Translate This Page To: Spanish German French Italian Portuguese Norwegian Brought to you From FreeTranslation.com Page 1 Page 2 Page3 Page4 Page 5 Page 6 Page 7 UPDATE: 6-16-06 Lyndsay had her muscle eye surgery yesterday. She did well and tolerated the anesthesia fine. She even ate 5 ounces by mouth yesterday afternoon. I can already tell that her eye alignment is better. Her eyes used to cross when she looked up and I did not see that happening after the surgery. Also her eyes track together better side to side. Praise God that all went well! Now for healing of the muscles and the blood to clear up in her eyes over the next 2 weeks. Thanks for the prayers and keep them coming. Love, Lynne UPDATE: 5-29-06 Lyndsay is doing well. She had a real milestone last week at school. She pushed her wheelchair by herself 3 times on her own! Everyone at school was so amazed to see her do this. Lyndsay is scheduled for eye muscle surgery on June 15th at Children's Hospital of the Kings Daughters. This will be an outpatient surgery. Both eyes will be operated on to fix her eye muscle alignment. Her lip revision done in December looks really good and has healed well. Our family will be attending the SOFT (Support Organization for Trisomy) in Chicago this summer. We are excited to be able to interact with other families who have special children like Lyndsay. Here are some pictures of Lyndsay from the April wedding in which she was the flower girl and also her spring school picture. Thanks for the continued prayers for Lyndsay and especially with this upcoming surgery. Love in Christ, Lynne UPDATE: 1-28-06 Lyndsay is healing nicely after her lip revision/gum surgery.  She went to three doctor's appointments Wednesday.  The eye doctor said he thought her musceles eyes were getting stronger and more equal.  We are still to continue alternating eye patches during the week.  The rehab doctor is following her scoliosis and hips with her every 6 months xrays.  Her right leg is 2 cm shorter than her left and we will be getting a lift for her right shoe.  Lyndsay is free standing, holding onto a table with someone behind her for up to 20 minutes now.  The rehab doctor was impressed by this!  Lyndsay also saw an endocrine doctor for her elevated calcium level which has gotten higher over the past few years.  He thinks it could be coming from an underactive thyroid as her thyroid lab values have been a little borderline over the past 2 years.  He had more lab work drawn on Wednesday to decide about putting her on thyroid replacement.  She is really getting longer and is 39 1/2 inches long now.  She weighed 34 1/2 pounds.  She is eating 4-6 ozs. by mouth @ each meal lately,  Lyndsay loves going to school and riding the school bus.  Big news is that Lyndsay will be in her first wedding on April 1st!  She is going to be the flower girl for Chuck and Lora who ultimately met each through Lora caring for Lyndsay as a friend/nurse. Love, Lynne UPDATE: 12-8-05 Lyndsay is really eating good these days.  She is eating 4 to 6 ounces at each meal by mouth with a spoon.  She even enjoyed real food in the form of mash potatoes, sweet potatoes and turkey at Thanksgiving Dinner.  Pray for Lyndsay as she will be having surgery on Monday, Dec. 19th at 1:30 p.m. at Children's Hospital of the Kings Daughters.  She will have outpatient surgery to repair the defect from birth in her upper gum and do some revision on the underside of her lip where her cleft lip was originally repaired.  This area at her gum is not closed so the teeth in this area do not come in correctly.  She has started losing her baby teeth, with a total of 3 gone now from the lower front gum line.  She is enjoying school and staying well.  Please pray for continued good health especially through the winter months. Love, Lynne UPDATE: 10-23-05 I have amazing news to report. Lyndsay has been eating really good over the last week. She is eating stage 3 food with pieces and chucks and just chewing away. She is not even spitting or clamping down. She is eating 4-6 oz. by spoon at every meal. This is truly an answer to long ongoing prayer. Praise God! She seems to really have the eating and swallowing thing down now. She is doing well at school and loves riding the school bus. She is happy all the time and being more vocal. Keep the prayers coming for her to stay healthy through the next viral months. Love in Christ, Lynne UPDATE: 9-28-05 Lyndsay's CT Scan did not show any liver tumors.  Praise God!  There was some nodularity and a fibrous band seen on the upper part of the liver which is called "fibronodular hyperplasia" which is a benign condition.  I spoke to a gastroenterologist friend who said that the AFP or tumor maker for the liver is not significant for liver cancer unless it is over 40 and Lyndsay's was only 9.2.  Continue to pray for Lyndsay as we still have not determined why this is up a little or why her calcium level is elevated.  Thanks for all your continued support and prayers. Lynne UPDATE: 9-25-05 Lyndsay is loving school!  She goes from 9 am to 1 pm Monday through Friday on the school bus in her wheelchair.  She is growing weighing 36 lbs and 37 inches long.  