Translate This Page To: Spanish German French Italian Portuguese Norwegian Brought to you From FreeTranslation.com Page 1 Page 2 Page3 Page4 Page 5 Page 6 Page 7 NEW PICTURES!!! 11-01-02 UPDATE: 1-13-03 Lyndsay is doing well. She will be 2 1/2 years old on January 20th. She is getting stronger--pulling her trunk forward to sit up and able to sit for a few seconds with support using her hands on the floor. Her favorite foods are pears/rice and macaroni and cheese in baby food. She will go to her pediatrician on Wednesday for a check-up. She has her yearly cardiology appointment Wed., January 22nd. She's been going to her ophthalmologist frequently and he feels the eye patching alternating eyes is helping to strengthen her right eye which he felt initially in December that she had stopped using. She definitely was tracking with both eyes at our last visit this past Wednesday. She is still requiring oxygen when she sleeps and pray that her lungs will continue to get stronger so that we can do away with the oxygen. At the upcoming cardiology appointment we pray that the trivial leaks around the patch in her heart will be gone when they do her echocardiogram. Lyndsay is such a sweet baby and happy. She's so easy and smiles spontaneously to play with her brother and sister. She gets lots of kisses all the time! She self activates many of her toys which are musical with lights. She especially loves her new Care Bear Movie and all three kids watch it with great interest. Thank you for your continued prayer and support, it means so much to us. Love, Lynne UPDATE: 12-05-02 Lyndsay went to see her ophthalmologist and genetics doctors today. Her ophthalmologist is wanting us to patch her dominant left eye over the next 2 weeks in order to make her right eye stronger. She does not track as well with the right eye and if we don't get the right eye working right the brain could shut off vision to this weaker eye. Please pray for healing and strengthening of her right eye and that the patch will not cause her stronger eye to become weaker. The genetics/nutrition doctor was very pleased with her development in the past 6 months. She is developmentally at 10-12 months now and was at 6-8 months development in June. She weighed 21 lbs. and was 29 1/2 inches long today. He stated that she was doing very well in comparison to other children he treats with Trisomy 18 and felt she was very social and expressive with her face. Pray that Lyndsay will stay well over the Winter months and not get any infections. Praise the Lord it's been 1 year since she has been hospitalized. Thank you so much for your consistent prayers and concern for Lyndsay. She is such a blessing in our lives! Love in Christ, Lynne UPDATE: 10-30-02 Lyndsay is doing better with her respiratory infection. She was able to come off oxygen for most of the afternoon which is a first in the last week since she got sick. She saw her Pulmonary and Rehab doctors today. They both felt she was doing well and the Rehab doctor was impressed by her fine motor abilities. She grasped a rattle in both hands and shook it back and forth and also picked up a small ball of paper with both hands and held it. She weighed 20lbs 9ozs. and was 28 3/4inches long. By her growth chart she should reach the 5th percentile of a normal growth chart before her 3rd birthday. She's catching up! We praise God for her continued progress and know your prayers are instrumental in this progress. I will send new pictures tomorrow of Lyndsay with big smiles. Love, Lynne UPDATE: 10-24-02 Lyndsay got a cold over the weekend which has gone into her chest. She sounds like she has an early pneumonia and the lung doctor put her on antibiotics yesterday. She's requiring oxygen up to a 1/2 liter where she did not require any lately prior to this infection. Please pray for total healing for Lyndsay in getting rid on this infection and that she'll be off oxygen again soon. Thanks for your prayers and support they mean so much. Please cover her especially in prayers through the winter months and these have typically been her most difficult ones in keeping well. Love, Lynne UPDATE: 10-14-02 Lyndsay will go to her Pulmonary and Rehab doctors on Wed., October 30th. She hasn't seen a doctor in 3 months, praise God! Will send an update after her appointments. Take care, Lynne UPDATE: 9-20-02 Lyndsay has a urinary tract infection and was started on antibiotics 2 days ago. It was detected before she got a fever and she seems to be improving already. Yesterday she was in her exersaucer and moved her leg to be standing right on her foot and locked her own knee to weight bear and make the seat move up and down. She was also supporting her head by herself in order to be upright and play with the toys on it. She likes to roll the cylinder with the colorful beads in it. Lyndsay seems to be getting stronger in her gross motor skills and we hope to get her stander soon. I measured her over the weekend and she is 29 inches long. She does not go back to her lung or rehab doctor until the end of October. We praise the Lord that she's been able again to come off oxygen in the daytime and lately in the last week even most of the time at night when she's sleeping. Please keep the prayers coming as God is continually working in Lyndsay's