Translate This Page To: Spanish German French Italian Portuguese Norwegian Brought to you From FreeTranslation.com Page 1 Page 2 Page3 Page4 Page 5 Page 6 Page 7 UPDATE: 2-9 Hello Everyone, Lyndsay came home yesterday from the hosptial. The surgery to correct her reflux and insert a G tube was successful. Lyndsay did have to stay a few days longer because she was running a fever. They were not able to find the source of the infection, but on Tuesday evening her fever broke and she was able to come home on antibiotics Wednesday evening. She has been a little cranky, but the surgeon stated that was normal and should resolve in a couple of weeks. Lyndsay in taking full amount of her formula but we are slowing adding calories. She went today to the pediatrician for her cinogin, the anti viral drug. She weighed in at 7 lb. 6 oz. We appreciate your prayers. We believe they have made the difference in Lyndsay's outcome. We are hoping that Lyndsay will be able to wean off oxygen now especially since she will no longer reflux and asperate food into her lungs. Again, thank you for your prayerful support. Buster, Lynne, Drew, Jordan, and Lyndsay UPDATE: 2-2 Lyndsay had surgery today to place the g-tube and do the stomach wrap around the esophogus. She had a bad night last night, but was able to do good today through the surgery. The anathesiologist was a bit leery in re to extibating her after surgery due to her lung problems, but she was able to get off the vent easily and was admitted to a telemetry bed. We expect she will stay in the hospital until sometime Sunday unless she has some complications. Lynne is spending the night in the hospital tonight to keep an eye on things. Lyndsay did have some pain after she came out of anathesa and required some morphine to settle her down. The doc were reluctant to give her morphine because it may complicate her breathing. But she did fine and was able to doze off for a while. We want to thank you for all your support and prayers. This has been a difficult time for the whole family. Our hopes is this will be the last surgery for Lyndsay and will make the difference in order her to come off oxygen and have an improved quality of life. Again thanks and please continue praying. Your joint heir in Christ, Buster UPDATE: 1-29 Please cover Lyndsay in prayer as she will be having surgery on Thursday, 2-1-01 at 8:30a.m. She will be have reflux surgery (Nissen Fundiplication) and a feeding tube placed. The surgery is planned for 1 1/2 hours and she will be hospitalized 3 to 4 days if everything runs smoothly. Lyndsay weighed 7 1/2 lbs today. She loves being held and is content most of the time. We praise God for her life and know He has brought her through thus far for a special purpose. Love in Christ, Lynne UPDATE: 1-25 Lyndsay weighed 7lbs. 4ozs. yesterday and is now 20 inches long. She smiled yesterday spontaneously several times and not just in her sleep. Praise the Lord! She saw the genetics doctor who thought she looked really good. She is scheduled to see the surgeon who will do her Nissen and G-tube placement on Monday. He is a very compassionate man and has been at CHKD (Children's Hospital of the King's Daughters) for awhile. He had words with the first surgeon we saw and told him that he was totally inappropriate in what he said to me regarding Lyndsay. Lyndsay will probably be scheduled for surgery in the next 2 weeks and will likely be hospitalized for 5 days. Please begin praying for a successful and smooth surgery without any complications for Lyndsay. Hopefully this will be the last surgery for her for a long time. God is great and has brought her through thus far and continues to touch her life providing her strength and endurance. Also pray for continued resolution of the small amount of fluid still around her heart and that her lungs will continue to heal so that she can come off oxygen (she's only on 1/4th of a liter). UPDATE: 1-17 Lyndsay had several doctors visits today. Her repeat hearing test was improved in the right ear and only showing mild sensory loss compared to moderate loss 3 months ago. The left ear showed still moderate loss. Praise God that she is hearing and it is improving! The pulmonary doctor seems to be very in tune to the needs on special needs children and had several recommendations to make in regards to her meds and lungs. He stated that he felt Lyndsay was on too much fluid medicine (diuretics) which could affect her blood gas and air exchange. He is going to call tomorrow after her blood work is back and make the needed changes. The echocardiogram (ultrasound of heart) is still showing some fluid in the lining of her heart. Please pray for this fluid to resolve so no further needles will be put into her chest to draw off the fluid. The surgeon we saw today was not the right surgeon to do Lyndsay's G-tube or reflux surgery. He stated that where he trained they did not do reflux surgery on babies with chromosome problems (like Trisomy 18) as it was "natures way of taking care of its own" by