Recent blood tests show Lyndsay to have an elevated calcium level higher than last year and her liver enzymes are mildly elevated.  Her parathyroid level was normal which can cause the calcium level to be up.  Her recent ultrasound showed that her kidneys are okay as childrien with Trisomy 18 are prone to Wilm's tumors of the kidneys and liver cancer.  A blood test for a tumor marker for liver cancer is mildly elevated.  She is scheduled for a CT Scan of the abdomen on Monday at 10 am to see if she has a tumor on her liver.  Please keep this in your prayers as this is of increased concern with the lab results related to the liver being elevated.  I hate to see Lyndsay have to go through this but we will take one day at a time as we have so far.  Attached is Lyndsay's 5 year old picture. Love, Lynne UPDATE: 7-20-05 Lyndsay will be 5 years old tomorrow!!  We all went to the pool tonight after supper and Lyndsay enjoyed being refreshed in the kiddie pool with the hot day we had here in the 90's.  We celebrated her birthday Sunday and attached is a recent picture and 3 pictures from her party.  She is 36 inches long (3 ft tall) and 34 lbs and wearing 4T's.  She recently saw her rehab doctor and she was very pleased with Lyndsay's progress.  Her xrays of her spine showed that the scoliosis curves had improved a little since last xrays done 1 year ago.  Lyndsay's hip xrays are normal now and the last one showed some uncoverering of her right hip joint which is now not present.  She is rolling over and pushing up on her arms to look around and see things.  Her eye doctor who we saw recently felt that her eyes were tracking better also.  She is receiving physical therapy this month in our home as summer school and Lyndsay will start back to school at Florence Bowser Elementary in September--5 days per week from 9am to 1pm.  She really did enjoy the last 3 1/2 weeks of school at the end of the last school year.  We praise God that Lyndsay is staying so healthy even with attending school in May and June.  Thank you for your continued prayers for this little miracle girl. Love in Christ, Lynne  UPDATE: 5-16-05 Lyndsay is doing well at school. She is attentive and has been interactive in group time especially with the musical instruments. She likes to shake the maraca and ring with bells. She has been activating some new switch toys also. She especially enjoys recess time where she gets to swing and wears her sunglasses while she's swinging. Isn't she too cool. Miss Rosa her nurse is going to school with her. She is attending school Monday through Friday, 9am to 1pm. Here are some pictures of her first day of school and riding the school bus for the first time. We praise God she is staying well and pray that she continues in good health. Keep the prayers coming! Love, Lynne UPDATE: 4--29-05 Lyndsay's yearly IEP (Individual Education Plan) was done on Wednesday with her Preschool teacher, PT, OT, and Speech therapists. We discussed her achievements this year which were larger in regards to gross motor. She is pushing off her legs while seated on a stool or chair to come to the standing position with minimal assistance. She also has learned two signs in sign language--hungry and more. It was decided that Lyndsay will start school next Wednesday, May 4th at school instead of the homebound program. She will ride the handicap bus in her wheelchair and her nurse Rosa will go to school with her. School will be from 9am to 1pm. This will give Lyndsay 6 weeks of school Monday through Friday until the end of the school year and then she'll start again in September. Pray for Lyndsay as she journeys this new adventure. Pray for her health to stay strong. Lyndsay always loves going "bye-bye" and she should love this too. Love in Christ, Lynne UPDATE: 3-12-05 We got back from my family practice conference/our vacation with Drew and Jordan yesterday. We went to St. Kitts, West Indies for 5 nights/6 days. It was gorgeous and the temperature was mid 80's all week. Lyndsay stayed with our regular daytime nurse and a good friend who is a Nurse Practitioner at night. We were thankful that Lyndsay continued to improve after her brief hospitalization for viral croup and did not require antibiotics. Thank you all for your continued prayers for Lyndsay. A big accomplishment occurred while we were gone with Lyndsay. She went pee-pee in her little potty 3 times within 5 minutes and on command. We have been working toward this as she wakes up dry many mornings. We praise God for these events occurring in her life even with her disabilities! Love in Christ, Lynne UPDATE: 2-28-05 Please be in prayer for Lyndsay. I had to take her to The Children's Hospital this a.m. by ambulance as she was in respiratory distress. She could not get any air in and they think that she as croup. She thankfully responded to a breathing treatment with racemic epinephrine as she was quite mottled. Her white blood cell count was elevated to 19,000 and they have her on antibiotics just in case to cover a bacterial infection. The pediatrician thinks it is probably viral and that the elevated blood count is due to a stress reaction from her respiratory distress. She will be hospitalized for a few days. Pray for her speedy recovery. In Christ, Lynne