life as evidenced by answered prayers. Love, Lynne UPDATE: 8-29-02 Lyndsay is doing well. She was 20lbs. 9ozs. a week and a half ago. She had another hearing test and she improved by 5 decibals in her right ear and stayed the same in her left ear over the past year. She has only mild loss in her right ear and moderate loss in the left ear which is being helped with her hearing aids. We praise God that no decline, but actually a small improvement occurred over the past year in this area. She has not been sick now for 3 weeks as she previously had a sinus infection then. She remains off oxygen when she's awake and goes on an 1/8th liter when she sleeps. In the past 3 days she has been able to sleep up to 1-2 hours without the oxygen which is a definite improvement and we pray for coming off the oxygen again totally soon. She's been eating well by mouth lately and her teeth don't seem to be bothering her as much. We received a bath chair today which will help alot in giving her a bath as we've still been bathing her in a plastic baby bath tub up to now. She loves her bath. Lyndsay smiles alot responsively and lately has been moving her arms like she's boxing when she gets excited. She likes to cross her feet and also rub her feet together. She hangs her right leg out of her bed on the bumper pad when she sleeps and loves to swing her legs in her stroller. She loves going shopping and to church. Continue to pray for her health as in the past 2 years she's had difficulties once November and colder weather comes. Lyndsay is now going to 2 year old choir at church on Wednesday nights and loves the other kids and doing the hand movements with help from Mom. Love in Christ, Lynne UPDATE: 8-02-02 I spoke with Lynne last night. Lynsday has a sinus infection and we would like you to press in for its healing. She had to be put back on a little oxygen due the infection but she is doing well. Thank you for your prayers. Elizabeth UPDATE: 7-29-02 Lyndsay just turned 2 years old last weekend, July 20th. She liked the icing on her cake and smacked her lips. She weighed 20 lbs. 4 1/2 ozs. and was 28 1/4 inches long at her well check last week. She is smiling alot spontaneously and has cut 3 teeth (1 up front, 2 molars on the left). Her fine motor skills are pretty good as she can reach up and play with her toys, play pat-a-cake, touch your face and rub it, and pull on your hair, monitor cords, and oxygen tubing. Debbie our main nurse took her to the mall in the last 2 weeks and she sat up in the mall stroller supporting herself by her arms for an hour and 1/2. She was also pulling on the clothes on the racks --just like a 2 year old. Please pray for her gross motor strength as we are working with her to try to get her to sit up on her own. The stander which she was fitted for should help get her legs stronger and hopefully will come in the next few months. Her hair is getting thicker and she is more interactive since we started her on vitamin therapy. We feel blessed to have Lyndsay in our lives and thank God for His watchful care over her. Thank you all for your love, support and prayers. Love in Christ, Lynne UPDATE: 7-08-02 Lyndsay is doing well. She got fitted last week for a customized wheelchair and stander. Our nurse took her for her fittings and cried talking about how good she looked in the stander and how she liked her new perspective on the world. She just smiled and smiled for the therapists while they took measurements for about 1 1/2 hours. Lyndsay also saw a urologist regarding her 2 kidney infections of late and he has put her on prophylactic antibiotic (Septra) once daily to hopefully prevent further infections. He suspects by a recent ultrasound that she is having some reflux of urine up from the bladder causing her ureters to dilate and plans on seeing her back in nine months and repeating the ultrasound. Lyndsay's new vitamin therapy is working well for her. She has definitely been more interactive to include spontaneously smiling all the time and vocalizing more since starting the vitamins. The vitamins are a special formulation for kids with Trisomy 18 and made by a nutritional company in Maryland. She is still requiring some oxygen when she sleeps. Since her last infections she's been on oxygen again even though we had a six week break from having to use it. Hopefully we will see her off oxygen all together again and ask for your prayers in this area. Lyndsay will be 2 years old on July 20th. Praise the Lord! We feel so blessed to have Lyndsay in our lives and pray for her continued health. Hope you enjoy the enclosed photos. Love, Lynne UPDATE: 6-14-02 Thank you for your prayers as we travel. This morning we visited with Lyndsay. Lyndsay looked great! She has grown so much. July 20, she will be two and weighs almost 20 lbs. She smiled big smiles at me and cooed at me and then she just drifted off to sleep in my arms. I just sat there holding her and watching her for almost an hour. God has done great things in her life and I know He will continue His work until she is whole and complete. I hope to have new pictures for you soon. UPDATE: 6-04-02 Lyndsay is in need of prayer. She has another urinary tract infection and tonight her sats have dropped some as she is sleeping. This usually means the