Translate This Page To: Spanish German French Italian Portuguese Norwegian Brought to you From FreeTranslation.com Give a gift in honor of this child. Migo M. UPDATE: 8-4-05 Computer is broken this is what Ellen's letter said: “Thank you Lord…I was able to get the mickey button you sent me a week or two ago and the good thing is that they didn't make me pay the F2500, I think in dollars it's more or less $50.00. I brought Migo with me and explained and begged to them again how important that medical supply is to my son, and eventually they gave it to me and paid only F30 for the postage stamp. Migo is using it right now and French 16 is a perfect fit for him. Thank you again for providing it for my son. Migo is doing much better now than before, most specially his weight. His Occupation therapy is doing great, he is learning new things now like how to stack rings, stack cups which he can never do before. He is starting to imitate a lot of actions lately, which is very important for him and for us so that sooner we would be able to understand him, so that he can point or tell us what he wants and don't want. His tantrums are still there but his therapist told us that once his action skills are good it will lessen, we don't know yet if he could speak. We are concentrating more on his behavior so that his hitting people and hitting his head on walls and floors will lessen. All in all Migo is doing great. Migo helps me recover with the sadness and loneliness I am feeling because of my mom's death. I am very sorry for my poor handwriting, our computer is broken again and we don't know if it could be fixed again. Thank you again for all your help. Jesus knows how much I appreciate all of your help and how thankful I am. I really love my son very much and I want him to be okay out of any sickness and be fed properly. Once again thank you very, very, very much from the bottom of our hearts. God Bless you always. I will be updating Migo's condition the soonest possible way I can. Thank you again for all your kindness.” Love and Prayers, Ellen Matsuda UPDATE: 6-7-05 My dearest mom passed away last May 5, 2005, Its almost a month that she's gone and i'am really missing her so much, i miss our long talks i miss praying with her....i miss every bit that we did together. I really am not feeling okey right now, physically and emotionally...been tired and exhausted from everything. But despite all that, Migo is doing better now with the Mickey Button,he started his therapy last week, he seems not to like it because everytime her teacher asked him to do a task or teach him how to do it,he shows off his unbelievable tantrums and he even pulled out his button,thank God the ballon just deflated and i was able to put it back again. He is now wieghing 13kg he really is fat now compared to his 10kg before.By the way the other mickey button you sent arrived already but I went to the post office last week so that i can get the mickey but i was surprised that the package went to the custom area and they are charging me P2,500 for the button,i questioned them why they are charging me for the package that much because last time i only paid P30 for postage fee,they told me that there was a declared amount of $100 for the package,i explained to them that it is a donation after my long explanation and begging i still wasn't able to get the package because they insisted that i have to pay them P2,500 first for custom fee, i told them that it is not right to charge me for it is a donation...tomorrow i'll be going back again to the post office and ask again if they could just give it to me free of charge and only pay postage tax of P30. Honestly speaking i dont have that amount of money right now, up to now we still haven't paid all of my mom's hospital and doctor's fee... thank God that the hospital and the other doctors gave us 3 months to be able to pay them. By the way katkat, the little girl i was telling you about had an operation early april,she also had the fundiplication and tube insertion like Migo,her operation was a success, i again gave her the extra mickey button that Sue tollin gave me the 1.2 (i gave it to her before but they returned it to me because it seems that it was to big for her, but now i think its the right size for her because i think she gained weight already), they will be replacing her foly cath early July,Kat Kat and Migo are now seeing the same Gastro doctor,Migo's doctor before was not very helpful and accommodating to us not like kat kat's doctor thats why i decided to change gastro doctor. I've known Kat Kat through our Pulmonary Doctor (they are seeing the same pulmo doctor). we really are very thankful for all the help you have given us... THANK YOU AGAIN FOR ALL YOUR KINDNESS. God Bless you, Ellen UPDATE: 4-22-05 sorry if i haven't been emailing you with migo's update...i'am really going crazy here.... My mom's at the hospital again,now both her lungs have water and she is schedule for the same procedure late this afternoon, they have to drain the water out of her lungs at once because she has having a hard time breathing and is having chest pains. i'am heading off to the hospital afterwards to be with her and leaving my little angel migo at home with only my mother in law to take care of him and i feel guilty because during my absence he wouldn't be able to eat properly for my mother in law is having a hard time feeding migo without my help,but i have no choice because i can't bring migo to the hospital,he might contract other disease or sickness