letting the reflux result in aspiration then death basically. He also stated that if "she was a normal child" there would be no question that the surgery would be needed expediently. Needless to say, we have another appointment with a another surgeon in the same group with more experience in managing handicapped children and doing this surgery. It was like night and day in doctors as the pulmonary doctor said that he did not look at children with Lyndsay's diagnosis as Trisomy 18, but as children with breathing and digestive problems and treats them as if any other child with the same problems. Pray for Lyndsay's continued growth, protection on her airway from reflux, and no further infections. We appreciate the concern, caring, and prayers of our family, friends and brothers and sisters in Christ. Father we thank you for your loving concern over us and continued safe keeping of Lyndsay. She'll be 6 months old on Saturday! A blessing to many lives so far as to the miracle of answered prayers. Love in Christ, Lynne UPDATE: 1-12 Lyndsay is now up to 7 lbs. Praise God! We go next week for an appointment with the surgeon to discuss G-tube placement and possibly a Nissen Fundoplication (a surgery to stop the reflux by wrapping the stomach around the lower part of the esophagus). She is getting stronger with her physical therapy and hopefully will be able to get off oxygen once her lungs clear from the aspiration pneumonia. She was placed on antibiotics Monday when she spiked a temp to 102 when she was at the hospital for her reflux study. The pneumonia was still present on her chest xray and she is more relaxed, breathing better and sleeping well at night since being put on this antibiotic. Continue to pray for us as we try to make the right decisions in order to help Lyndsay. Pray for Lyndsay to grow, come through her impending surgery and for her lungs to clear up. We'll update on Wednesday night after her doctor's appointments as to surgery plans etc... Love in Christ, Lynne UPDATE: 1-6 Lyndsay came home last night. She is receiving her feeds which are thickened with cereal by an NG tube. I'm waiting until her lungs are totally cleared up from the aspiration pneumonia until we attempt bottle feeds with thickened formula. She slept well and was content at being home. Monday she will go back to the hospital for an outpatient test to check for reflux called a pH probe. We are still considering a G-tube for her feeds but the pH probe test will tell us if the tube can be just placed into the stomach or needs to be directed towards the small bowel. She has had some difficulty with her bowel with the higher calorie formula and now with rice cereal in it. Pray for her gastrointestinal tract to move normally, continued healing of her lungs and no reflux or aspiration. God continues to answer prayers in Lyndsay's life and we appreciate your concern and dilligence in interceding for Lyndsay as she is truely a miracle child. Love in Christ, Lynne UPDATE: 1-5 Today Lyndsay was moved to a room off of PICU. She has been weaned down to 1/8 of a liter of oxygen and has all IV's out. She has actually gained some weight; she is now 6 lbs. 10 oz. Her respiratory rate has gone down to normal and heart rate is the best its ever has been. They did a swallow study yesterday and determined that she aspirates formula but not extremely thickened formula and baby food. The pediatrician is leaning towards having a G-tube placed but we are not sure about this yet and need prayer to discern what is best. Drew and Jordan got to spend some time with Lyndsay tonight, the first time since Friday morning. They both got to hold her some and were really excited about seeing her. They are anxious about getting her home. Pray for Lyndsay to strengthen her neck muscles, not to aspirate, and lungs to heal in order to come off oxygen. Also pray for no further fluid to build up around her heart along with continued growth. In His Service, Lynne and Buster UPDATE: 12-31 Lyndsay came off the ventilator this afternoon. She is breathing a little fast and has some airway swelling but is responding to breathing treatments with racemic epinephrine. Her oxygen saturations are 98-100% on 1/2 liter of oxygen right now. Praise God for the progress she's made in the past 24 hours through the many prayers being offered up for her strength and healing. Please pray for her respiratory rate to slow down and her airway and lungs to continue to heal. We covet your continued prayers and thank God for the prayer warriors across the country lifting Lyndsay up to our Heavenly Father who is faithful over and over again. Love in Christ, Lynne UPDATE: 12-30 NOON I just heard from Lynne. Lyndsay did very well from the procedure this morning to take off fluid from around her heart. They took off 38cc's. This should help her breathe easier and will quicken her recovery so as to come off the vent. For you whom may not have heard, we had to put Lyndsay back in the hospital yesterday. I took her to the doctors office because she seemed to