UPDATE: 2-24-05 Lyndsay had her yearly cardiology appointment to follow-up her heart surgery. There has always been a trivial leak around to patch which was placed between the ventricles. The echocardiogram showed yesterday that the leak is gone and the heart is completely healed. The cardiologist did not even hear a heart murmur. Praise the Lord! Lyndsay weighed 30 1/2 lbs. and was 35 1/2 inches long. Yesterday the physical therapist showed us Lyndsay's new accomplishment. She is able to get up from the seated position to standing with minimal support and bears weight on her legs/pushes off to get upright with her AFO's (ankle supports) on. This was amazing to see her do. Please pray that she will do better with her eating. She will take 1-4 ounces of food depending on her attitude/food preferences and the rest of the 11 ounces are being tube fed to her. Lyndsay will likely go to school on the schoolbus this September as she is doing so well. Thanks for your continued prayer and support. Love, Lynne UPDATE: 1-18-05 Lyndsay is in need of your prayers. She started with a croupy cough last night and wheezing. Today she has been requiring regular breathing treatments and has a fever tonight up to 101. Her symptoms remind me of RSV ( a winter respiratory viral infection) with her clear runny nose. She feels miserable and her heart rate is up in the 160's because of the temperature and breathing treatments. Please pray that she will get over this infection without being hospitalized and will start feeling better soon. On a more positive note, Lyndsay had her 6 month check-up last week with the rehab doctor. She continues to follow her own curve for height and weight just under the third percentile. The rehab doctor was amazed at her progress in standing with her AFO braces and sitting for longer periods of time. She continues to be truly a miracle. She even lately has been putting her lips together to sound out "mmm" especially when she wants me her mom. Thank you for your continued prayers. Love, Lynne UPDATE: 12-8-04 Lyndsay is over her cold and eating better. Both of these answered prayers occurred 2 days after the new prayer update was put on her web page. Isn't God good! He cares even about what seems to us small requests. Lyndsay is actually opening her mouth for each bite and taking 2-3 ounces at each meal now which is a big improvement. Thanks for the continued prayers. Lynne UPDATE: 11-28-04 Hope all of you guys had a wonderful Thanksgiving. Lyndsay has a cold with a cough right now. She has had a lot of mucus but has not had a fever or had to go up on her nighttime oxygen. She enjoyed some mashed potatoes and gravy at the Thanksgiving meal at her Nana's. Lyndsay has been more vocal lately and even audibly laughing. We have been invited to go to Children's Hospital on Thursday, December 9th for the annual Ethics Day. We will be on the parent's panel and present Lyndsay's story. Pray that her story of life will touch the doctor's lives who want to give up on children with Trisomy 18 and show what a miracle she is. Lyndsay is bearing more weight on her legs lately and continues to make gains in her therapies. She is not eating very well by mouth though. She seems to be in the terrible two's as far as her eating. She will clinch her mouth at times and spit her food. The minute you hook her up to be tube feed she starts smiling and clapping. She seems to know it's a lot easier to be tube fed. Pray that her feeding by mouth will improve and that she will get used to different textures in her mouth. Love in Christ, Lynne UPDATE: 8-21-04 Here are some latest pictures! One is Lyndsay's 4 yr old picture and the others are from our recent trip in August to Myrtle Beach. Lyndsay is presently on antibiotics for pneumonia. She is at home thankfully and seems to be feeling a little better tonight. Keep her in your prayers for her speedy recovery. She is back at work receiving her therapies through the school system. She loves her preschool teacher. Lyndsay is getting a "big girl" wheelchair next month with big wheels to start self propelling. As you can see she can support herself for a short period of time now on her arms while on her stomach. She is getting stronger and really growing. She is in 3 T's now and wearing a size 5 shoe. Pray for her to stay well over the Fall and Winter months which has typically been her harder months in fighting illness. Love in Christ, Lynne UPDATE: 8-13-04 From there we went to Suffok to visit with Lyndsay. I had not realized that Fisher and Lyndsay were so close together so I changed our scheduled Wednesday visit to Tuesday rather last minute. Lynne was able to get away from the office and visit with us for a few minutes and then she had to get back to her patients. We got to see Lyndsay in her stander. She stood by the chair on her own and was able to set up. She is beginning to take her hands off the floor and sitting without using them for support. These are great accomlishments for Trisomy 18 children. She is almost 3 feet tall now and I could not get over how she had grown. Her hair was much longer and she is just so beautiful and precious. She loves her hugs and kisses. Her favorite toy is a fish bowl that makes