knowing that he also has immune system problems. I'am really sorry if i haven't updated you and if only now that i'll be informing you that migo is now using the mickey button that you donated to us, honestly speaking i forgot the date when his doctor took off the folly cath and replacedit with the mickey button. The doctor doesn't want to put the mickey button to migo's tummy because migo's stoma measurement is 1.75 cm but i insisted to use the mickey you gave me the one with the 1.5 cm. i really wanted the folly catheter to be removed. Is it ok if i insisted to use the mickey button with the 1.5cm though his stoma length is really 1.75?the only thing i have noticed is that liquid seems to leak every after feeding and sometimes he is blouted sometimes he is not but i'am thankful because when i was using the folly cath he was always blouted haven't had the time yet to schedule migo for gastro check up because i'am busy with my mom,my mother in law is not familiar with the doctors and i can't force my husband to absent himself from work because honestly we can't afford to loose a one day salary as you kbow we are tight on budget as everybody is now a days. Despite everything that is happening with my mom i'am still very thankful to GOD that Migo is doing fine and is now eating properly and been taking his medicines accurately. I haven't weighed migo yet but i know he is gaining weight. THANK YOU SO MUCH AGAIN FOR ALL YOUR HELP AND KINDNESS TO MY FAMILY. GOD BLESS YOU AND YOUR FAMILY, Ellen UPDATE: 4-12-05 Sorry if its just now i had the time to give you an update. Migo is doing okey now,the last time that i e-mailed you was migo's 5th day on the antibiotic, the seventh day for his antibiotic came but he still had fever so when we had the check up his pulmo doctor gave him new antibiotic called ciprobay to be given for another 7 days or more and thank God that antibiotic worked for him. the other good news i have is that i already have the caliper you've sent me (its a paper with holes/circles in it) ....and thank you so much for the card, i was touched....we're for check up with his gastro doctor tomorrow and hopefully everything would be fine.Thank you so much again.... i know you haven't heard me about complaining with migo's improvised feeding tube,actually up to now i still don't like using it but obviously we have no choice and i've learned to be contented with it as long as migo has the means of eating.he is blouted most of the time but what migo's doctor taught me is that i just have to asperate everytime i feed him and as long as his tummy's measurement doesn't exceed to 56cm, its okey. I'am really excited about migo's check up tomorrow, i pray that i would be able to use the mickey button that you have sent me. Please forgive me if i have to write about my mother but i would also like to ask prayers for her... for the past few weeks since her discharge it was very hard for us..she's been weak and tired most of the times,good thing is that migo makes her smile and somehow an inspiration to her. she has been coughing a lot for this past few days and she has trouble swallowing and drinking water and she seems to loose her voice , i really don't know what to do most specially when pain starts to attack her..she's on pain medication right now but it doeasn't seem to work right now.It really breaks my hurt to see my mom getting weaker everyday and i can't do anything about it. I hope that her doctor could help us, we will be seeing him on friday. Please help me pray for my mom and for my angel migo.....Once again thank you so much for your time and for all your help God Bless you always Ellen UPDATE: 4-3-05 Migo,He has high fever since last Wednesday,his pulmo doctor told me its because of bronchitis. Migo is now taking klaricid antibiotic, dolan and tempra for his fever, its his 5th day on antibiotic but still has fever,on the 7th day and he still has fever, we have to go back to his doctor maybe for other medicines but hopefully not for confinement. I'll update you as soon as i can... Thank you again for everything.... God Bless you Ellen UPDATE: 3-15-05 I hadn't heard from Ellen in a while so I gave her a call. We were able to get a stoma guide donated..thank you Jesus. It is on its way to Migo. She said Migo is doing well now and the mic-key will be so great for him and relieve many of his problems. I learned that she is also taking care of her Mother who has cancer. Please be in prayer for Migo's grandmother and Ellen as she is carrying a large burden and needs all your support. I also learned that her computer is broken so that is why she has not updated us lately. She appreciates all your prayers more than you can know. Elizabeth UPDATE: 3-5-05 We are still in need of a caliper before we can use the mic-key kit that COTP sent us. Please pray that we can locate one. Migo is doing better since his recent hospitalization but needs your continued prayers. I've almost asked and called every medical supplies distributor here in our country before and told me that they don't sell caliper here because Mickey button are not used here in our country. I'll email you again once i talk to kate's dotor....THANK YOU SO MUCH AGAIN FOR YOUR KINDNESS AND FOR ALL YOUR HELP... Please contact Elizabeth at COTP if you have any suggestions. UPDATE: 2-28-05 God is really good.....i got a notice from our postman yesterday afternoon and the notice is about the package you have sent me.I just got home from the post office,you have no idea how excited i was while