be in constant pain and had difficult breathing. Her O2 stats remained borderline low to critical regardless of how much O2 we gave her. The doctor decided to hospitalize her and call King's Daughters Hospital to medically transport her to the ER. However, en route, Lyndsay became worst and instead of going the the ER, they immediately intibated her and sent her to the PICU. She was on total vent support and had to be paralyzed to keep her from fighting the vent. During an echocardiogram they discovered fluid around her heart which was pressing against her heart and her trachia. They used a needle this morning to remove the fluid. Some of you were contacted via various prayer chains. I want you to know that your prayers were answered. There were no complications to the procedure and Lyndsay seems to be doing better. They did leave a drainage tube in for now to see if more fluid would collect around the heart. There is a risk of infection, but Lyndsay is already on two different IV antibiotics. Thank you for your prayers and I know you will continue to pray for her health. ALso remember Lynne in your prayers. She has not been getting much rest for the last week or so due to the baby's illness and job related stressors. Again, I thank you for your support and prayers. They have made all the difference in the world Yours in Christ, Buster UPDATE: 12-30 Cheryl just talked to Lynn about Lyndsay. They are getting ready to take her into surgery to remove fluid build-up around her heart. They will be inserting a needle through her chest cavity. Lynn (who is a doctor herself) said this is a risky procedure. They think this may have been pushing into her airway and compromising her breathing, on top of the aspirating of formula. After they have removed the fluid, they will be checking it for infection. PLEASE PLEASE PRAY a hedge of protection around her and that the doctor's hands will be guided by the Head Physician. Lord, we bring Lyndsay before You and ask for Your loving protection and care over her, and that Your glory will be manifest in her body, in Jesus Precious Name. Thank You Father. Amen Thank you ALL for your prayers! Love In Christ, Julie UPDATE: 12-29 PM Dear Friends, I just got word from Cheryl about Lyndsay. She has been admitted to the hospital and put on a respirator at 60% oxygen. Cheryl said that they have sedated her and she is resting comfortably right now. She is still having tests done to establish her course of treatment, and hopefully they will know more by tomorrow. She did get the results back from a spinal tap, which came out clear. Cheryl has asked that we PLEASE PRAY for strength for Lyndsay's entire body, especially her lungs, heart, and respiratory system. She needs God's touch. PLEASE PRAY for wisdom for the doctor's in her diagnosis and treatment, and PLEASE PRAY for Lynn... Lyndsay's mom, as she has a cold and is not feeling well either. We appreciate your prayers so much, and KNOW it makes such a difference. Thank you for being a part of her LIFE! Thank you Heavenly Father. God Bless. Love In Christ, Julie UPDATE: 12-29 Lyndsay was diagnosed with RSV a couple of weeks ago and has been on oxygen ever since. They just took her by ambulance to King's Daughter's Hospital. She is aspirating on fluid, and her stats dropped dramatically. She is in trouble right now and needs immediate prayer. She only weighs around 6 lbs. and needs the strength of God to pull her through this. PLEASE join with us in prayer for her. Thank You Lord that You hear our petitions for help. Love In Christ, Julie UPDATE: 12-23 I had the blessing of visiting with Lyndsay and her family this week. She is just beautiful as you can see for yourself above. I took pictures of Lyndsay and the family and will be posting a picture album for her soon. Please continue to pray for this angel and watch as God responds with His miracles. She is on oxygen and they would like to ween her off in the coming week so please pray for wholeness of her lungs and strengthening and growth. I believe God will complete His work in this most precious child. God bless you. Elizabeth UPDATE: 12-18 Lyndsay weighed 6lbs. 4ozs. last week. She is now taking her full bottle by mouth 40-50cc's and we are only using her NG tube as a crutch for medications. We hope to be able to pull the NG tube in the next week after we work out her medications by mouth. She is still on some oxygen after having a respiratory virus a couple of weeks ago and on antibiotics for an ear infection since last Wednesday. Please pray for Lyndsay to come off her oxygen as she did not need it when she came home and it is irritating her to have the nasal cannula in her nose. We have been able to stop her 2 reflux medications in the last few days after changing her formula to Isomil (a soy formula) which she is tolerating well with no vomiting. Praise God for her continued progress despite the small setbacks. We covet your continued prayers for her to grow and come off oxygen. 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