water noises and plays music. She likes to take the bells out of it...lol. Buster came in later and we visited him a few minutes. Lyndsay's brother and sister came in with Dad and they headed straight for Lyndsay to give her hugs and kisses. They love her so much and watching them love on her and play with her was a joy. My greatest joy of course was my time loving on her and playing with her. Her nurse was wonderful with her and we enjoyed getting to know her. All in All, Lyndsay is doing great. Keep those prayers going for her and her family. UPDATE: 7-30-04 BIRTHDAY PICTURES!!! UPDATE: 7-17-04 Lyndsay is doing great and will be 4 years old on Tuesday, July 20th. Isn't God awesome! She saw her rehab doctor in early July and she thought she was doing quite remarkable. Lyndsay weighed 26 lbs. and was 33 1/2 inches long. She is verbalizing more and even said "Mama" the other day. She is always smiling and now laughing especially at her siblings. She loves her childrens' choir at church and loves to clap her hands. She will clap her hands also on cue when I sing "If You're Happy and You Know It." She is having a Dora the Explorer party on Tuesday night as she loves watching Dora videos and claps at the end of them when her adventure is over. Lyndsay loves going to the pool and splashing in the water. She will receive her therapies (physical, occupational, speech) at home this next school year again along with her preschool teacher at home. Hopefully this will continue to allow her good health since she won't be exposed to the illnesses that go around a school. Continue to pray for her health as she has not been hospitalized since last August. Will be getting her 4 year old picture done at the end of the month and will forward this on when I get it. Love, Lynne UPDATE: 5-10-04 Lyndsay is doing much better. She is pretty much over her respiratory infection except for a little cough periodically. Here are some updated pictures showing her combing her hair, holding a cup in both hands, standing up alone and feeding herself with her spoon. Thanks for the answered prayers and concern for her. Love, Lynne UPDATE: 5-1-04 Lyndsay has become ill over the last 24 hours. She started with a cough and cried alot last night because she was uncomfortable. I had taken Jordan away to Mom and Me Weekend (a GA weekend) at Eagle Eyrie (Baptist Retreat Center) in Lynchburg, VA. When I got back today she was wheezing and after her breathing treatment she was still wheezing. When I listened to her lungs I could here she has pneumonia in her left lung base. She apparently required 1/2 liter of oxygen last night when she slept which is more than her usual 1/8th liter. She got a first dose of antibiotics this evening. Please pray her healing back to full health without any complications. Love, Lynne Look! I can sit up all by myself! UPDATE: 4-19-04 Lyndsay is doing great as witnessed by her new pictures. She will be four years old July 20th. The doctors say her growth rate is right at the 50% mark and this is awesome for a Trisomy as lack of growth is one of their issues usually. We just praise God for what He has done and continues to do. UPDATE: 4-3-04 Lyndsay is doing well. She got over her respiratory infection and started to get another one and I decided to put her back on her prophylactic Bactrim (antibiotic) as she seemed not to get as many infections when she was on it. She is about 26 lbs. and is 33 inches long now. She recently had a eye appointment and the ophthalmologist felt she was tracking much more evenly with both eyes and that her left upper lid droop was pretty much gone on it's own. She just got a soft scoliosis brace today as she has 24 degrees of spine curvature. She is sitting up for much longer periods of time with her arms propping her and even is standing next to the sofa with her AFO braces on with little support. She is definitely getting stronger in her arms and legs. She was babbling alot at childrens' choir tonight and even repeated a few hand motions. Her yearly IEP meeting with her therapists, preschool teacher and hearing specialist is coming up April 28th. At this meeting we will be setting her educational goals for the next year. Her preschool teacher is recommending that she stay at home again next school year and receive all her therapies at home where she won't have to be exposed to all the kids and have to ride the school bus. Pray that this will work out for her. Love, Lynne UPDATE: 2-27-04 Lyndsay has a mild case of pneumonia. She has been running temps up to 101. Her antibiotic got changed yesterday as the one she was on did not seem to be working. She is at home and please pray for her healing from this without any complications. She is getting new AFO's made to help with her ankle support and a scoliosis jacket to help with some thoracic scoliosis which is 24 degrees. Last year her curvature was at 23 degrees which has not changed much but since she is more upright now in her stander, she needs to support for the curve not to progress. She has be standing next to the sofa with only one hand support on her while in her AFO's which is really great. She is getting much stronger with her muscles and her rehab and genetics doctors