infection is starting to affect her all over. A new antibiotic has been ordered by the pharmacy but they could not get it until morning. I just put her on 1/4 liter of oxygen and she did not like it after being off oxygen for 6 weeks today. The pulmonary doctor wanted to try her off Lasix (diuretic) 1 1/2 weeks ago however after 4 days we had to restart it as her sats started trending down. It appears that she still needs the Lasix for her heart as 2 trivial leaks exist around the patch that was placed to try to close her VSD (hole in heart). Hopefully as she grows bigger these leaks will close and the need for the Lasix will be no longer. Lyndsay is going to see a doctor who does alternative medicine/nutritional therapy on Wednesday and he has experience treating children with chromosome problems. Some parents have really noticed their children strengthened by his treatment and with less infections which we pray for her. Thank you for your continued prayers as God has been faithful in Lyndsay's life. Love in Christ, Lynne UPDATE: 5-10-02 Lyndsay is 18 lbs. now. She has been off oxygen for 2 1/2 weeks which is the longest time off oxygen since Nov. 2000. She is smiling alot spontaneously and responding with baby talk. She can roll across the floor pretty quickly now and is trying to pull her trunk up some and will lift her head up for a short period of time when she is on her stomach. She is cutting more teeth lately and having pain with it. Please pray for the oxygen to stay gone, continued growth and strength, and wellness. She is scheduled to see a rehab doctor on May 16th and her pulmonologist May 22nd. It would be great if she's off oxygen when she goes back to the lung doctor. Thanks for your many prayers and support. Love in Christ, Lynne UPDATE: 1-3-02 Happy New Year Everyone! Yesterday was a great day for the Stockman family. Lyndsay was able to go off her oxygen in the morning and has been off of O2 all day yesterday and today. This is quite a milestone since she hasn't been able to come off O2 for over a year. We are all excited about this and give God the glory for it. Thanks for all of your prayerful support. Buster UPDATE: 12-22 Praise God! Lyndsay came home Thursday afternoon. She is going through some drug withdrawal from the sedatives they gave her while she was on the ventilator. She had a fever yesterday to 102.7 and has a bladder infection and we just got her started on some antibiotics for this. It seems that she always gets a bladder infection after they try to catherize her in the hospital. We are glad to have her home especially her brother and sister. She seems to like the lights on the Christmas tree. Love in Christ, Lynne UPDATE: 12-17 Lyndsay came off the ventilator today successfully. We pray that she will get stronger with each passing day and will be home soon and see the Christmas tree. Drew and Jordan got to visit with her briefly today at the hospital ICU. They were very excited as they had not seen her for nearly 3 weeks. Thank you all for your prayers and words of support. In Christ, Lynne UPDATE: 12-16 Hello Everyone, LynSday is doing much better. She has been on steroids now for two days which has taking some of the swelling out from her throat. There is now a substancial air leak around the vent, which is a good thing. We now believe the reason she failed coming off the vent is because of the swelling in her windpipe. Lynne is spending the night tonight and took off tomorrow so she can be present when they remove the vent. Please pray that she will be able to stay off. If this doesn't work this time we may have to give her a trach. Thanks for you prayerful support. We will time to keep you informed of Lyndsay's progress. Buster UPDATE:12-06 12-06-01 Lyndsay is still in the pediatric intensive care unit. They took her off the ventilator yesterday afternoon late and she had such a grin on her face of relief and smiled at the nurse three times. I held her for the first time in a week for about 2 hours and rocked her to sleep on my shoulder. I left for the change in shift and to get dinner and when I got back she was having respiratory difficulties again. They put her on a bi-pap mask (positive air flow mask) which helped her and she stayed on it through the night even though she kept trying to get it off her face. This morning her chest xray was showing some areas of lung collapse and her saturations were lower with more effort and they reintubated her and she's back on the ventilator. This has been rather distressing after being able to hold her yesterday evening and feeling we were over a big hurdle. Her white blood cell count is better today as it was 28,000 and is 19,000 this morning. She now on 3 antibiotics which after the addition of the third one her count started to come down. Please pray for her getting off the ventilator and her lungs to heal. The doctor felt she needed a few more days on the vent to get stronger before trying again. Also pray for our strength as it is hard not having her at home with us as it seems most of our life has revolved around her and it's strange not having her here to focus our attentions on. Love, Lynne If you would like to add a page for your child, click on "Add A Child" below. 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