opening the package, i was so happy it made me cry. THANK YOU SO MUCH ELIZABETH... Migo is doing well now, his fever subsided last thursday, his CBC is normal now,the only thing that is worrying me is his feeding for he still can't tolerate his feeding even after replacing the old foly catheter to a new one, but compared to his situation last week his much better now, less cranky and he is playful now. Elizabeth, i'am really so happy and thankful. I'll be calling his gastro doctor later if he can replace the foly cath to the mickey button you gave Migo even if there is no caliper. By the way the package didn't include a caliper, but eventhough it didn't, i'am still so thankful for everything that you have sent for Migo, it is everything that my son needs.You have no idea how much you have changed and touched my son's life and ours too. I'll email you again after i've talked to Migo's doctor ....THANK YOU SO MUCH ELIZABETH FOR EVERYTHING....FOR YOUR HELP,FOR YOUR TIME, FOR THE CONCERN YOU HAVE SHOWN AND GIVEN TO MIGO AND FOR YOUR PRAYERS. GOD BLESS YOU AND COTP FAMILY Ellen and Keiji UPDATE: 2-19-05 Migo still has high fever.Migo's urinalysis was ok except for his CBC and abdominal xray. His doctors advised me that the folly catheter must be replaced at once because it might be the one causing the infection,we'll be on our way in a little while. Right now he is on antibiotics. I pray that the medicine will work for him and make his fever go away, and i also hope that after the old folly cath will be replaced with a new one he would be able to tolerate his feeds again and so that his tummy wouldn't be blouted. Will update you more after i have talked to all his doctors, i'am really worried about his stomach not being able to tolerate his feeds and being blouted, he is so uncomfortable right now, he is always cranky maybe because his tummy hurts but i really don't know for he can't talk and complain about the pain he is experiencing. Thank you for your time and thank you for your kindness...GOD BLESS YOU Ellen UPDATE: 2-17-05 Just an update with my son Migo. The stitches from his operation are healing well its just that,he started to have high fever last monday and it didn't subside up to now. The fever came with vomitting and diarrhea.He is not tolerating his feeds right now so he has lost weight again.The docotors requested for CBC lab,urinalysis/stool exam and plain abdominal x-ray(his tummy is so blouted) to find out where the infection is coming from,we had those things done yesterday and i'am expecting for the results today and i'am hoping that it is not that bad... what concerns me most is why his tummy is so blouted and doesn't tolerate his feeds anymore. Just this 3:00 am while feeding him, some liquid came out of the hole where the folly catheter is placed, since i was half awake and half asleep at that time i just wiped it out with water and placed a cotton to absorb the liquid,when i woke up this morning to check it the hole is sore and a yellowwish,greenish liquid still continues to leak. I called Migo's doctor this morning about it and he suspects that it is bile leaking in his tummy. His doctor advised me to feed migo into small feedings of 3 oz every 3 hours ,which all in all i have to feed him atleast 9 or 10 times a day to be able to meet up the desired calorie for him. If he wouldn't still be able to tolerate this small feeds the doctors other option is to insert an NGT tube in his mouth which i really don't want to happen for i know for sure it would only add pain to him and will make his throat irritated again. I hope and pray that all the lab and xray results are not that bad and the docotors would decide not to confine Migo. Thank you so much for your time and please pray for my son Migo. God Bless you....and THANK YOU SO MUCH for your kindness Ellen UPDATE: 2-9-05 We are home now.Migo is doing fine but he's been cranky since we got home from the hospital, i dont know if it is still the pain he is complaining or something else, but all in all, he is doing fine,THANK GOD. Sorry wasn't able to email you at once i'am having a hard time taking care of migo and doing the household chores at the same time, but i know in time i will be able to adjust again. THANK YOU SO MUCH AGAIN FOR YOUR KINDNESS...GOD BLESS YOU ALWAYS ELLEN ADDED: 1-25-05 Migo is 3 Years Old!!!!!! Condition: Congenital anomalies. They haven't found a syndrome yet to classify for his anomalies. My son Migo, who is 3 years old has multiple congenital anomaly, one of his anomaly is that he can not swallow oraly thru his mouth so he feeds thru a gastrostomy tube, unfortunately the gastrostomy tube was now defective ,since our country and government can not afford to give us good health department it is very hard for parents like me to be able to find a gastrostomy Tube and Button here in our country. I've tried calling every medical supplies and drug manufacturers and distributors here in our country and it seems that we don't have a gastrostomy tube or button for sale here in our country,the only thing they can tell me is that we have to find it abroad. My son will be scheduled for an operation next week, the procedure is called bilateral orchidopexy and there would also be work up done for his cleft of his small palate, i was praying that we be able to find a button before the operation so that we can give him proper nutrition as a preparation for the work up but with the button or not we must proceed with the operation for it is hard to re sched again with the doctors.