feel she will be walking around ages 6-7. Praise God! Love in Christ, Lynne UPDATE: 2-3-04 Lyndsay has a little cold right now, otherwise she is doing well. She was taken off 3 of her long term medicines (Lasix, Potassium, Septra) 2 weeks ago and doing well without them. No fluid building up in her lungs. Praise God! She went to the cardiologist last Wednesday and her EKG was normal and her echocardiogram is unchanged from last year with only a trivial leak around her VSD (ventricular septal defect) patch. He said he would see her in a year again! Lyndsay saw her Rehab and Genetics doctors recently also. Her development is continuing and currently she averages out at 11 months developmentally which is a gain of 2 months since her last visit 6 months ago. Two doctors both know have said they believe she will walk with her splints on between the ages of probably 6-7 years old. Continue to pray for her especially during the winter months for health and no hospitalizations. God is good! Love, Lynne UPDATE: 1-10-04 Lyndsay is doing great! She is well and that is a blessing during this Wintertime virus season. She has several follow-up appointments this month. She sees her rehab doctor and the dentist Wednesday, Jan. 14th; her genetics doctor and the audiologist who programs her hearing aids on Wednesday, Jan. 21st; and her cardiologist for her yearly check-up and echocardiogram to see how the heart surgery patch is holding up on Wednesday, Jan. 28th. Keep her in your prayers for these upcoming visits and to stay well. She is eating better these days, but drooling alot from cutting teeth. She has a mouth full! She is now sitting with support on her arms for up to 4-5 minutes. She loves watching TV and especially her videos Nemo, Rugrats, and Rolly Polly. She really pays attention to these. She smiles all the time and is a happy girl who loves to go bye, bye on trips especially to church on Sunday morning and Wednesday night. Thank you for all your support and prayers. Love, Lynne UPDATE: 12-18-03 Lyndsay has been sick for couple days now with fever and cough. She has had temperatures up to 101 and has required several breathing treatments. She had her flu shot but some resistant strains are still showing up even in those vaccinated. Her cough last night was barky and she had airway stridor to the point she was getting mottled. I prayed for her airway to open up and she seemed to respond to our efforts here at home despite my initial fear that I was going to have to take her to the ER. Keep her in your prayers that this virus will clear without hospitalization or further problems. Thank you for your love and support of Lyndsay and our family. Lynne UPDATE: 11-12-03 Lyndsay is doing well! We just got back today from her ophthalmologist and pulmonologist. Her ophthalmologist felt that she is tracking better and more evenly with both eyes and that her left lid droop was not as noticeable. The lung specialist said her lungs were clear and that she looked great! She has just started with a sinus infection and the lung doctor gave her an antibiotic to clear her up and she got her flu shot today. Please pray that her infection will clear up before we go on vacation to Lousiana at the end of the month. She is sleeping well at night and still is on 1/4 liter of oxygen when she sleeps. Her preschool teacher that comes to the house twice weekly loves her so much that her teenage son bought a musical piano for her to use during class time after hearing her talk so much about Lyndsay all the time. Thank you for all your prayers and support. Love, Lynne UPDATE: 10-10-03 Lyndsay is home and did well with her surgery today! She had her adenoids removed. She did not have to have her tonsils removed as they were rather small anyway. Her airway is soft some going to her lungs, called tracheomalacia, which makes her sometimes get less oxygen in certain neck positions. The urine reflux test showed that she does not have any problem with urine refluxing from her bladder to her kidneys, but did have a lot of phosphate crystals in her bladder probably from not getting enough water or maybe too much phosphorus in her vitamins. She is in some pain tonight and on some oxygen but should be fully recovered in 3 days. Continue to pray for her during this time and thanks for all the prayers which have been answered. Love, Lynne UPDATE: 9-21-03 We are thankful we made it through the Hurricane Isabel unscathed. We have alot of trees down and debris but God kept us safe and no harm came to our home. Lyndsay is doing well. She is really making big gains in her new therapies through the school system. She can nearly sit alone with support on her arms. She is learning some self-feeding after her preschool teacher brought whipped cream, placed it on her tray and she took her hands from the whipped cream to her mouth by her self. Lyndsay is tolerating her stander for longer periods of time without getting bruises on the bottom of her feet. She is talking alot more now with her vocalizations and imitates Drew (her big brother) when he sticks out his tongue she copies him. I'm not sure this is a good behavior to learn. Lyndsay is scheduled for surgery on October 9th. They will be taking a