with her bottle feeds. We will bring her home with a NG(nasogastric) tube in order to give her nutrition directly as she has not yet worked up to taking the full amount needed to keep her growing. I wanted to give her more time to work on taking the bottle and not rush into a gastrostomy tube to help feed her. Plus I was not at peace about another surgery for her at this time and pray that she will able to get the suck/swallow coordination and stamina worked out on her own with time. She has been taking 7 to 15 cc's for me at any given feed and needs to work up to 50 cc's per feed that's about an ounce and a half. Please pray for Lyndsay in regards to her being able to feed solely with the bottle and for our coming home without any setbacks. Also pray for her hearing as she failed the initial hearing screen and will be formerly tested next week by the audiologist with a more sensitive hearing test. God has brought her this far and we just praise Him for his faithfulness as prays are continually raised up for her.

Love in Christ,
Lynne

UPDATE: 10-22

Lyndsay had her video swallow test on Friday and can suck/swallow and did not aspirate. Her suck/swallow is not real strong yet but with time we pray it will improve. I fed her a bottle starting one feed daily Friday night. She took 7 cc's and again last night she took 7cc's. It took 30 minutes to do the 7 cc's. I'll try again tonight and maybe tomorrow they will up her to more than one feed attempt daily. Drew got to help me give her a bath this afternoon and held her for awhile. This really thrilled him especially since he was just with me and could spend more time at Lyndsay's bedside instead of having to trade off with Jordan sharing time. Only 2 people can be at Lyndsay's bedside at a time(that's the rules). Please pray for Lyndsay to strengthen her suck/swallow abilities and coordination so we can get her to full feeds and home soon. Lyndsay is continuing to amaze the doctors and nurse practitioners at the hospital as no other Trisomy 18 baby has come this far in their NICU and as one of the nurse practitioners said they're "on a learning curve." We just praise God and give Him the glory for what has been accomplished in Lyndsay's life at 3 months of age and how she's been able to touch so many lives through her struggles.

Love in Christ,
Lynne





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