look at her upper and lower airways with a scope and plan on removing her adenoids and possibly her tonsils. She also will have a VCUG (test to check for urine reflux) and corrective procedure for reflux using an injection called deflux if the problem exists. She will likely have to stay overnight at the hospital after the procedures. Please pray that the procedures go well without any complications. She should be able to breathe possibly without oxygen at night as it is felt that she has obstructive breathing when she sleeps. Thank you for your continued prayers and support. Love, Lynne UPDATE: 8-30-03 Lyndsay is doing well. We all enjoyed last week at Myrtle Beach with friends we went with from church. Lyndsay enjoyed the baby pool with the waterfall jets and kept playing with them putting her hands or legs over the jets. The picture with Lyndsay in the white dress is her official 3 year old photo. She will start school next week also like Drew and Jordan, but her preschool teacher and therapists ) speech, occupational, physical) will all come to the house to see her each twice a week. Pray for her to stay healthy. She has as appointment with the urologist next Wednesday and will update after that. The plan is to schedule a day of outpatient procedures to include a bronchoscopy, hearing test, and VCUG (urine reflux test) sometime in September. UPDATE: 8-07-03 Lyndsay came home from the hospital yesterday afternoon. She had been without a fever for 24 hrs when discharged and is on oral antibiotics. She is still on a small amount of oxygen while awake and previously was not on any oxygen. She is so glad to be back home in her own bed to sleep. She slept 4 hours when she got home yesterday! Please pray for continued healing of her pneumonia and to get back off oxygen during the day while awake. Thanks for all the prayers and support. Love, Lynne UPDATE: 8-03-03 Lyndsay was hospitalized this morning with pneumonia. She started with a cough 24 hours ago and then had a temperature up to 103.2 early this a.m. Please pray for the infection in her lungs to respond to the antibiotics and that she won't have to be in the hospital very long. Love, Lynne UPDATE: 7-07-03 Lyndsay is doing well. A few weeks ago Lyndsay was having this stridor nose in her throat which would not clear with breathing treatments. We went to see the ENT doctor and he decided it would be a good idea to look at her airway with a scope (bronchoscopy). It has been set up for her to go under anesthesia for the bronchoscopy, VCUG (urinary tract test looking for urine reflux up into the kidneys), and her annual ABR (hearing test). It is presently set-up for August 11th, but I'm going to postpone this until later as we are all scheduled to go to Myrtle Beach on August 16th and the stridor noise has resolved since she's been switched to Zyrtec from Claritin for her allergies. I'm just not at peace doing all that before leaving the next Saturday and there has been some mention by the ENT doctor that he might do a tonsillectomy and adenoidectomy at the same time. I guess he decided this after looking at her sleep study results. Lyndsay will be 3 years old in 2 weeks--Praise God! What a miracle she surely is. We are thankful for no recent respiratory or urinary tract infections. Please pray for her to be able to get off her oxygen at night. She is off oxygen during the day while awake, but is on 1/4 to 1/2 liter at night or during naps. Will have new pictures soon! Thanks for all your continued prayers and support. Love in Christ, Lynne UPDATE: 6-15-03 What can I possibly say? Lyndsay is beautiful and a total joy. What miracle....this child that was not to see her first birthday will next month be three years old. She is doing great and we were blessed to be able to attend church with her Sunday night and see her participate in the children's choir presentation. Such a joy it was. Her church family is very supportive and loving and they all love her very much. She truly loves her brother and sister and just seems to light up when they come play with her. God chose a very special family for her and our visit was just wonderful. Lyndsay and Lynne also did a video clip to be aired on our upcoming telethon. We thank each one of you for your prayers and I wish you could each see in person the results of those prayers as I have been priviledged to do. God bless you all, Elizabeth UPDATE: 6-04-03 I spoke with Lynne on the phone today and she said Lyndsay is doing great. They have just worked out her therapy/school schedule and they will be doing it in the home instead of Lyndsay having to go to the school. I am so excited that I will be seeing her on Sunday and its seems our little sweetie is in the children's choir at church and I will get to see her perform Sunday night. As I understand it she gets to ring the bells...what a joy. Keep her in your prayers and I will give her a big hug and kiss for all of you.....Elizabeth UPDATE: 5-26-03 Lyndsay is doing fairly well except for a recent cold. She's been a little congested in the chest which required her going back on oxygen for a little while, but was off oxygen during the daytime today. We seem to have fought this infection off without an antibiotic. She went to the rehab doctor last Wednesday and weighed 23lbs. 10oz. She is such a happy girl and smiles spontaneously to everything. She has been determined eligible to receive her therapies through the school system starting in September as she will be ineligible for early intervention after age 3. It's hard to believe she will be 3 years old on July 20th. Thanks for your continued prayers and support. Love, Lynne UPDATE: 5-04-03 Lyndsay came home today! Praise the Lord! She is doing much better. She is on 1/2 liter of oxygen when usually she is on none when awake and 1/4 liter when sleeping. She is on antibiotics which helped turn around the 102.6 fever, but not really sure where the source of infection was. Her blood cultures never grew out anything. After 2 1/2 weeks in the hospital we are glad to try to get our lives back to our norm, as Buster, myself and our nurses took turns staying with Lyndsay while she was hospitalized. Thank you for all your prayers and continue to pray for Lyndsay's health--to stay well and get off the oxygen. Love, Lynne UPDATE: 5-01-03 We thought that Lyndsay might come home today, but she spiked a fever to 102.6 this a.m. She has been pretty miserable all day keeping that temp most of the day. Her lungs and urine are not infected and the source for the temperature is likely coming from her bloodstream. She still has her central access line in her subclavian vein and it could be making her have an infection. She's also going through drug withdrawal from the multiple sedating meds she was on while on the ventilator. Please pray that the source of the fever is found and that her temperature comes down. Pray for her comfort during this time as it is hard seeing her some uncomfortable. Love, Lynne UPDATE: 4-29-03 Good news! Lyndsay is doing much better. She is only on 3 LPM of oxygen via a nasal canula. Lynne says that she has been very active and playful today. Drew and Jordan were able to come see their baby sister and all three were delighted to be together again. It looks like Lyndsay will be transferred out of the PICU and into a regular room tomorrow. Please continue to lift Lyndsay up for complete recovery and a speedy trip home. In Christ, Lora UPDATE: 4-28-03 Lyndsay was extubated yesterday and did well for several hours; however, she developed stridor due to airway swelling. Her oxygen saturation started decreasing and the resident was preparing to re-intubate her, but Lynne intervened and was able to convince them to try Bipap. They also started her on a different steroid called Decadron which is good at decreasing airway swelling. The respiratory therapists worked all night with Lyndsay using seven different masks with the Bipap and finally found one that would seal on her little face. She had to have 10 LPM of oxygen via the Bipap which pushes the oxygen into her lungs. About 3:00 AM things started looking up. This morning, Lyndsay was able to come off the Bipap and is now on a regular face mask at 10 LPM and her oxygen saturation is around 95%. Lynne says that Lyndsay is awake, smiling and playing with the hair of her babydoll. The Decadron appears to be working on decreasing her airway swelling and her chest x-ray looks a little better. Her stridor is diminishing. We are so grateful that Lyndsay did not have to be re-intubated. Praise the Lord! We ask that you continue to pray for Lyndsay's complete recovery and that she will be able to come home soon. Looking to Him, Lora UPDATE: 4-25-03 Lyndsay is still in the Pediatric Intensive Care Unit on the ventilator. Her oxygenation has improved some and is only requiring 50% oxygen now. They say her chest xray is improving. She will have been on the ventilator one week tomorrow. Pray that she will continue to wean off the oxygen and get off the ventilator soon. Love, Lynne UPDATE: 4-22-03 Lyndsay has been in the hospital since Thursday night. I flew in early from Orlando where we were vacationing with our older children. Our nurses were watching Lyndsay this week while we were gone. Lyndsay got pneumonia in both lungs and had to be intubated and put on the ventilator on Saturday and is in the pediatric intensive care unit at Children's Hospital of the Kings Daughters. She has improved some as initially she was requiring 100% oxygen and now is down to 60% oxygen on the ventilator with saturations in the 90's. The chest xray looked some better yesterday. Please keep Lyndsay in your prayers as we thought we had made it through the winter months without big problems. Lyndsay had not been hospitalized for a year and a half before this episode. Praise God! Specific prayers would be for her to come off the ventilator soon and for her lungs to heal and not require as much oxygen. Love, Lynne UPDATE: 4-20-03 Lyndsay is very critically ill and in the PICU at the children's hospital. She is on a ventilator at 100% FiO2 and requiring a blood transfusion. The doctors are keeping her paralyzed and sedated. She may be going into acute respiratory distress syndrome and needs everyone to pray and lift her up for healing. Lora UPDATE: 4-19-03 Lyndsay is very ill. Her oxygen requirements steadily increased and on Thursday night, she was admitted to the Children's Hospital of the Kings Daughters. Lynne flew home from Florida emergently on Friday and has spent every minute since then with her precious girl. Lyndsay is now very critical and was transferred to the PICU where she was intubated and placed on the ventilator. Even on the ventilator, she is requiring high amounts of oxygen and is currently on an FiO2 of 85%. They are keeping her sedated and paralyzed. Please pray for her. We all love her so much and it is so hard to see her like this. She desperately needs the healing touch of the Father's hand. So, let us all pray without ceasing. In Christ, Lora UPDATE: 4-16-03 My name is Lora and I am one of Lyndsay Stockman's nurses. Lynne and Buster are on vacation with their two oldest children while Debbie (Lyndsay's other nurse) and I are taking care of Lyndsay. Lyndsay became ill with a cough, nasal congestion and fevers up to 103. She is still on an antibiotic for her recent UTI. Her oxygen requirements have increased to 1.5 LPM while she is sleeping and continuous oxygen therapy at 1/2 LPM even while she is awake. Before this illness, she only required 1/2 LPM while sleeping. Additionally, she is having very loose stools and her urine output appears to be decreasing. Although she is fussy at times, she continues to be a joy to take care of. Lynne asked me to write this update and send it along to you. We all would appreciate the uplifting of Lyndsay before our Father and prayers for her complete recovery. Thanks so much, Lora UPDATE: 4-05-03 Lyndsay has another urinary tract infection after just being treated for one and finishing an antibiotic about a week ago. We are waiting on the culture result to see what to best treat it with as there are usually bacteria present that are resistant to several antibiotics. Please pray for her in getting over this infection and to keep her healthy. She will see her Ophthalmologist and Pulmonologist on 4-23-03. Lyndsay is presently being evaluated for school so she can continue to receive her therapies (speech, physical, occupational) after she turns 3 years old in July. It is a scary thought sending her to school on the school bus in September. Her nurse will go with her and she will be at school from 9am to 1pm. Thank you for your continued prays and support in lifting Lyndsay to our Father. Love, Lynne UPDATE: 3-16-03 Lyndsay has a urinary tract infection. Her urine culture results are pending and have started her on Bactrim, but this antibiotic may be resistant to the infection. Please pray that she'll get over this soon and not have any complications. Love, Lynne UPDATE: 2-26-03 Lyndsay is doing better! Thanks for the prayers. She is over her respiratory infection after a course of antibiotics. We had tried to take her off Lasix but could not get her off oxygen and she kept have apnea episodes when she slept. She's off oxygen for the second day now while awake since she got sick and back on daily Lasix which helps her breath better. She went for an overnight sleep study last Friday night, but won't have the official results until we see the pulmonary doctor in April. She is smiling so spontaneously all the time now. She is eating well by mouth and getting in a load of teeth at the same time. We covet your continued prayers for her and pray that she'll stay well through the remaining Winter. Love, Lynne UPDATE: 2-11-03 Lyndsay has a respiratory infection which started Sunday night. She is running temps up to 102 and coughing a lot. She is tired of me bulb suctioning her nose out and is on oxygen even during the day since yesterday. Please pray for healing for her from this infection and that she will not have to be hospitalized. We can usually manage her better at home as we have oxygen, oxygen monitor and nebulizer here. Thanks for your continued prayers and specifically for this need. Love, Lynne UPDATE: 2-08-03 Lyndsay is now a traveling girl! She has her own little wheelchair (with her name on the back of the seat) and a stander which we got at the end of January. We took the wheelchair to church last week and everyone thought she looking like a big girl. She saw her cardiologist last month and the echocardiogram showed her heart patch is doing well with only trivial leaks around to edges. The leaks are not causing any shunting or pressure problems in her heart and he could not even hear a murmur. He said he'd see her in a year. We also went to the pulmonary doctor the week later and she said Lyndsay looked and sounded great. She stopped her Lasix and potassium a week and a half ago and Lyndsay has not required any additional oxygen and is still off oxygen while awake. Lyndsay is scheduled for a sleep study in a couple of weeks as she still pauses her breathing during deep sleep and we are trying to figure out if it is her tongue causing this or a neurological problem. Continue to pray that Lyndsay will get off her oxygen at night and during naps and that her lungs will get stronger. Buster took the enclosed picture of Lyndsay while in her wheelchair recently. I plan sending a picture of her in her stander also soon. Love, Lynne If you would like to add a page for your child, click on "Add A Child" below. 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